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beansmom

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Everything posted by beansmom

  1. Hi. Found your theory interesting. Actually, I have thought something quite opposite. I just started a gluten challenge and a week into it have noticed that my thyroid hurts to touch. I have autoimmune thyroiditis and have been on thyroid replacement for some time. I was thinking that the antibodies to the gluten may cross react with the thyroid antibodies...
  2. Thanks for the reply. Yeah, I think I'll be fine if I need to be "celiac careful", but not necessarily happy (who is?). I'm just afraid I will get a false negative. Then I still won't know. I don't think this will be a definitive diagnosis unless it comes back positive. If it's negative, it may just be that I didn't have enough of a gluten challenge...
  3. Thanks for the response. Fortunately, or unfortunately, I haven't had any blisters in my mouth for over a year. I don't think they just pop up with wheat ingestion but I guess we'll find out. I forgot to mention that I also have autoimmune hypothyroidism. Does this all go together?
  4. Hi all, I could use some help making sense of what has been going on with and what has been recommended. About a year and a half ago I was having a very wierd symptom that no one seemed to know or care about. I had blisters on the inside of my mouth. I did my own extensive research and could only come up with that it was possibly an oral form of dermatitis...
  5. Thanks for all the replies and support. I still would like to have a formal diagnosis. I don't have GI symptoms for the most part. I went to an oral surgeon a while back. Of course I had no blisters in my mouth at the time... So should I still try to see a dermatologist? What if I don't have any itchy bumps when I go??? I really appreciate everyones...
  6. I am not gluten free. I don't want to be if I don't have to be. As you all know it would be extremely difficult as I am a mom of 4 and have a busy life - where would I be without fast food??
  7. Hi. I have had some random symptoms that led me to be tested for celiac. The blood test was positive for IgA anti-gliadin antibodies but negative for the transglutaminase antibodies. Iwas told that it is common to have the anti-gliadin antibodies and b/c the other test was negative, I did not have celiac and did not need to pursue further testing. My...
  8. Thanks for all the replies. How can the biopsy be positive if the blood tests are negative? I'll have to think about that one... As for the other possibilities, yes, they are possible. I don't think the blisters are infectious (coxackie or herpes). Coxackie goes away and herpes looks like clusters of small blisters. I have had some blisters up to 0...
  9. Well I guess I don't have to worry anyway... I just spoke with the doc that ran the tests. He spoke to a GI doc who said she only runs a total IgA and the tTG IgA. If those are normal she doesn't pursue anything more. Those tests were normal for me. No one can explain why the antigliadin is abnormal only that it should not have been done. So I'm left...
  10. Thanks for the replies. I'm still at a loss for what to do. Should I schedule an appt with a GI doc? I don't really feel like I have a lot of GI symptoms. I have tried eating what I think causes the occasional D but sometimes it happens but sometimes it doesnt'. I also had a normal blood count and various vitamin and mineral levels come back normal....
  11. If anyone can shed some light here... I don't think I have typical celiac symptoms. I have occasional GI symptoms but I was tested because I was researching why I have a very painful and annoying problem. I get blisters in my mouth - inside my cheeks, on my palate, even on my tongue. They pop within 12-24 hours and leave a sore that heals in a few days...
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