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About Remi

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  1. Joie, Thanks for sharing your experience. It sounds like you have alot on your plate! I can understand your concern re. the cirrhosis - since you need your liver to live it is scary when it is unhealthy! Most people say they have a totally normal life with autoimmune hepatitis when it is treated. When I was diagnosed with celiac disease I was relieved, since it meant all my symptoms were not in my head. It hasn't been difficult for me to deal with being gluten-free and it's not a big deal for me that I have celiac disease. However, for some reason, I'm very upset that I may be dealing with AIH. I know this is vain, but I'm concerned about the physical effects that are caused by taking prednisone for most of your life (weight gain, muscle loss, hair loss, moon face). The thought of having to take meds for life is also not pleasant. I'm also feeling sad for my children (7,5 and 2) that will most likely have to deal with more than one autoimmune disorder in their life. =( I do realize that I am very fortunate that I could have greater problems in my life - but it can be scary and difficult at times when you are unsure of what to expect. Thanks again and best wishes for you! Rachel
  2. Thanks for your response. Do you happen to know what kind of thyroid problems your sister has? I would be curious to know what her ASMA test level was and if she also had elevated liver levels and thyroid antibodies. If you could find out any information that would be great and very appreciated! They say that autoimmune hep. isn't uncommon, yet I don't know anyone who has it. I'm so concerned about this, since I don't want to be on pred. forever - I don't know how to cope with the weight gain and other adverse side effects =( Thanks again for any help you can provide Rachel
  3. Hi, I've been diagnosed with celiac disease since 2003. I have 1 daughter with celiac disease, one with inconclusive (but most likely) celiac disease and vitiligo and one son who has been gluten-free since birth. I have various autoimmune disorders on both sides of the family. The last 6 months I've been training for a triathlon and have noticed many hypothyroid symptoms (fatigue, weight gain, low temp, low bp, difficulty concentrating, lack of motivation, low sex drive, retaining fluid, etc.). After much blood work I've had a postive ANA and a postive ASMA (which can mean autoimmune hepatitis). My thyroid bloodwork looks okay and my thyroid antibodies came back within the "normal" range. Sadly, I've been hoping it has been my thyroid, since I really don't want to have autoimmune hepatitis. Does anyone have experience with a positive ASMA? Can it be positive with celiac disease? Does anyone have autoimmune hepatitis, as I've heard that some people with celiac disease also have this disorder? My liver enzymes were normal, which is confusing. Has anyone had a positive ASMA and thyroid problems? Any advice or help is greatly appreciated! I'm very concerned about this aih thing, as I don't want to have it, nor do I want to be on prednisone for the rest of my life! Thanks in advance!
  4. Thanks for the info. I have posted on stopthethyroidmadness forum to see if I am even looking in the right direction. My gp has not tested T3 and T4 (is that right?) since I don't think she was initially looking for a thyroid problem, but had ordered the workup since she thought I had fibroids. If she can acknowledge that something is "off" I'm sure this bloodwork is only the tip of the iceberg. It's such a bummer since I'm training for a triathlon and am having so much fatigue and difficulty recovering. I just wish they could figure it out and treat problems quickly so you could get on with life. Of course, look how long it took most of us to get diagnosed with celiac disease - auugghh! Thanks again!
  5. Hi, I've been gluten-free for 4 years, since diagnosis thru bloodwork and biopsy. The past 6 months I have not been feeling well - experiencing many hypothyroid symptoms (fatigue, weight gain, cold, fluid retention, low blood pressure, low body temp, low sex drive, etc...). I recently was in to see my dr. for menstrual problems and she ordered a battery of tests. My white blood cell count and prolactin were both low (though not extreme) and my TSH was low-normal, which would rule out hypothyroidism. I'm wondering if anyone can shed some light on this... I've been reading a little bit about hypopituitarism and adrenal problems and wondering if someone has any experience to share. I do not want to read too much and imagine I might have something that I do not, however, I know something is not right. It appears to me that I need more bloodwork done, but I'm betting the dr. will say everything is fine because my tests are not too far out of the norm. Thanks for any advice or experience! Rachel dd age 7 - celiac disease diagnosed at age 3 dd age 5 - pos. bloodwork/neg. biopsy but gluten-free since age 1 1/2 - vitiligo since birth ds age 2 1/2 - gluten-free since birth
  6. Thanks for the info. I am also worried about problems from the water - it seems like when I have a stomach virus or the like I have stomach problems for much longer than others without celiac disease - not sure if it takes longer for us to heal or what. I've read that there is a Costco there - wondering if it would be best to shop there when I arrive. Not sure if they carry everything that the States has - but there are enough gluten-free items there to last me for a week. Hopefully I can figure SOMETHING out - it won't be much fun to go out to dinner with others who do not have celiac disease and sit there while they eat =( Thanks again!
  8. Hi! I'm not sure where the one in Vegas is located, but yes, the fries are gluten-free. You can order a protein burger (patty wrapped in lettuce). I've heard that the special sauce is not gluten-free, although I've not confirmed this directly with In-n-Out, I don't order to be on the safe side (plus, I don't like it ). The only thing I do is take off a layer of lettuce before eating. I've seen them assemble it on the bed of lettuce, but the bed of lettuce is lying in the area where they just brushed off the crumbs from burgers before. The fries are the only item they fry and they are cut fresh in plain sight. Have a great time in Vegas! Rachel (diagnosed in 2003) dd (age 7 diagnosed at age 3) dd (age 5 inconclusive diagnosis at age 22 mos. - gluten-free since then) ds (age 2 1/2 gluten-free since birth)
  9. Hi, I tried posting this on the travel board, but received no responses. I thought I'd try this board, as well. I'm going to Mexico for the first time since being gluten-free. Does anyone have any advice for me? We will be staying in Cabo and am wondering if anyone can give restaurant recommendations? Thanks!
  10. Hi, I'm going to Cabo San Lucas in a couple of months. I haven't been to Cabo before, and haven't been to Mexico since being diagnosed 4 yrs. ago (well - one day excursion off of cruise ship doesn't count since I didn't eat there). Any suggestions of where to go and what to eat? What about buying food at a store - what about ingredient labeling? Any help would be great, even if you have general info. on eating gluten-free in Mexico. Thx!
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