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About jenlex

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  1. jenlex

    Eating In Nyc

    Thanks to all...
  2. jenlex

    Eating In Nyc

    I am planning a trip to NYC soon and would like to know if anyone has any suggestions for eats? Where to go???
  3. jenlex

    Children's Advil

    According to the Advil FAQ... it is safe. My son has used it without incident. http://www.advil.ca/en/faqs/list/0/frequently-asked-questions.aspx
  4. After conflicting information received from my doctor... I insisted on a 2nd opinion and am going to see a GI specialist. I like my doctor, but I do not feel that she is up to date with the most current research. My son recently (Jan.) tested + TTA IgA 25.5. Because this number was a weak +, she said he doesn't have celiac. I took him to a pediatric GI, had a biopsy, and they confirmed moderate/severe celiac. After that, I had the antibody testing and genetic testing for myself. My antibodies were all near zero but I was pos. for DQ2/DQ8. She "diagnosed" me with celiac based on the DNA even though my antibodies were within normal ranges. The way I understand this... no diagnosis can be made without the biopsy...my pos. genetic test only indicates that I may develop celiac, but it isn't a sure thing... Furthermore, the pediatric GI I took my son to laughed when I told her that my regular MD said my son had a "weak pos." and therefor "not celiac". The GI said any pos. antibody indicates a problem as the antibodies are very specific to gluten. It is kind-of like taking a pregnancy test and then interpreting the results as "weak pos" and therefor "not pregnant". Makes sense when you look at it like that... Anyway, my point is that a 2nd opinion might be a option if you are not 100% confident in your MD and/or test results.
  5. jenlex


    Please help me get this straight... My antibody test results are as follows: Gliadin (deamidated) Ab, IgA, S 2.4 Gliadin (deamidated) Ab, IgG, s <1.0 Tissue Transglutaminase Ab, IgA, S <1.2 Tissue Transglutaminase Ab, IgG <1.2 Based on these results, my Dr. said I was negative for celiac. I followed up with genetic testing. The results are as follows: DQ2 (DQA1 0501/0505, DQB1 02 Positive DQ8 (DQA1 03XX, DQB1 0302) Positive Final Results: DQA1* 0301,0501 DQB1* 0201, 0302 Based on these results, my doctor said I DO have celiac... I am not a doctor and I don't claim to know more than she does, but I thought you needed a biopsy to diagnose celiac. I do know that you can have a false neg. antibody test if you are IgA deficient...but I don't know what to look for. Is there something in these results that indicate a diagnosis of Celiac without having a biopsy? FYI... about 3 months ago my son tested pos for antibodies... she said they were low, so... he isn't celiac. Further testing (biopsy) confirmed a celiac diagnosis. This was after I insisted on seeing a GI specialist. Should I also see a GI specialist for a biopsy...or just go by the genetic testing...
  6. DQ2/DQ8 positive

  7. jenlex

    Help Me Understand

    Thanks! Yes, I believe I am having non-GI symptoms. My antibody test came back neg. but my genetic test is pos for DQ2/DQ8. I have made an appointment to see a GI specialist to set up a biopsy. My son has already been diagnosed with celiac via a biopsy and pos. antibody test. My daugter has had no testing done yet. This is all pretty recent in my family. I have made an appointment to have an antibody test for her, but didn't feel it was needed to have a genetic test being as I have already tested pos. on that end. I dont really feel that my family doctor knows enough about celiac disease to give me specific/accurate info...thanks for the info.
  8. jenlex

    Help Me Understand

    Does this also mean that because I carry both genetic markers, DQ2/DQ8 that both of my children will have at least one of the markers? Either DQ2 or DQ8 plus another marker from their father?
  9. jenlex

    Help Me Understand

    Ok.. do I have this right? I have tested positive for DQ2 and DQ8, but have had a negative antibody test. So, this means that I am not currently reacting to gluten, but COULD develop celiac at any time in my life? Also, do I understand that I got DQ2 from one parent and DQ8 from my other parent ? If this is so, then am I correct in saying that both of my parents are "at risk" as well?
  10. jenlex

    Help Me Understand

    Help me understand this... My son was recently diagnosed with celiac. Prior to his diagnosis, I had never even heard of it before. I have been trying to track down the genetic origin in my family and have thus had genetic testing done. I have been tested positive for DQ2 and DQ8, but have had a negative antibody test result. If I understand this correctly, this means that I am not currently reacting to gluten, but could develop celiac at any point in my life. Also, does this mean that BOTH of my parents are at risk? One parent gave me the DQ2 while the other gave me the DQ8 therefore putting them both at a higher chance of developing celiac???? Do I understand this correctly?
  11. jenlex

    Bread Please!

    My 6 year old son was recently diagnosed with celiac. We are having a difficult time finding bread that tastes good and does not fall apart like old playdough or styrofoam! HELP!
  12. According to the website: All products except for the meatballs with sauce are gluten free.