Jump to content
  • Sign Up


Advanced Members
  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About alyssasgabby

  • Rank
    Top Contributor

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Gender
  • Location
  1. Happy birthday and may God bless you today!

  2. Can you please let me know which brand of Corn Flakes? I think I read that Kelloggs contains Malt Flavoring. Thanks! I love cereal and have really been missing it!
  3. Ah, boy, have I been there! At work, at Weddings, Church, you name it, I can sympathize! I FEEL your pain and anxiety. Some suggestions: Yes--I carry Kleenex in my purse with a tube of hand sanitizing gel. Um-how to put this....OK, is one of your fears the "noise" that often occompanies gutening and the big D? Very embarrassing! I've been known to flush quite a bit as I am in a public restroom. My husband even jokes with me and calls them my "courtesy flushes" Though sometimes I just have to say "excuse me". I also carry a small bottle of body spray to help "mask" any odors, not the best solution, but people genuinely seem to know I'm trying my best. To help keep things on the lighter side, here's a true story: After a particularly difficult time, I was in a restroom at work, with two other ladies. One in the stall next to me, and one at the sink "preening". Though I tried my hardest with the "courtesy flushes", I left what my doctor call "Malodorous" FUMES! The woman in the stall next to me said "That smells good!". I was stunned, and remained quiet while the woman at the sink snickered. Then all of a sudden the woman at the sink laughed and said "OH, my PERFUME!" (she had just sprayed some) which was exactly what the woman in the stall was talking about! I exited the stall and washed my hands at the sink without a complex after that!
  4. I'm not in Va. Beach, but in Richmond. My doctor recommended Outback and Red Robin. Any of these in your area?
  5. I am interested to know what your doctor's reaction to the elevated Liver Enzymes was. Is there a reason for them to be elevated? Are you taking any meds for high cholestrol that might raise your Liver Enzymes? Unfortunately, the only way to test for Fatty Liver Disease is to have a Liver Biopsy done. It is not a fun procedure. Many doctors are not very educated in Fatty Liver Disease-I had a doctor say it was nothing to worry about, but on my own research found that it can lead to Liver Fibrosis and Fibrosis leads to Cirrhosis. Cirrhosis is not cureable and is fatal. Fatty Liver Disease is part of a condition called Metabolic Syndrome. You can ask your doctor if he/she is more familiar with that condition. Signs of Metabolic Syndrome include obesity, high blood pressure, high cholestrol, fat in the midline area of your body, Diabetes II. I would suggest you press your doctor a little more on the elevated enzymes to see if there is a reason and what you can do to bring them back to normal levels. Hopefully this is just a temporary symptom for you!
  6. I would first suggest keeping your pantry stocked as much as you can. That way, food options are right there. (I am the only Celiac in my household, so the temptations are right there in front of me and I have to be really careful.) When I find myself getting in a rut, I go back to the basics, such as rice and fresh fruits and veggies. I keep safe chocolate as a treat when I am feeling frustrated. Also, even a nice relaxing bath with candles is a way that I refresh myself. At one point when I was feeling frustrated and very upset, a great friend simply said to me: "OK, so what are you doing to make yourself feel better? You've done a good job! You can do this!" and that made me kick myself in the butt and get back to LIVING! I was so sick with celiac disease for so many years, had so many misdiagnosed illnesses, that it is easy for me to fall into depression so I have to stay up all of the time! I hope some of these suggestions will help you! Let us know how you are doing!
  7. I will put a folded up sticky note on my keys (car, house, etc.) that I know I have to grab in the morning. When I grab my keys, anything I need to remember to take with me, is right there written on the sticky note. Nuts sound great. Also, do you have access to a refrigerator and microwave at work? If so, you can take a potato with you and keep it in the refrigerator and pop it in the microwave. I like to put mine in a zip lock bag, not closed all of the way, pop it in the microwave and the bag helps keep the heat next to the potato and it cooks faster in the microwave.
  8. I wanted to let everyone know that Dr. Ray Keate with the Richmond Gastroenterology Group is the MD who dx'd my Celiac Disease. He has been WONDERFUL! Very thorough, patient while listening to me rant, picked up on things that other doctors missed or dismissed, and he has been especially encouraging to me. He is very well educated and versed on celiac disease, and even told me which Restaurants that he knew of in my area that were "safe" for me to eat out at. He recommended a grocery store for Gluten Free products, and I recently told him of another that I found so he call tell his other Celiac patients. If anyone has any specific questions about Dr. Keate, please feel free to let me know. He has shared his very impressive Resume with me, to help answer any questions regarding his professional training and career, so I'd be happy to share that with anyone. An all around great guy, please know that I highly recommend him, and he has been a lifesaver to me! Thanks, and let me know if you need any questions!
