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I'm so sorry to hear about your struggle. Constipation and stress are a frustrating combination. I went through some struggles with the constipation diarrhea cycle and I believe laxatives execerbated the situation. I am sure you are eating a clean diet, but perhaps you could focus on keeping it as near to natural as possible and avoid processed foods...

Thanks so much for all your responses. Many of my restaurant experiences have been extremely positive. I posted this after visiting a restaurant that charged me $4 extra for gluten-free bread and another $5 just to make my salad gluten free. I had just picked up some things from a gluten free speciality store before dinner and I think it all just added up...

I'm so sorry for your difficult experience first off all. Unfortunately, hair can only be used for DNA which is not conclusive. Did they use a butterfly needle? I have bad veins and it helps to insist on a phlebotomist and they try my hands as well. Nurses can get blood from babies so they shoukd be able to help you. Good Luck!

try some gopicnic gluten free packs. You can get them at a decent price from amazon. They are non-perishable snack packs at around 400 calories. I always take them with me when I travel. Peanut butter and rice cakes are also great.

You are the best roomie ever!! My boyfriend and I keep our apartment gluten free. He does not have celiacs, but he is really supportive. When I met with the dietician after my diagnosis one year ago she encouraged him to keep eating gluten outside of our place. She felt it may be possible to develop a gluten sensitivity. My boyfriend eats pizza once...

Neville Bamji at New York Gastroenterology Associates Open Original Shared Link He is my doctor and I have a great experience with him. He is supportive and knowledgeable. I've heard stories about people being diagnosed and left on their own. Dr. Bamji sets you up for success and follows up. He is also easy to get reach by phone and email.

My parents and sister were tested and no one has it. I really thought my Mom had it. She has so many health problems that I almost wanted her to have it so she could start to feel better. No dice though. Blood tests were normal and so was her endo. I have a cousin with fibromyalgia who I've urged sooo many times to be tested. Some people are just too overwhelmed...

I have an iPhone and I frequently use the following apps 1) is that Gluten Free? and 2) Find me Gluten Free. The first one is a repository of product information. I use it constantly when I'm shopping to ascertain whether or not specific brands are safe. It is really helpful and has the info about specific flavors as well. I use Find me gluten free when...

I'm trying to eat out less, but when I do go out to eat I go to places that cater to gluten free people. Many restaurants now are charging extra for gluten free. These charges fall into 3 categories 1) charging for gluten free bread or pasta...some sort of special item 2) the cost of preparing the gluten free food separately and finally 3) the price of a...

Thanks so much for the helpful words, suggestions and encouragement. I have a really great GI and when he got the results he called right away. I'm going to meet with him next week, but his advice was sort of the same as above. He felt that my numbers were okay and that we will go over in detail where I may be picking up the low level exposure. When I...

I was diagnosed last year with celiac disease. These are my results from one year ago: Test Results: IgG DGP IgG 143.0 EU/ml IgA DGP IgA 65 IgA ELISA TTG IgA >128.0 U/ml EMA IgA positve total IgA 83 mg/dl I just got results from Monday: EMA IgA positive tTG IgA 9 which is a weak positive IgA serum 72 I feel like I've done so much...

Are you too far to come into NYC?

I have been to a few different support group, round table and meetup events. I think it depends on the situation and goal of the program. If it's a gluten-free dinner then the goal is to eat some gluten-free safe food and feel normal. If it's a round table discussion you are looking for professional advice and the support group is there for support (not...

You should probably just wait it out for the blood test. There are many symptoms that seem like Celiac, but are not in fact Celiac. Once you have the test results you may discover that you do have elevated antibodies and celiac disease can be confirmed by a biopsy. If you do not have celiac disease, it is possible that you have a gluten allergy or...

I am so sorry to hear that you are going through this. I know you probably hear this all the time, but many people on here know what it's like to struggle with illness and questions. I would go to your GI specialist and discuss what possible deficiencies could be the root of your problem. Blood tests could bring you closer to an answer and something...