GINAGF

52 minutes ago, trents said:

Great information. Thanks! 

Can you share more information about what the pharmacist showed you about how to look up your meds and ingredients and gluten?

Edit: I specifically looked up the the question of whether or not Equate Acid Reducer Complete is gluten-free. According to the website ad side bar pictures it is gluten-free but it does not say that on the label itself that is on the bottle: 

I'm using the 20mg tablets. See picture below.

She said do no take anything with a starch listed until it can be confirmed it came from potato or corn. If you can't confirm it don't take it.

Meds should have an ndc code on it. She said to go to www.dailymed.nlm.nih.gov and type in that code to verify the source of the starch or to see a listing of the ingredients and where they are derived from.

17 hours ago, trents said:

 

This state of affairs is so frustrating! There are people like myself who are trying to get off PPIs and want to use H2 blockers as a bridge or PRN for heartburn but find that we may actually be doing more harm to ourselves because of possible/probable gluten in the H2 products. 

My amazing pharmacist sat down with me yesterday and showed me how to look up my meds and ingredients to look for. Not only was the acid reducer not gluten free but neither was the Tylenol in my cabinet. However I take Tylenol infrequently. Turns out store brands like Walmart, target, and CVS are more often gluten free. I picked up a bottle of pepcid of the walmart equate brand yesterday. It said gluten free right on the box. 

I don't take a lot of medication except vitamins which I know are gluten free, so I feel disappointed in myself that I wasn't more diligent with the over the counter meds. This is not my first year as a Celiac and I should have known better. 

9 minutes ago, RMJ said:

Just an idea: Is the positive vs negative cutoff for your recent test the same as the previous ones? Each manufacturer sets their own numerical ranges. 

I think it is a good idea that you’re having another endoscopy. Hope it solves the mystery.

Yes it is the same number cutoffs. 1-3 negative 4-10 weak positive 11+ positive

I was diagnosed celiac over 5 years ago. I was using the Johnson & Johnson brand or melaleuca brand of pepcid. I spoke to melaleuca and they told me the product is not gluten free. And the Johnson & Johnson website says they don't test for gluten nor can guarantee it's not in there. So my assumption is the gluten is coming from there, causing the positive blood test result 

I haven't had a scope since 2017. I have one scheduled for next week now.

I started taking pepcid ac since June at recommendation from my doctor. I'm wondering if that's the culprit. I've lost 10 pounds since June. After maintaining the same weight for a few years.

After 5 years of eating gluten free and always have a negative result on my annual Ttg IGA blood test, always 1. I had my first positive result today. It was a 12. Does this mean I'm getting gluten in my diet and not realizing it? Can it mean anything else? 

In the past my reaction to gluten has been horrible and noticeable, so I'm shocked this is my test result.

Anyone with a similar experience?