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DebJ14

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DebJ14 last won the day on April 22

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  1. DebJ14 started following Muscle Twitching and Toddler Diagnosis?
  2. DebJ14
    They will have to put him back on gluten in order to get accurate tests results, so all the progress may be lost for a while. My grandson was 2 1/2 years old when he, his father, and his mother, were diagnosed. He was not even on the chart for height or weight and had not been on the chart since he was 12 months old. The first month he went gluten...
  3. icon Scott Adams reacted to a comment: Diagnosing Celiac Disease in Children Using Dental & Oral Manifestations
  4. DebJ14 started following Diagnosing Celiac Disease in Children Using Dental & Oral Manifestations
  5. DebJ14
    This would be wonderful. I suffered from those horrible mouth ulcers until I was finally diagnosed at 54. I had one that day, and it was the last one I ever had. The inside of my mouth is covered with scars from those painful ulcers. At my first dental appointment after I went gluten free the dentist remarked that it was the first time in the 25 years...
  6. DebJ14 started following Yeast infections , Confused with test results , Joint swelling when ill even on gluten-free diet and 4 others
  7. DebJ14
    If your son does go completely gluten free, then he will find that occasional consumption of gluten will result in a stronger reaction. The longer you are off of it, the worse the reaction. When I was first diagnosed I would break out in a rash or get a headache if I consumed gluten. As time went on I would get diarrhea and vomit profusely. The time between...
  8. icon DebJ14 reacted to a post in a topic: Ore Ida Tater Tots Gluten
  9. icon DebJ14 reacted to a post in a topic: Different gluten sources causing different symptoms?
  10. DebJ14
    YES! I had the Spectracell test for micronutrients and take targeted supplements in specific doses as recommended by our Board Certified Nutritionist.
  11. icon knitty kitty reacted to a post in a topic: Joint swelling when ill even on gluten-free diet
  12. DebJ14
    Nobody told me about the high dose Thiamine, but when my husband was injured he was put on it, so I started taking it too. I definitely saw improvement. At this point my biggest concern is my right foot/ankle. Tendon tears have taken a toll. My Achilles did not rupture, but had multiple small tears. I underwent laser and ultrasound therapy to help heal...
  13. icon Scott Adams reacted to a post in a topic: Finding out I’m coeliac whilst pregnant
  14. DebJ14
    I too have had horrible joint pain and swelling as well as chronic tendinitis. A good diagnostician reviewed all my medical records and realized that it all started back in 1987 after a course of Cipro for a sinus infection. He also linked subsequent severe flare ups in my ankle, shoulder, and elbow to repeat prescriptions. I was floxxed! My poor...
  15. DebJ14
    This is concerning. Not only do you have a higher risk of miscarriage, but you also have a much higher chance of having a low birth weight baby. If you are not absorbing nutrition because of celiac disease, then neither is your baby. And, if you continue down this path your breast milk may not be as nutritious as it should be either. I had 2 miscarriages...
  16. DebJ14
    When I had my worst outbreaks of dermatitis herpetiformis it was on my upper arms from elbow to shoulder. I never wore sleeveless or short sleeves to school, even in hot weather. I always had to have at least a 3/4 sleeve cotton shirt under my sweaters to keep the weeping blisters from leaking through the sweater. A few years later I had a weird bout...
  17. icon Beverage reacted to a post in a topic: Positive Genetics (HLA) DQ2 and DQ8 and histology Marsh 3b but negative serology
  18. icon knitty kitty reacted to a post in a topic: Positive Genetics (HLA) DQ2 and DQ8 and histology Marsh 3b but negative serology
  19. icon Scott Adams reacted to a post in a topic: Positive Genetics (HLA) DQ2 and DQ8 and histology Marsh 3b but negative serology
  20. icon Scott Adams reacted to a post in a topic: Vitamin supplements
  21. icon Scott Adams reacted to a post in a topic: My parents have friends coming over to our house,risk of gluten could be really high
  22. icon Scott Adams reacted to a post in a topic: Yeast infections
  23. DebJ14
    Our son who has Celiac had the bloating, distension and pain. The gastro told him to take Prilosec. When he stopped after the 14 day course, it came roaring back. He went to a different gastro and was advised that is problem was not enough stomach acid, which the Prilosec made worse. He takes Betaine HCL at each meal. It took a while to calibrate the...
  24. DebJ14
    I split my Mg dose daily. I take the Mg Glycinate in the morning and Triple Source in the evening. I also found that I slept better following that plan. Also, the Glycinate did nothing to stop leg cramps. Haven't had one since I switched to the Triple Source at night.
  25. DebJ14
    Thankfully, everyone in my family respects my diagnosis and agreed to go gluten free when I was diagnosed. When the doctor told them they needed to be tested too, they complied, even my hubby. My husband and one son have NSGS and our other son, his sons and his wife all have celiac disease. Our households do not permit anyone to bring anything with...
  26. icon DebJ14 reacted to a post in a topic: My parents have friends coming over to our house,risk of gluten could be really high
  27. DebJ14
    I just looked up Vaginitis in the textbook Recognizing Celiac Disease: Signs, Symptoms, Associated Disorders & Complications. On page 231 they discuss Vaginitis. The book says it is frequently associated with celiac disease in females and that it results from nutritional deficiencies that cause a lack of tissue integrity which include Folic Acid, Niacin...
  28. icon Scott Adams reacted to a post in a topic: Still frequent pooping (frequent Diarrhea) 8 years into diagnosis
  29. DebJ14
    We were lucky that our grandchildren were diagnosed young. Our oldest grandchild was 3 when diagnosed. He had never to that point even been on the growth chart. He grew 2 inches and gained 6 pounds the first month he went gluten free and within his first 6 months he actually made it onto the growth chart. His little brother was 7 months old when he was...
  30. DebJ14
    Mexican food is my go to when eating out. Just make sure the tortillas and chips are 100% corn. The beans may or may not be gluten-free. I buy gluten-free Charro beans at my local supermarket. And rice is usually OK. Sounds like your family needs to put some work into learning exactly which foods contain gluten and those that normally do not. We vacation...
  31. DebJ14
    I had the gut symptoms, but got that ridiculous diagnosis of irritable bowel. Once that was on the record all the gastroenterologists I saw afterward never went further to find the cause. I was one of the people with constipation, not diarrhea. My doctor swore it could not be celiac. My biggest issues were neurological including ataxia and debilitating...
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