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ChristineSelhi

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Everything posted by ChristineSelhi

  1. ChristineSelhi

    ARCHIVED Dna Test Advice

    ChristineSelhi replied to ChristineSelhi's topic in Doctors

    I had already started the gluten free diet by the time I could have any antibody tests done. I am so sensitive that I break out from just crumbs on a stick of butter, and I get sick for days from small CC, so I wasn't willing to go back on. So, I guess I have to live with what I got. Either way, I don't eat gluten. Thanks for your reply!
  2. ChristineSelhi

    ARCHIVED Dna Test Advice

    ChristineSelhi posted a topic in Doctors

    Hi All, I got a DNA test back in 2004 that told me I was nonceliac. I just called to get the test results to really understand what the diagnosis was, because I have been gluten free ever since, and have had a number of nurses and doctors tell me that I still exhibit symptoms of the disease. I tested negative for DQ2 and DQ8. Does this mean I do...
  3. ChristineSelhi
    I got my test results in the mail and I am DQ2 and DQ8 negative. The numbers are very different depending on where I look, but I remember my doctor saying at the time that 85% of the people with celiac had these two genes. Anyone know what the numbers are now?
  4. ChristineSelhi
    Every wedding I have gone to, I have just walked back to the kitchen and found either the chef, the catering manager, or the wedding planner--sometimes they have a headset on. They will make you food on site. Once they brought me a plate of my own appetizers at cocktail hour! Make sure you find the people in charge, though. The servers do not always...
  5. ChristineSelhi
    Ugh, that is awful. Tell him to get diarrhea for a week and a headache and a sinus infection and be unable to get out of bed for at least 3 days in a row and to have an ugly rash on his face, oh yea, and not to absorb vitamins, and see if he whines. I'll bet he does. Just sayin'...
  6. ChristineSelhi
    Dear celiackidmom, Congratulations on your decision! I have been struggling with my own diagnosis, and I think that the thing most of us with celiac disease and gluten intolerance need is validation. That your son has your for a mom telling him that he is not crazy and that this food hurts him is the best thing for him. If eating anything with gluten...
  7. ChristineSelhi

    ARCHIVED Borderline Testing

    ChristineSelhi replied to twinboys's topic in Doctors

    Hi there, I am officially gluten intolerant, but have been struggling with diagnosis myself, since I didn't find a doctor to do the testing until after I had stopped eating gluten. I DID have the DNA test, and it said I did not have the "right" genes to be a celiac. That was 5 years ago. Now I do not eat gluten at all, and I have been told by my doctor...
  8. ChristineSelhi
    Hey everyone, thanks for the support. It's tough out there, and I am very happy to have found celiac.com to go to when I am feeling frustrated or confused. I have an innate desire to understand things, especially when they effect my life so much. Anyway, I await the mail, and then I can make my own judgement of how I feel about how I present it to the...
  9. ChristineSelhi
    Hi Everyone, I posted over a year and a half ago about possibly being a false negative for celiac disease. After a number of cross-contaminations that left me out of commission for a few days each, I have decided to take matters into my own hands. I am nearly certain that I have celiac disease, and also frustrated with the distinction between celiac...
  10. ChristineSelhi

    taking charge.

  11. ChristineSelhi
    Sadly, I was far a less responsible patient back then and have moved a couple of times. I will try and hunt them down, and see what I can find! I still have the number for the Rx though, I will see if I can get a copy.
  12. ChristineSelhi
    Yeah, they are frustrating sometimes. I have a new one who seems pretty good, but I have been not eating gluten for so long and feeling so good, I didn't think to bring it up with her....a little daft of me I guess, but oh well. I will talk to her about it, but as I said to Kim, the official diagnosis would be nice, to help me to explain it to friends and...
  13. ChristineSelhi
    Hi Kim, Thanks so much for your response. I never did do the bloodwork, because by the time I saw the doctor, I had cut off my gluten intake. I have heard of people still having the antibodies after they went gluten free. I guess in one sense it doesn't really matter, it's just one likes to know what the real problem is, you know! Also, in a way...
  14. ChristineSelhi
    Hi! I discovered my gluten intolerance through an elimination diet years ago after a frustrating round with a dermatologist and a primary care physician who thought the break out on my face was anything from herpes to a bacterial infection. I put the brakes on when the dermatologist wanted to put me on antibiotics for 6 months (!). I was convinced of an...
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