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About todzwife

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  1. Do you avoid fast food completely? Today we went to Burger King and I had NO idea what to get for my daughter. Burger King? McDonalds? Arbys? Wendys?
  2. Thank you. She's only 2 and had some pretty severe allergies (including wheat, eggs, peanuts and soy) and although she was wheat free she didn't have complete relief from her symptoms. So I chose to do enterolab because of her age. She was 90% gluten free during about a 3 month time, but ended up eating some graham crackers and had a MASSIVE meltdown for a few days. I'm considering getting her tested for actual celiac but really the treatment is the same... I'm just worried about the fecal fat score. It's SO high.
  3. I didn't do the gene panel, but I am pretty sure I should have. Here is what we DID do... Fecal Antigliadin IgA 59 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 36 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score 1436 Units (Normal Range <300 Units) I was really surprised how high the fecal fat score was (and more than a little worried)... Should I take her for more testing? FWIW, in December her RAST test showed an IGG of 112 for wheat (normal being under 15).
  4. We will be going to Disneyland with the family. DD has not been diagnosed w/ celiac, but has a severe wheat allergy, so she's treated the same way. I'd love to hear some ideas for gluten-free foods that travel well. We'll probably bring a lot with us and do some grocery shopping when we get there for things like cheese and lunch meat. I'll be taking a cooler for her as well. Thanks!
  5. This is VERY interesting to me because DD has the SAME Thing. She was recently diagnosed as having a sever wheat allergy (via the RAST test) but I have not had her tested for celiac. I'm really wondering if I should. I see a LOT of food come through completely intact (including french fries as mentioned above) carrots, beans, and even wild rice. She is a very predictable pooper (usually twice a day, once in the AM and once before bed after her bath LOL!) and is not potty trained so I too get a birds eye view of her lovelies. After reading here for awhile, I am becoming more and more concerned that it is not just a wheat allergy but is actually celiac. She has SO many symptoms that have been noted here including dry patchy skin, undigested and unformed bowel movements, irritability, infant reflux, poor sleep habits...the list goes on. Is the enterolab (I know I'm spelling that wrong) gluten sensitivity test enough to "diagnose" her?
  6. wow that is some rash! Is is only on her trunk? Could it be from detergent? I have a friend who's child is allergic to detergents and would get rashes. Feel free t o ignore me
  7. Thanks! They ran 2 tests I guess. The IGE which everything came back negative and the IGG where the allergies showed up. To tell you the truth, I'm not completely sure what it meant, and the allergist told me to avoid wheat "but it won't kill her if she gets it now and then" as well as the others "as much as possible" Who the heck knows what that means. LOL! For now we are wheat FREE (not QUITE gluten free, but it's mostly oats she's getting). If I don't notice a marked improvement I will try gluten free completely. Eggs are a pain the butt though...it's in everything!
  8. Thanks I may save up for that enterolab test. It would ease my mind knowing if I need to avoid gluten entirely or not. DD wasn't hospitalized, my mother was when she was about 18 months old. DD hasn't ever been in the hospital except when she was born (6 weeks early) I'm actually finding that eggs are harder to avoid than wheat. BUT the allergist said that she'll be ok if she gets it occasionally because they all showed up on her delayed, not her immediate (meaning if she gets some eggs in say, Pamelas cookies it won't make her have an major reaction unless she eats a ton of them every day). Thank you for all the advice.
  9. So after talking to my G-ma, apparently the celiac diagnosis for my mother was nothing more than watching her symptom- severe diarrhea. She was in the hospital for 5 days on IV's and such. But there was not biopsy, no blood test. This was 50 years ago so who the heck knows. I'm all paranoid though. I want to know if this is true celiac or if we are lucky and only have to avoid wheat, eggs, peanuts and soy LOL!
  10. It was the RAST test...does that make a difference? And her immediate responses were all negative. It was her delayed response that was a class IV.
  11. I just found out that my own MOTHER was diagnosed with celiac as an infant but my grandmother said "she outgrew it". My mom stands barely 5 feet tall and 100 pounds and has been small her entire life. (Much like my own daughter). She has stomach problems that have been diagnosed as IBS, but I'm wondering if she really is celiac and didn't really outgrow it (is that even possible???) Anyway, MY DD is tiny, has had very few solid poos in her life, cranky as a hornet, sleeps terribly, vomits randomly, and was just recently diagnosed as having a class IV wheat allergy. But I wonder if it's more than that. She's going to be wheat free (not QUITE gluten free but close) as am I (I don't want to make her do it alone). So a test for celiac down the road would probably yeild a false negative??? Now I'm just rambling. What's the advantage to having a definate diagnosis of celiac if she will be nearly gluten free anyway? Is there any soft of benefit to having it "on paper' so to speak? Thank you for taking the time to answer. I've been reading a lot about gluten and it sounds like it's total crap to be eating anyway and I'm wondering if we'd all benefit from eliminating it regardless...
  12. I just wanted to introduce myself really quick. My name is Shandelle. I have a very very tiny 2 year old (well she'll be 2 on the 14th) who just hit 20 pounds and 30 inches a couple weeks ago. She's smart as a whip and has an attitude of a 16 year old and she's a blast. She has spent most of her 2 years sick with something or another. Mostly congestion, ear infections and the like. She got tubes in Oct. 11th and it has made a big difference, but she was still cranky most of the day and still congested so I pushed for a RAST test and low and behold she has a class IV wheat allergy, also a class III egg white allergy as well as a class I peanut and soy. I know that a wheat allergy isn't the same thing as celiac but there don't seem to be many forums for "wheat allergies" LOL! I hope you don't mind me poking my head in here! I have some gluten free things on order from amazon for her (including bread mixes, pizza crust, cookies etc.) If there is something I really should try with her please let me know. I'll probably go gluten free as well so she's not doing it all by herself. I actually thing I may be sensitive as well because it gives me heartburn. But that's not the point! Anyway, I'm excited to have found this site. I hope you all don't mind me joining!
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