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GhostLady

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Latest Celiac Disease News & Research:

Everything posted by GhostLady

  1. GhostLady
    Just thought I'd ask again if anyone has any advice for me about my blood tests. I should be getting the results back soon so I'm wondering how disappointed to be if/when they come back negative. Thanks, Mary
  2. GhostLady
    This is a list that I copied from another site although I don't remember where. It is the longest list I have seen so far. I think it was complied from several different sites in order to form a more complete list since most sites only seem to list a few symptoms. Hope this helps. List of symptoms associated with Celiac Disease (also known as Celiac...
  3. GhostLady
    Just thought I'd post an update: After the good luck I had last Wednesday finding a Dr. who would finally listen to me, things have been going down hill. First, his office called me on Friday to let me know that they couldn't get me into the GI's office any sooner so I am stuck waiting until the 30th. They can't schedule the biopsy until after I see...
  4. GhostLady
    happygirl, Mango04, and jerseyangel, Yes, I did finally learn about the "new posts" feature but it took me a few weeks. I just wonder how many others have not found it yet. I think this tread is where I learned about it so maybe others will read this and learn about it too. Scott, I would be happy to help out in any way that I can. This web...
  5. GhostLady
    ravenwoodglass, Do you know of a web site I can visit to learn more about the UBO's? Just thought it might be good to know a little more about it before my MRI on Monday just in case they do find them. Thanks, Mary
  6. GhostLady
    ravenwoodglass, Thank you so much for the info about the MRI. I would have been terrified if they found something on the MRI but now that I know about the UBo's, I know not to panic right away. Don't worry, I will definitely be doing the gluten-free diet no matter what the tests say. I KNOW what is wrong with me. I am hoping to make it "official" but if...
  7. GhostLady
    Finally a Dr. who listened to me and actually seemed to take me seriously. Maybe now I can finally get these tests over with and start feeling better. Phyllis, Thank you for the link. I did take the blood test list with me but I didn't even get to show it to him. He actually seemed to know a lot about celiac. He said he would rather just go ahead...
  8. GhostLady
    Thank you both for your replies. I really appreciate all of your help. First I want to share my good news. I found a Dr. that will see me TODAY!!! I am sooo happy. He is just a family practice Dr but better than nothing. I have seen him before several years ago and he did seem to listen to me then. I just don't think he knew much if anything about celiac...
  9. GhostLady
    I'm sorry but I am a bit frustrated by this. Like a lot of others who visit this forum, I am completely alone with this disease. I have no family or friends that I can talk to and this forum is all I have right now. It is so frustrating when I post a question and have to sit and wait (hitting refresh over and over) waiting for my post to appear so I might...
  10. GhostLady
    I am still eating gluten while I am waiting on my next Dr. Apt. on April 30th and I am getting sicker and sicker. Yesterday I couldn't even get out of bed. I just can't take it anymore. I just don't want to be sick one more day. At my first apt. I saw a Dr who didn't know much about celiac. She ordered a blood test and told me it was negative but when...
  11. GhostLady
    Hi Birdie, First I want to say that I am very new here and very new to celiac so please don't go on my advice alone because I could be incorrect. Hopefully someone with a lot more experience will let you know if I'm right or wrong. I noticed that you said augratin potatoes from a box causes you bloating. I just read a post on here the other day that...
  12. GhostLady
    I'm sure you didn't mean anything by this and that you were just joking in some way but how can you say that her situation is "comical"? I don't find anything comical about any of it. Her mother is obviously mentally and/or physically ill and that is in no way "comical". Mental illness is horrible for the person who has it and is just as bad if not worse...
  13. GhostLady
    Bravie, I am sorry to hear about what you are going through. I hope you are able to move out soon. I agree with those who suggested moving out right away but I know that is much easier said than done. I too have experience dealing with a mother who doesn't take me seriously about issues including my health. If you ever need someone to talk or vent to, feel...
  14. GhostLady
    Thank you both for your replies. HAK1031, You are probably right. I had already planned to give up dairy for a while until I heal and then try to reintroduce it later. I am starting the gluten-free, df, diet next Saturday as soon as my testing is complete. David, Thank you for the info. That makes sense. The weird thing is that I seem to do better...
  15. GhostLady
    krisloner, Thank you for your reply. I am definitely going to do the gluten-free diet regardless of what my tests results say. The more I learn, the more convinced I am that gluten is the problem. I am going to start the diet next Saturday no matter what. The only reason I am waiting is because I would really like to get an actual diagnosis but if that...
  16. GhostLady
    gfpaperdoll, Thank you for your reply. I'm still just trying to figure the whole thing out. I know gluten is my biggest problem. I get pain and diarrhea (sometimes other symptoms too) every time I eat gluten. I am just not sure if I might have a dairy issue as well. Sometimes I will have nausea with gluten too but it happens every time I have any milk...
  17. GhostLady
    I also posted these questions under my thread "Desperately seeking opinions and advice" in the pre diagnosis section but I thought I would also post it here for those that don't want to read my long and boring post over there. I have not yet been diagnosed with celiac. I am still going through testing, therefore I am still eating gluten. For the last...
  18. GhostLady
    Just a little update: I have an appointment with the NP on Tuesday. I am going to refuse to leave the office without the complete celiac panel. I'm hoping he will also schedule the biopsy right away. Either way, I have decided to start the gluten free diet next Saturday, April 5th. I am going to stay on gluten until then so I can try to get all the testing...
  19. GhostLady
    Fedora: Don't worry. They WILL run the full panel next time. I will make sure of it. If not, my hubby will. I think he's more upset with them than I am. LOL I will keep everyone informed. Just having all of your support is helping already. Itchygirl: No, I haven't been checked for either of those as far as I know. I have read some info about lupus and...
  20. GhostLady
    Hello Everyone, Thank you so much for your replies and your concern!!! I think I may have found the problem with my blood work. I picked up the results yesterday and they only did one test for Celiac instead of the whole panel. There were 4 pages total but only one for Celiac. Here are the results: Page 1: CBC--All within normal range Page...
  21. GhostLady
    Hello everyone, I have been reading this forum for about 3 weeks but this is my first post. I want to apologize in advance for the length of this post but I have been suffering for a long time and I want to make sure I include as much info as possible so maybe someone can help me. Here's my story: I am now 35 yrs. old. I started having GI symptoms...
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