curlyq

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About curlyq

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  1. My dd went gluten-free at the age of 6. At first she thought that gluten free breads, cookies, etc were so gross. So I simply stopped making gluten-free baked goods and stopped buying them as well. I would feed her anything that was naturally gluten-free such as cheeses, meats, yogurts, fruit, veggies, yummy dips, potatoes, rice. We made goodies out of chex cereal (so many great options there) and cocoa pebbles rice krispy treats. We used corn tortillas for cheese crisps, wraps, and even as a makeshift pizza crust! Eventually, after having no baked goods for a few months, I gradually started to re-introduce things to her. And, surprise, she would love it! She now eats Udi's, rice crackers, gluten-free cookies....really anything. I also learned more about the different types of flours and how some of them have very strong flavors that are off-putting. I think it also took her a little time to "forget" the tastes and textures of gluten filled food and readjust to gluten free food. Give him time, he will eventually adjust. I do agree that you should at least have his blood tested. Goodluck!
  2. Welcome to the boards! So sorry that about everything your little guy has gone through, but yay for a diagnosis! When my dd was diagnosed I was so very relieved to finally know what was wrong and what I can do to help her. Here are a few thoughts that I had. Make sure that you have the VERY BEST pediatric GI in your area, someone who is up to date on the most recent celiac findings. If you are not sure about your GI, you can look and see if your area has a celiac support group (such as R.O.C.K.-Raising Our Celiac Kids), contact the group and ask for recommendations. Ask also for recommendations for a registered dietician who has experience with kids with celiac. Many times the doctor can diagnose, but it takes a dietician to really answer all of the dietary concerns. I would also make sure that you have a normal pediatrician who has experience working with babies with celiac. It is so important that you have medical professionals that you can reach out to with your concerns and who can answer your questions.
  3. I'm not in Michigan, but welcome! It definitely takes time adjusting (and even mourning!) to all of the dietary changes. My dd was diagnosed at the age of 6 last year, and my second daughter just tested pos at the age of 5. My recommendation would be to surround yourself with GOOD doctors who are knowledgeable about celiac. So many doctors simply don't know enough information, so the internet becomes a better educator than they are. Does R.O.C.K. have a chapter in your area?
  4. A few ideas for breakfast that I had for you are: -cooked rice with milk and sugar -pre-cook hard boiled eggs and keep them in the fridge, serve with fruit, yogurt, milk, etc... -I make a lot of things ahead of time (waffles, pancakes, breakfast casserole, etc. and keep them in the fridge or freezer. They re-heat quickly in the microwave or toaster)
  5. My oldest daughter was 6 when diagnosed. My 2nd daughter was 5 1/2 when diagnosed. Both tested positive through blood tests, no endoscopies were done.
  6. If you want to know whether you have celiac or not you MUST continue to eat gluten. The test results will be inaccurate if you have already eliminated gluten from your diet. If I were you I would eat gluten until you can get a proper diagnosis. Because it is genetic it is important that you know exactly what you are dealing with so that you can watch for symptoms in your children.
  7. Definitely have her keep eating gluten if you want her to have the biopsy. We chose to not have my 6 year old daughter have the biopsy after a positive blood test. With her strong symptoms and our family history of celiac, we felt good about putting her straight on the diet. I have not regretted that decision. Her symptoms went away immediately and she has been healthy ever since. However, I do not have an "official" diagnosis from a specialist. I have not had any reason to need it (she has been gluten-free for one year) and hope to never need it. I think you have to do what you feel good about. Many people are happy to get the biopsy, but a lot of people (like me) have felt good about the blood test results.
  8. My dd (7) has celiac, and my 2nd daughter (6) just tested positive as well. We do have gluten bread, pasta, oats, and crackers in the house. I do all that I can to avoid CC (seperate toasters, strainers, cupboards, etc...). My daughter is happy on the gluten-free diet and never really cares if we eat "normal" bread when she eats her "special" bread. We have decided that if she ever does care, then we will ALL go gluten-free at home. Most of our meals are naturally gluten-free. We also never eat things that she can't have in front of her UNLESS she has something equally wonderful.
  9. My kids love them with rolled up with cream cheese, ham, and cheese
  10. I really want some opinions here! My husbands family has a STRONG family history of celiac. His grandmother was diagnosed 8 years ago, his mother diagnosed 10 years ago, and my oldest daughter was diagnosed 9 months ago (blood test had levels >100...we chose not to do the endoscopy and all of her horrible symptoms went away). Because of his family history, we have participated in a celiac study where everyones blood was tested. I just received the results of my other daughters blood, who has NO celiac symptoms, and she tested positive. Here tTG was 28.56 (moderate to strong positive >10) and her EMA was positive (endomysial antibodies detected). My frustration here is that she has NO symptoms. She is tall for her age, no stomach pain, no strange bowel movements, she is happy, focuses well at school...just picture perfect health. Should I have her blood tested again or is that redundant? We have a high deductible insurance policy and are a one income family, so I want to avoid the costs of an endoscopy if possible, but I still want to do what is best for my daughter. What would you do?
  11. It is so very heart breaking to see what these little ones go through. I have a 7 year old DD with celiac, and our 5 year old just tested positive as well. One thing that we have found helpful is to be sympathetic, but straight-forward. If I am sad and upset about it...so will my daughter. If I am confident and matter of fact, she typically will follow my lead. When she does get a little bummed about what she can not have, I am quick with a hug, sympathy, and then a distraction. No point in dwelling on what we can't change.
  12. My 7 year old daughter loves baking gluten-free with her easy bake oven. I will typically just make a normal batch of gluten-free cookies, and then give her a little dough to put in her oven. She thinks its great.
  13. For my 7 year old we send: Italian pasta salad (full of veggies, cheese cubes, pepperoni's, etc) Tuna salad and a rice cake Egg salad Chicken salad Apples, celery and PB Fruit, ham and cheese kabobs Homemade lunchables 7 layer dip and taco chips Hope that helps!
  14. My 6 year old daughter was just recently diagnosed with Celiac. Her doctor does not seem very educated about what is and is not ok (she gave us a handout that had been printed in 1994!). I am switching to a doctor who specializes in Celiac, but until then I want to feed my daughter properly. So my question is, is Modified Food Starch ok? I know that it must state whether it is made with wheat or not. Do I need to worry about it further? Do most celiacs eat it or not?