  9. Hi there! I did see my MD today and he did tell me that he definitely believes there is a connection with NASH and celiac disease, in that both conditions create Metabolic changes in the body that can be damaging. Paula, I think you and your mom are on the right track and I would highly recommend further research I am very lucky to live in a state that has a teaching hospital in it, and in that teaching hospital are a group of doctors who are doing clinical trials on NASH patients. There are only 17 states in the US participating in the trials. In my case, I was trying to determine the cause of lower right abdominal pain that I have had for 27 years! In one of my many Ultrasound results, Fatty Liver Disease was caught. In researching the FLD, I found a doctor who took me on to do a Liver Biopsy and eventually dx'd the NASH, however I believe the cause of my abdominal pain was celiac disease as I haven't had any since going Gluten Free. I wonder how much the Gluten could have damaged my liver!? According to my doctor he does not believe that it did, but I believe it has, so we are kind of at an impasse. FYI, since I was only Level 1 NASH, I didn't qualify for the Clinical Trials, but since my dx of celiac disease, I feel so much better, and my last Liver Enzyme check (I highly recommend that your mom have her Enzymes checked every 6 months if possible!) was right on target! No changes in my Liver Function and I feel great. My MD is a little confused that my bloodwork (not Enterolab) came back negative for celiac disease, but since I am biopsy positive, and responding so well to the Gluten Free Diet I am "tagged" as "Possible Celiac" at my doctor's office. I will continue with the gluten-free diet. I don't know if any of this helps your situation, but please let me know if there are any specific questions that I can answer. I wish you and your mom the best!
  10. I was just thinking of posting on this topic, and I came across your post so I thought I'd try to "bump" this back to the top to see if anyone knows anything. Last June I had a Liver Biopsy done and was diagnosed with Fatty Liver Disease--more specifically "Non Alcoholic Steatohepatitis" or NASH. Then in February I was dx'd with Celiac Disease. There is very little known about NASH, basically what they told me was that even though I don't drink except for a very RARE social drink (less than 10 per year), I have Liver Disease the same as someone who drinks and has Liver damage. My Biopsy shows me at "Level 1", meaning I just have to have my Liver Enzymes checked every 6 months or so to make sure that they are not climbing. There is no guarantee that not drinking will stop the disease from progressing. The Medical Association does not know what causes NASH, or what makes it worse. They have suggested High Triglycerides which can also be a problem for Celiacs. I will try to remember to ask my MD about any possible links between Fatty Liver Disease and celiac disease at my appointment on Wednesday. Hopefully I'll be able to help answer some of your questions. Meanwhile...anyone have any comments??
  11. You are all so AWESOME and Inspiring! I have slowly added some of the foods to my diet, including Veggies and Fruit, some Fritos for snacks, Snickers Bars for my chocolate cravings and even Hormel Black Label Bacon (on my Grocery Store's checklist of "Safe" foods). I am feeling pretty good, though I just passed a Kidney Stone (OUCH!!). D has almost completely stopped, but I still have Back pain. I saw some other posts on that, and will discuss with my MD on Wednesday. I want to thank all of you for all of your help! I printed out noglugirl's list and am keeping it with me at all times. Thanks Again!!
  12. Hi everyone! Just a quick question. I have noted that Celiac's should avoid Soy Sauce. In my attempt to be completely gluten free, I am having trouble determining which products to avoid. Do I need to stay away from anything containing soy? Basically, right now I am not eating anything containing Wheat, but are there other ingredients I should be looking for on labels. I am surviving on Rice and Black Beans but trying to add eggs and some meats back in. I really appreciate the info posted on Dairy in other posts, I didn't realize I needed to stop my dairy intake initially and will begin to do so tomorrow!! What can I use in my morning coffee? I usually use half & half and obviously can't do that now! Thanks for your help!
  13. I think I may know what you are describing-my doctor has told me I have Barrett's Esophagus, and you might want to have hubby ask his MD about it. I was told it's a "Reflux Change", and probably caused by celiac disease. Please, let us know how hubby does!
  14. Hello from another Newbie! You and I were diagnosed on the same day! One of the most interesting bits of info from my doctor was that Gluten can affect your body for up to two weeks! My doctor told me that even though I had been trying to be Gluten Free 2 days prior to my appointment with Biopsy results, not to be discouraged if I was still symptomatic (I was/am). After 6 Gluten Free days I am feeling very energized and encouraged! Good Luck to you and let us know how you are doing!
  15. Hi there! I'm a Newbie, but wanted to let you know how much I can relate to you! Just before my Celiac diagnosis, I was also dx'd with a Cyst on my right kidney and a stone on my left. Combined with the Celiac symptoms I was miserable. Are you sure that your back pain is not from another cause? Don't want to alarm you, but make sure you let your MD know your symptoms. Hope you feel better soon!
  • Create New...