BrownEyedGirl
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Latest Celiac Disease News & Research:
Everything posted by BrownEyedGirl
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I hope you are doing better. The last post you made a few months ago, you sounded a bit discouraged. Sending Happy thoughts.
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I'm going back to the doctor today. I was diagnosed with DH last week, and it was almost the way gone just three days ago. However, after finishing the steroids I was on, it starting coming back in full force. It's unclear whether the it's caused by cleaning the kitchen/seperating the gluten and gluten-free items in the kitchen over the weekend, or if...
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ARCHIVED Was Almost Gone And Now It's Coming Back
BrownEyedGirl replied to BrownEyedGirl's topic in Dermatitis Herpetiformis
It was most likely what I ate for dinner that night. I had pretty bad bloating and stomach pain afterwards, and then of course, the skin symptoms. My dad made a casserole which was just ground beef, green pepper, tomato sauce and rice. I'm feeling a little better today and my GI symptoms are much better. The skin symptoms are still there, but visibly easing... -
ARCHIVED Bloating
BrownEyedGirl replied to BrownEyedGirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not entirely sure if I have secondary intolerances, or if I had some sort of cross-contamination issue. I also have DH (which was almost healed), but later on after the bloating started, I started itching some and I woke up this morning with more forming lesions. I have already eliminated dairy though. -
ARCHIVED Was Almost Gone And Now It's Coming Back
BrownEyedGirl posted a topic in Dermatitis Herpetiformis
Was diagnosed with DH earlier this week. I've been on a gluten-free/CF diet for about 6 days now and have been using a topical. I just have a few little dots left on my arms, and some purple marks on my thighs. So, everything was healing. Anyway, I had a little itching late last night and then today I woke up ... the bumps had gotten just slightly... -
ARCHIVED Bloating
BrownEyedGirl posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Did anyone have a lot of bloating when first starting on the gluten-free diet? The last day or so I've just been so bloated, all the time. I suppose my body is still adjusting. -
Do you stick with gluten-free health/beauty products, or just ones that you use around your mouth like toothpaste and lip products? I'm just curious because I've heard some people say its fine unless it's near your mouth, but my derm. told me to switch to all gluten-free products. I wasn't sure if thats standard or if I'm just extra sensitive.
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ARCHIVED Cross Contamination
BrownEyedGirl posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What all do I need to do to my kitchen, in terms of preventing cross contamination? I've seperated my dad's food from mine. I put all his in the pantry, and mine is in a cabinet away from it. Everything is seperated in the refrigerator. But, I'm curious about things such as ... what I should do with the toaster which he keeps next to my coffee maker... -
ARCHIVED Coping With Watching Others Eat
BrownEyedGirl replied to BrownEyedGirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
He already is willing to eat more gluten-free ... haha. I found this recipe for a blueberry and banana gluten-free breakfast cake and made it this morning. I think I might have to hide it from him now ... it's soooo good. -
ARCHIVED Coping With Watching Others Eat
BrownEyedGirl replied to BrownEyedGirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For the most part, yes. I have my food in a cabinet, which is not in the main pantry away from everything else. Our foods in the refrigerator and freezer are together though. Right now, he has a package of bread, cookies, box of cereal sitting out on the counter, but I was planning on going through and making sure everything is seperated today. We're... -
ARCHIVED Coping With Watching Others Eat
BrownEyedGirl posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was diagnosed earlier this week and I've been gluten-free for four days. I live with my dad, and it's been hard to watch my dad eat stuff I can no longer have. I guess he doesn't really think about it, but he leaves stuff around the kitchen and I guess it just bothers me a little. I'm not tempted and I'm very dedicated to staying gluten-free, but... -
I was diagnosed with DH by my dermatologist yesterday. She didn't do a biopsy though since I've been taking steroids for about a week now. Though she also said that it looks like a textbook case of DH, and since I've gotten a positive response to diet change, everything points to that. That was ok with me ... I was more looking for some relief, rather...
