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Woody6

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Everything posted by Woody6

  1. Woody6
    I feel your pain....many hugs your way. Do what is best for you and your child. Wait for the biospy, don't wait, go gluten light and wait for the biopsy....no matter what you decide it will be the right decision for you and your child. Many gave great information as to why they did what they did.
  2. Woody6
    I my heart of hearts I truly believe Mom's generally know what is best for their babies. Keep up the good work Momma! You want a healthy child. There is nothing wrong with that. Hugs to you and your family.
  3. Woody6
    Many hugs your way! I have a Type I & Celiac child (now age 8). It was his Type I that alerted us to Celiac because his Endocrinologist routinely checks for Celiac in all the diabetic patients she has. Before then we never knew Celiac even existed. His older brother was then tested and he too is a Celiac (he will be 11 in June). It finally came to light...
  4. Woody6
    You have centainly come to the right place. There are so many knowledgable people on this board and it already looks like some great advice has come your way. The only question I have is did your doctor do specific blood tests for celiac and if so what were the results of those specific tests as compared to the other company? Request that information from...
  5. Woody6
    Thank you for that suggestion and I do plan on it but at the same token the information I've provided is equally correct and should be shared with the community. I have read many of the sites provided even in this specific thread and yes all doctors have the biospy as the golden standard. The problem is lack of lesions does not mean a person does not have...
  6. Woody6
    Wonderful news you could have the biopsy today. Awesome! If it is negative going gluten free is great especially with the positive celiac panel. If the biospy is negative it just means your sweetie hasn't gotten sick enough to get to the lesions part and if you go gluten free and the symptoms she has been having disappear and she starts thriving...wonderful...
  7. Woody6
    it saddens me that you continually refuse to accept there are three levels of celiac two of which produce no lesions....but it is still celiac. absolutely amazing and yes very sad.
  8. Woody6
    it states if the celiac panel is positive you have one of the three celiacs...how is that hard to understand or compute? That concludes that a positive panel is not a false result but rather one of the three celiac stages....a no brainer to me and it is not off topic....it answers some questions the parent had or at least gives the parent the most up to date...
  9. Woody6
    we are discussing the bloodwork...celiac panel specifically. if it is negative then the doctor needs to look elsewhere but if the panel is positve then the person has one of the three characteristics or stages of celiac....that I listed. Only the symptomatic stage or acute stage (I personally call it acute) in which there will be actual lesions on the intestines...
  10. Woody6
    It is very sad that you continually refuse to believe the cited source I did give you. The most recent source. If the panel is positive you have one of the three characteristics of celiac....shame shame shame and shame on you for refusing to listen. It saddens me greatly. There is only ONE of the celiacs that produce the lesions you demand. That is the ACUTE...
  11. Woody6
    Open Original Shared Link the link above tells you of the three types of celiac. Only ONE TYPE will provide the lesions within the biospy that is required for the general golden standard of diagnosis. Doctors are considering less evasive methods to diagnosis by considering possibly forgoing the biospy especially since that is the last stage or the acute...
  12. Woody6
    As I've said REPEATED...I was at a LIVE LECTURE when that statement was made....out on the diabetes forums nurses at the same lectures quote the SAME THING...but if you want to refuse to believe it that is your choice. I cannot make you believe it. waiting for a positive biopsy is senseless and darn right CRUEL....if there are THREE TYPES OF CELIACS in...
  13. Woody6
    So what you just did was circumvent the whole thing....a negative biospy does not mean a person does not have celiac disease. Maybe you should reread the information from the live lecture and from the link.... you are saying the bisopsy is the ONLY diagnosis of celiac....that is untrue and dangerous to keep touting as fact. Dangerous to anyone with a positive...
  14. Woody6
    The medical community is always updating its findings. I'm just sharing the most recent findings. Biopsy is still the golden standard of diagnosis....but did you even know there were three types of Celiacs? Probably not....because the only type of celiac that will produce the required lesions on the intestines is the sympotomaic celiac. The other celiacs...
  15. Woody6
    Open Original Shared Link the link above tells you of the three types of celiac. Only ONE TYPE will provide the lesions within the biospy that is required for the golden standard of diagnosis. I was at the teaching hospital during the actual lecture and they specifically stated there is no such thing as a FALSE POSITVE in a celiac panel HOWEVER there...
  16. Woody6
    CHILDREN'S HOSPITAL OF PHILADELPHIA BOSTON CHILDREN'S HOSPITAL... OF THE TOP OF MY HEAD.... would be the cited sources. It is true...there is absolutely NO false postive in a celiac panel. Read the notes from the lecture.
  17. Woody6
    It is also important to know that newly diagnosised Celiac's may also need to go lactose (diary) free for a period of two to six months along with going gluten free. After that period of time it is safe to slowly reintroduce lactose into the diet and generally can be done without incident but we can never reintroduce gluten into the diet. Just wanted...
  18. Woody6
    Certainly are not a bad mom not wanting to do the biospy. I would suggest doing the Celiac Panel (blood work)...if that comes out positive then your child has celiac. There is no such thing as a false positive celiac panel (blood work) however there are many false negative biospies. That said: this is what is the most recent being taught in top teaching...
  19. Woody6
    generally speaking we are not to go gluten free until after the biospy but the medical community may be changing its tune and it certainly is not neglegent of anyone to refuse the biopsy and just go gluten free. You have already seen positive results and I'm sure you may be wondering why would you want your sweet child to continue to suffer by eating gluten...
  20. Woody6
    I just want to update the celiac community...the article as to why a biospy is needed is not correct... there is no such thing as a false positive celiac panel in bloodwork. Just recently a GI specialist presented a session on Celiac disease. They have reclassified celiac disease into 3 categories. Symptomatic Celiac Disease where they have positive...
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