Jackie927
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Latest Celiac Disease News & Research:
Everything posted by Jackie927
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ARCHIVED What Do You Buy At Costco?
Jackie927 replied to ldesrocher's topic in Gluten-Free Foods, Products, Shopping & Medications
And all of these foods that are mentioned are GLUTEN FREE????????????? -
ARCHIVED Disposable Razors Safe For Celiacs?
Jackie927 replied to Afternoon's topic in Gluten-Free Foods, Products, Shopping & Medications
I also use the hair conditioner for shave cream. It works great. -
ARCHIVED Think I've Been Glutened, Please Check My Menu :)
Jackie927 replied to tygwyn's topic in Coping with Celiac Disease
Could the whole dairy thing be causing the problems....my doctor told me to stay away from dairy being gluten intolerant? -
ARCHIVED Bread/pasta Substitutes While Still Healing
Jackie927 replied to OliveBranch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I too am new to gluten free and did not know this. Shocked I am.........I have been living off of gluten free pasta. Maybe this is why my head doesn't feel much better???????? -
ARCHIVED Too Much Homocysteine
Jackie927 replied to Jackie927's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you so much everyone. I was back to the Dr. 2 days ago and she said I misunderstood her and that my Homocysteine was low. She did all of my blood work over again and is checking my B 12 also. She said I will need my blood checked about 2 to 3 times a year. Say's I'm gluten intolerant which supposedly goes hand in hand with IGA deficient and should... -
ARCHIVED Peripheral Neuropathy
Jackie927 replied to ksymonds84's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Walmart sells B12 sublinguals. I found them there yesterday. They had 2500 mcg. gluten-free, soy free and more free. -
ARCHIVED Tingling Fingers?
Jackie927 replied to yogamommytrainer99's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
All of my test were negative but I have the same problem with my left side also. It's also my ring and pinky finger but my whole left side has tingling, numbness and pain. Can't help you, just wanted you to know you're not alone. Hope gluten-free works for you. I'm still waiting after gluten-free for a total of 2 weeks........was a month but had to eat... -
ARCHIVED Too Much Homocysteine
Jackie927 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello Everyone, I have written a few post re: celiac or not, blood and biopsy negative but possible intolerant. Losing my Vit. D and IGA deficient. My question is: What is Homocysteine, Nutritional too much. I am not deficient. I have am higher than normal and my Dr. said she did not know what it meant. She said she knew what deficient was but did... -
ARCHIVED Celiced Or Gluttened On Water From The Tap?
Jackie927 replied to UKCeliac's topic in Coping with Celiac Disease
I was on vacation and tried a different bottle of water and had the same experience. I got very sick. From then on..........I stuck with the bottle that didn't cause me any reactions. I hope your girlfriend is feeling better. Maybe she could find a bottled water that suits her belly and use that at your home. -
ARCHIVED Food Allergy Testing
Jackie927 replied to Jackie927's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're so sweet......helping others when you are hurting too. I wish you all better. I am taking meds for the depression but still don't want to go out. It will be okay though. I will stick to the gluten-free diet and see how much better I get and go from there. Congrats on the Movie. I'm so glad you were able to go. I will give all of this time to... -
ARCHIVED Food Allergy Testing
Jackie927 replied to Jackie927's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for the information. My doctors are done now that they say I do not have Celiac. I am sticking with the diet. I just ordered Cecelia's Marketplace gluten-free casein and soy free due to them being sold out everywhere for gluten free and dairy. Their finishing up on their 2009 2010 additions. It just makes me wonder if I should stop... -
ARCHIVED Food Allergy Testing
Jackie927 replied to Jackie927's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was previously told I had a Stroke untill seeing the Neurologist. An EEG states possible seizures in Left Temporal Lobe with pain and sensitivityand migraines on that side, depression, severe neurological problems, numbness and tingling at different parts of my body but most of the time on left side, constipation and more. So I guess it's not worth going... -
ARCHIVED Food Allergy Testing
Jackie927 replied to Jackie927's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for all of your answers. Which leads me to.......What is the difference in being gluten intolerant and Celiac? Is there NO damage done to your organs if you are only intolerant? Besides the fact that it makes me sick and all kinds of other stuff. -
ARCHIVED Food Allergy Testing
Jackie927 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I tested negative to Celiac with blood testing and biopsy. Will having the food allergy testing help me to know for sure if I am gluten intollerant? Are there questions I should be asking? I called to schedule an appointment and it was like a test. They couldn't understand why I wanted to come. I told them all of my symptoms, history and she still said... -
ARCHIVED Glutened With Mcd's Fries And A Burger Pattie
Jackie927 replied to txplowgirl's topic in Coping with Celiac Disease
Wake up and start fresh tomorrow. I hear lots of water too. -
ARCHIVED Did Anyone Have This Before Being Diagnosed?
Jackie927 replied to runningcrazy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Maceroni, I'm new to all of this and I tested Negative for Celiac but have all of the symptoms and all of your symptoms. Check with your doctor and Mom and everyone here before listening to me but I have constipation problems so bad too and feel like everything will come back up. Lately I have used one Alli pill a day and 6 Fibermucil pills with lots... -
ARCHIVED No-gluten / No-dairy Shopping Guide?
Jackie927 replied to Becci's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you so much for asking this question. I did not know it existed. I am trying to order but they are sold out of the gluten/dairy free guide and it won't take my order for the gluten/dairy/ soy free guide. It looks like a great idea. -
Awww....thank you so much CMG. Thank all of you so much. He sounds like a doctor with much knowledge. The inflamation in my brain and body is one of my biggest problems. It causes all kinds of problems. That is what got me to the Rheumotologists and lead me to Celiac. Unfortunately, my doctors are have not much more to say since no celiac. So off I...
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That is so helpful. Thank you so very much. It's just so hard telling everyone that my test were negative but I still have to stay away from gluten. They will think....oh my...she got tested and she's still not happy. You know how people are. Even those closest to us. Not that this will stop me from staying gluten-free. Now my question is.........
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Thank you very much for the answer. I just wish the doctors would be more informative. Cut and clear.............No Celiac move on. I will be eating gluten-free. I was eating gluten before the test was done but oh well......I'm very thankful they say I don't have Celiac but worried not knowing for sure what's going on.
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Is it possible to have Celiac if both of the test were Negative? I have the numbness and tingling, fuzzy head...really bad, itches, nausea, D, Fatigue, lactose intolerant, etc. I am IGA deficient and I am losing my Vit D. I just got the test results back today. Doctor say's I could just be Gluten Intolerant. Should I be tested periodically? Blood...
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Wow! Now I know why after going gluten free for a month and not having hardly any symptoms to having many symptoms after eating normal foods again. I didn't know you become more sensitive after being gluten free for a period. OH NO! And OH the itches! I also think the Soy is a NO NO for me. All of you are so kind and understanding and I didn't even...
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I really hope it's okay to suggest this......My doctor just put me on MiraLAX. It seems to be helping the constipation. Check with someone else to be sure it's okay.
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You are too funny. I am having some of the same issues but I have not been gluten free as long as you. I hope you get some answers so I can read them. I wish you no more itches......and me too. I'm all bruised up.
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Hi Jason, I'm new here but wanted you to know that my thoughts and prayers are with you. I'm having a rough time myself but it doesn't sound like as rough as you. Please hang in there with hopes that you will adjust in time and feel much better. I've totally sucluded myself also due to feeling bad but have hope that if I eat the way I'm supposed to.....