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DebJ14

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DebJ14 last won the day on April 28 2025

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  1. I was diagnosed back in the late 1960's with dermatitis herpetiformis. Unfortunately, the letter from the dermatologist said nothing about gluten free and only came with a prescription for steroid cream. I just scratched and scratched when that prescription ran out. Years later I was prescribed Dapsone, but once again no mention of a gluten free diet....
  2. Get an air fryer! Then you won't need oil. FYI: My doctor/board certified nutritionist told me to only use Avocado Oil, Coconut oil and Olive Oil. Never glutened by any of them. Processed seed oils are really pro-inflammatory.
  3. I am glad you are getting this checked out. Our son would get that kind of pain when he walked. He assumed it was gut. Boy, was he ever wrong. It was his heart. After a cath and triple bypass and a long recovery, he can walk 45 minutes on the treadmill with no pain.
  4. I had the same problem with oats. I also cannot tolerate corn. I wasn't at my absolute best until I went grain free.
  5. And let's not forget that we have to beware of paper straws. Those strips of paper are often glued into straws with wheat paste. I ran into this on a cruise when they stopped using plastic straws. I was sick within 30 minutes of having a Mojito. The person taking care of my food allergies pulled a box from a bar and sure enough "Contains Wheat" was written...
  6. Say what you will about Peter Osborne, but he gave me back my life. Back in 2007 he was not promoting grain free, but came to that conclusion a few years later. While I did OK on gluten free, I really saw the greatest recovery when I went grain free. I notice a huge difference if I eat a gluten free food that contains any sort of grain. I ache all over...
  7. Yes, his A1C was 4.9. Fasting blood sugar and insulin was tested in the hospital in August and he was told it was excellent. He has never had a problem with blood sugar.
  8. I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ...
  9. As my doctor said, you don't have to eat breakfast food for breakfast. I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting. In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna. For dinner I have pork, shrimp, chicken, lamb...
  10. I was tested for nutrient deficiencies and Thiamine was not my problem. The doctor uses the Spectracell Test for Micronutrient Deficiencies. I was deficient in Carnitine, Magnesium, multiple antioxidants, D, Selenium, B12, B6 and a long list, just not Thiamine.
  11. Migraines ran in my family, on my father's side. All of my female first cousins on that side, and our grandmother suffered from Migraines. Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007. The dermatitis herpetiformis...
  12. I did well on gluten-free, but continued to have issues a year down the road. Testing for food allergies and sensitivities revealed severe IgE allergies to yeast and dairy as well as food sensitivities to 23 other foods. I got better after taking out those foods, but it was not until the doctor recommended I go completely grain free did all my issues resolve...
  13. Personally, I would get a new GP. Advice to continue eating gluten, even after a Celiac disgnosis, is ridiculous. Clearly the GP knows nothing about the disease. That advice could be dangerous to your health. I too found out by accident. I was searching for help with ulnar neuropathy. The first doctor took xrays of my elbow and hand. Surprise, surprise...
  14. Our son was put on Minocycline for his acne. It did not solve the acne problem. He developed drug induced lupus and pericarditis from it and missed an entire year of high school. He literally went from playing football to bedridden in a couple of weeks. His PCP tested him for genetic antibiotic resistance and he cannot take any drug in the Tetracycline...
  15. Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies. It tests the intracellular levels of the nutrients, not blood levels. When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests. I have a genetic inability to process...
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