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ARCHIVED Update On My Situation
BrownEyedGirl replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that I could heal without medication, but it would longer. I definitely feel like the medicine is speeding things along. Yesterday morning, it looked like it was a little better and now after 2 more steroid doses and with the topical, it looks a lot better. -
ARCHIVED Update On My Situation
BrownEyedGirl posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I went to the dermatologist today and she told me I have a textbook case of DH. She didn't want to do a biopsy at this point due to the steroids I've been on for about a week. She said that given the fact that I've reacted to wheat gluten and dairy products in the past (had hives on and off for the past 4 years from eating wheat/milk products), I clearly... -
ARCHIVED What To Expect At Appointment?
BrownEyedGirl replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks, I will post an update when I get home tonight. It will be late though ... have to go straight to work afterwards. -
ARCHIVED What To Expect At Appointment?
BrownEyedGirl replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, I don't know ... With just the steroids alone, I was getting worse. I didn't make *any* improvement until I started eating gluten-free/CF. -
ARCHIVED What To Expect At Appointment?
BrownEyedGirl replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, that is true. Though, I think the doctor I saw in the ER was more concerned about treating the rash and lesions and making me more comfortable. I will see how it goes tonight, and if need be, I'll eat something unsafe before my appointment. Like I said, I react pretty quickly. -
ARCHIVED What To Expect At Appointment?
BrownEyedGirl replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The negative test was about four years ago. I was diagnosed with rosacea (which is now gone) and was breaking out in hives, in response to milk and wheat. That problem went away, only to reappear about a week ago. I don't know what exact tests were run. I know my doctor was concerned about auto-immune disorders because of my problems with rashes. He... -
ARCHIVED What To Expect At Appointment?
BrownEyedGirl posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was diagnosed with allergic dermatitis to possibly wheat gluten and casein in the ER, and I'm supposed to follow-up with a dermatologist. The doctor mentioned testing for DH. I'm just wondering what to expect at my first appointment. I was told to go ahead and start a food diary so I have something to show the derm ... since my symptoms happen right... -
ARCHIVED Finally Some Answers ... And Relief
BrownEyedGirl replied to BrownEyedGirl's topic in Coping with Celiac Disease
Thank you. I didn't have any itching until 7pm last night, when I used to having a flare-up every time I eat. That's definitely some progress! -
I've had rashes with blisters and lots of itching - some of which are now purple. I ended up going to the ER, and the doctor diagnosed me with allergic dermatitis, possibly DH. I'm supposed to make an appointment with a dermatologist for testing and I'm now on my second course of steroids, haven't worked thus far. The doctor said it's clearly related to...
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I ate Quaker Instant Grits , and had an AD (allergic dermatitis) flare-up in a matter of 20 minutes. Is this gluten-free? I thought it was since its made from corn, and just has a few added vitamins in it. If not, could it be a matter of cross contamination or another allergy?
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ARCHIVED Allergic Dermatitis Vs. Dh
BrownEyedGirl replied to BrownEyedGirl's topic in Dermatitis Herpetiformis
Update: I ended up going to the ER last night. After four days of allergy meds and steroids, it had gotten a lot worse and the itching was pretty unbearable. Some of the rashes had become purplish. The doctor I saw said that the steroids I had been given were very low doses, and he was shocked at that given the severity. He gave me a prescription for... -
ARCHIVED Finally Some Answers ... And Relief
BrownEyedGirl posted a topic in Coping with Celiac Disease
Well, last night I ended up in the ER for the second time this week for this severe rash I've been having. They are saying it's allergic dermatitis caused my allergies to wheat and casein. I've done gluten-free/CF for short periods of time in the past, but after a while, I was able to re-introduce it into my diet. The doctor told me that it's time for... -
ARCHIVED Grocery Staples?
BrownEyedGirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I'm newly diagnosed with intolerances to gluten and casein (allergic dermatitis, poss DH) and I'm in the process of going through my kitchen and getting rid of anything with the offending substances. I'm not quite done yet, but it looks like I'm going to have to get rid of alot of things, and basically start from scratch. What are examples of food staples...