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DebJ14
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Gluten sensitivity and Dermatitis Herpetiformis
DebJ14 replied to amine33's topic in Dermatitis Herpetiformis
Make sure that any biopsy is taken on the skin around the rash, not from the rash itself. Otherwise, it will be pointless. If the doctor starts to take a sample from the rash, pull your arm away quickly and go find another doctor. -
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DebJ14 reacted to a comment:
No Biopsy Needed to Accurately Diagnose Celiac Disease in Nearly All Adults
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Worthless Doctors
DebJ14 replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Try a totally grain free diet and do not eat any commercially prepared gluten-free food. Even though they say they are gluten-free, they are still allowed to contain 20ppm. A gluten-free cookie here, a gluten-free pretzel there and a bowl of gluten-free Cereal and the gluten adds up fast. I found... -
This hit home for me. Two of my first cousins died of Lymphoma in the same year. One was the son of my paternal aunt and the other was the son of my paternal uncle. Each of them was 50 years old at death. I was 54 when they died and had just been diagnosed with celiac disease few months before...
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There's hope for you yet!
DebJ14 replied to paisleydaisy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Then get yourself tested for food sensitivities and food allergies. Many, many people who have issues with gluten cannot consume dairy products or yeast. I got tested and am highly allergic to yeast and milk and have pretty much immediate reactions to them. However, there are also 23 other foods... -
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I dealt with it early on by not allowing gluten into my home. Period, Full Stop. I find the lack of respect they are showing just awful. My father in law came to live with us and found himself in a gluten-free/CF home. Tough. In fact within weeks his health was restored and his asthma and psoraisis...
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There's hope for you yet!
DebJ14 replied to paisleydaisy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sorry Chris, but you are in denial. Thinking that the gluten is not impacting your health is just wishful thinking. You appear to be a young guy in your picture. Take it from an old lady who was misdiagnosed until the age of 54, damage is being done to parts of your body you never dreamed of.... -
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My gluten ataxia showed some improvement after the first year on a gluten-free diet, but it is still there 13 years later. I call it my tilt. I definitely tend to fall over to one side when walking. As a result, I always need someone walk on the curb side while out walking so that I do not tilt...
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Geting tested/diagnosed during covid
DebJ14 replied to Lemons111's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Better check to see if insurance will pay for another endoscopy so soon after the first one. Also, why are you so hell bent on getting a diagnosis that you are willing to go through another gluten challenge? I would not knowingly eat any gluten because the result would be hours on hours of projectile... -
I am glad that your son is doing better! You really do need to be a detective to figure out all the possibilities. I immediately felt better after going gluten-free, but started to notice problems with other foods. My doctor said it is common because our bodies spent so much time going after the...
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Geting tested/diagnosed during covid
DebJ14 replied to Lemons111's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sadly, your doctor is not up on the latest information. Gluten is known to cause joint pain and constipation is common. We get joint pain because the gluten destroys the tight junctions in our intestines and causes leaky gut. The undigested gluten proteins (and others) migrate throughout our body... -
ravenwoodglass reacted to a post in a topic:
When Gluten Leaves the Small Intestine and Enters the Colon
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You are assuming gluten is the sole cause of the issues. I am living proof that there can be many factors. After being Gluten Free for 11 months and feeling much better, I quickly found myself back at square one with the same issues (consipation, joint pain, rash, fatigue etc.). My doctor immediately...
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Sick and losing the will to live
DebJ14 replied to David Dawson's topic in Coping with Celiac Disease
I was originally diagnosed in 2007. I did well at first, but by the end of that year I seemed to react to everything, but at least my migraines and rashes were gone, and I lost 50 pounds so I considered it a victory. I had extensive allergy and food sensitivity testing and 23 items made the... -
When I first went gluten-free I turned to Redbridge Beer and commercially prepared gluten-free breads. Horrible reactions. It was not the sorghum, nor any other gluten-free grain. Further testing showed that I am highly allergic to both Brewers and Bakers yeast.
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Worsening symptoms post diagnosis
DebJ14 replied to mBird99's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Your intolerance to lactose may actually be an intolerance or allergy to the protein casein that is found in dairy products. My doctor told me that the protein casein is very similar to the gluten proteins. Try cutting out ALL dairy and see if it helps. I also have to agree that it takes... -
Recurrent Aphthous Stomatitis Points to Anemia and Celiac Disease
DebJ14 commented on Scott Adams's article in Skin Problems and Celiac Disease
I had these ulcers in my mouth all the time from early childhood until I was diagnosed at the age of 54. My dentist was shocked when I went for a check up and did not have any in my mouth. I explained about the gluten connection. Sadly, this University of Texas trained dentist had no knowledge...
