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inskababy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by inskababy

  1. inskababy
    Interesting that you came to that conclusion from what I wrote. I have NOT made up my mind. When I *thought* they were glutened I had indeed decided against them. But now...I just want the real information, no holds barred. I thought I did have it and wanted to help others by giving them what I got. I can't continue to self flagellate about MSG of all...
  2. inskababy
    Just for the record, I do not take issue with anyone disagreeing with me or with a correction of my information. I DO take issue with the tone and the nastiness directed at me by PM. I will forward those to the administrator I suppose, but there's really no need. I'm a grown up, I addressed it and while I was going to leave immediately, I found my need...
  3. inskababy
    I was told glutaraldehyde was bad for celiacs, as it is used as a fixative that might be crosslinked with wheat proteins to increase solubility by Glaxo Smith Kline. Supposedly the proteins in it have been known to cause similar reactions in celiac patients at a higher incidence than in the general population. I have two books that said MSG did contain...
  4. inskababy
    I didn't realize this, but was checking vaccine ingredients to figure out which ones would be safe for my older son before starting school. I am still working my way through manufacturers, but thought I'd provide a short list of ones that I confirmed have gluten in them...in the form of MSG or glutaraldehyde (a chemical fixative). - Varivax (chickenpox...
  5. inskababy
    I have three people with celiac in the house...I'm the only non celiac person, so it made sense to take the whole house gluten free to cut CC and since I don't care about bread and things anyway, no worries on my behalf. I feed my family lots of lean protein, fresh veggies and fruit, what I call "real food" which is actually pretty pricey as it is. We...
  6. inskababy
    I cannot believe what a difference this had made for my oldest son! My youngest son had a celiac crisis and was diagnosed last month. I started to suspect that my oldest son might have gluten issues as well...after doing lots of reading, I realized he had very mild GI symptoms that could be linked to intolerance. He is almost always sick...lots of diarrhea...
  7. inskababy
    Want to hear mine? I was strongly pushing for my youngest (6 month old) to get tested for celiac disease after a hospitalization for intussesception (bowels turn inside out, common in celiac infants). The doctor disagreed and thought he had valvolus instead and wanted to do an upper GI. This would require him to drink a barium suspension. Barium suspended...
  8. inskababy
    Both of my little boys tested negative but the fact that my oldest was anemic, positive genetically and had a positive dietary response and my youngest had a celiac crisis when he ate one noodle, had positive genetics and a positive dietary response was enough for our physician to declare them both positive for celiac disease.
  9. inskababy
    My son was just under six months old when he experienced a celiac crisis from an exposure to a barley teething biscuit. He had an intussesception (the bowel telescopes on itself) as a result and was hospitalized with dehydration and acute abdominal distension. Luckily, the intussesception resolved just as they were about to go into surgery. We did...
  10. inskababy
    I would love that! Thanks so much!
  11. inskababy
    My son Timmy was just formally diagnosed with celiac disease by genetic testing and positive dietary response after a celiac crisis. We've had my three year old tested today via serological panel and we're *pretty* sure he has it too...he has had intermittent unexplained diarrhea since two, ataxia and is underweight for his height. He is the one who will...
  12. inskababy
    Holy crap...I know, terrible pun. We have a positive diagnosis on my almost eight month old son and we're doing a blood test for my older son today. This has been a problem for him for almost a year...greenish, sandy poos. It's gotten worse in the past couple weeks with explosive diarrhea. That combined with behavioral issues when he has gluten ...
  13. inskababy
    Darn. Okay, well we can hope against hope eh? I have a seven month old with probable celiac and I am waiting for the gene test to come back to prove to the doc why my 3 yr old should be tested too...darn insurance.
  14. inskababy
    ...is it really three weeks to get the genetic testing back? How soon did your tests come back?
  15. inskababy
    We chose not to do the endoscopy...but then we have a 7 mo old. We chose to believe the genetic test and dietary response. If he was older and had an uncertain dietary response that was less obvious, I would definitely consider it. If my older son's test comes back positive or questionable, we may indeed do an endoscopy.
  16. inskababy
    Oh and my son is unvaccinated...precisely for this reason! We choose to delay vaccinate our children until after age 2 because we can reduce the number of shots needed and the fact that I'm a stay at home mom who nurses until 2.5 reduces the incidence of disease risk to them so low that we feel the risk of vaccination complications is outweighed. Thanks...
  17. inskababy
    I'm truly not trying to be snotty in any of these replies, just following up to some things posed... 1) I know my son is at a "healthy" weight for a breastfed baby. I am a lactation consultant and have seen 50+ FTT babies. But my son is sick. And his weight is dropping. It is not healthy for him to gain no weight for five weeks. It's another symptom...
  18. inskababy
    Hi, my name is Erin and I have 3 year old and 6.5 mo old sons, Connor and Timmy. Timmy had a frightening ER visit 3 weeks ago when he had a bowel intussesception (it telescopes on itself, effectively turning inside out). He screamed without cessation for 18 hours, obviously in excruciating pain. We had CBCs, full body scans, multiple ultrasounds, IVs....
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