-
Posts
21 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by tarni
-
ARCHIVED Still Nauseas, But Finally Making A Connection...
tarni replied to Becci's topic in Related Issues & Disorders
Thanks Skylark, great link Coincidentally, RPAH is in my -
ARCHIVED Still Nauseas, But Finally Making A Connection...
tarni replied to Becci's topic in Related Issues & Disorders
I have been meat-and-egg free for seven years. This is because they seriously and directly upset my female hormones. This includes, surprisingly, the organic and free-range animal products. Thought I -
Hi Bigbread, yes Damn indeed! I
-
ARCHIVED South Aussie Seeking Informed Dietician
tarni replied to tarni's topic in Introduce Yourself / Share Stuff
Thanks so much Georgie, I would really appreciate a PM re your GP's contact details. (And please forgive my techie ignorance... but does a PM just arrive at 'My Profile' page? Or should I enable something?) Many thanks also to Cranberry, I followed your link (above) to the new Sue Shepherd base in Adelaide and am booked in for next Wednesday! As they... -
ARCHIVED South Aussie Seeking Informed Dietician
tarni replied to tarni's topic in Introduce Yourself / Share Stuff
Thank you, and apols for the delay in response. I've just been in such brain-fog etc and can't even get my head around how to track my posts etc. Am thrilled to hear Sue Shepherd has a base/colleague in Adelaide. I'll contact them. Again, many thanks, Tarni -
ARCHIVED South Aussie Seeking Informed Dietician
tarni replied to tarni's topic in Introduce Yourself / Share Stuff
-
ARCHIVED South Aussie Seeking Informed Dietician
tarni posted a topic in Introduce Yourself / Share Stuff
My first post to this down-under sub-forum. I'm Kiwi born, but mainly raised (and currently live) in South Australia. So I guess I'm double OK to chat here? After many symptoms consistent with coeliac, and then a negative endoscopy (went gluten-free anyway), I've recently been diagnosed with Lactose Intolerance from same endoscopy a few weeks later... -
ARCHIVED Fm, Fodmap, Elimination Diet?
tarni replied to tarni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you (again), especially for the extra information and experience about mercury and metal-tests etc. Also, sorry if I sounded a bit cranky in my previous post. To be honest, I was a bit... its just that my female hormonal troubles (inc two miscarriages) have been under-estimated and questioned by many for years... and now in recent times... so... -
Thanks Loey, yes this forum has helped me greatly, its not just the information and advice but the understanding and care. I no longer feel alone, lost, afraid and helpless. I too have a teaching degree, and have done subbing/supply/relief teaching in the UK and Oz. More recently I have been teaching at uni, but I've had to take leave as I have been so unwell...
-
ARCHIVED Fm, Fodmap, Elimination Diet?
tarni replied to tarni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you, I am open to any information/advice, just like your profile name "looking for answers" Re: the mercury in canned fish, yes I have heard of this, and now (thanks to your link) I am very aware of it. However, (I think ) my quite severe and many celiac symptoms began 10 years ago, and it is only in the last couple of weeks that I have resorted... -
ARCHIVED Fm, Fodmap, Elimination Diet?
tarni replied to tarni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
gf_soph, you really made me laugh about the food diary being like a prison log... I hope you don't feel the need to wear an orange jump-suit! Yep, I kind of think 'why do I have to do all of this when others skip happily through their lives' but, hey, like everyone here... feeling better is our aim, and perhaps we appreciate the 'normal' things more. ... -
ARCHIVED Fm, Fodmap, Elimination Diet?
tarni replied to tarni's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you gf_soph, your information, personal experience and online links, have really helped me through this hazy maze of my own research (...and what to ask, when I see my dietician, and what to expect re possible breath tests... and, I agree, I'm pretty sure a low FODMAP diet won't corrupt results). So FODMAP and RPAH are dealing with intolerences... -
ARCHIVED Fm, Fodmap, Elimination Diet?
tarni posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After recent negative endoscopy results, and feeling like I'd 'fallen through the medical net' whilst basically house-bound due to the many and extreme symptoms that seem to be shared by others with gluten and other intolerences... I decided to take things into my own hands and for 100% gluten, dairy and soy free. (I have already been meat and egg free for... -
ARCHIVED Testing Other Allergies Pre Gluten Free?
tarni replied to tarni's topic in Coping with Celiac Disease
Thanks to both of you. Yes, although my blood tests were positive (right genes etc), my doc was very clear to me that the endoscopy would be the real decider. Thus I believed his 'possible' diagnosis. However, in my research (inc and esp this forum) I have learnt a lot, including that yes I am in the same club! I went gluten and dairy free 48 hours ago... -
Thanks again Sophie Yes, the 'snaps' and 'double snaps' in our lives are pretty uncanny, but I think one can be kind of intuitive about people even across the 'net in a forum. I decided last night to bypass a dietician (I'm just so fed up with the whole system), and as of today I'll just go 100% gluten, dairy, soy and more... free. I've picked...
-
Thanks Sophie, and I could say "snap! me too" to nearly every issue you raised. But firstly re my Mother, yes it is obviously a problem with her attitude to/feelings for to me. It has been there all my life... almost a deep-seated hatred for the bright pretty girl that entered the marriage and took away her husband... (v Freudian I know). Everything...
-
ARCHIVED Testing Other Allergies Pre Gluten Free?
tarni posted a topic in Coping with Celiac Disease
My recent blood tests said possibly for celiac, but endoscopy results yesterday said no. So, with information gathered from this forum I had decided I would immediately go 100% gluten and dairy and soy free (just eat fruit vegies potatos fish and herbal tea). I know it will be difficult, but hey I want to get out of this non-life. I was thinking of gradually... -
Thanks for this advice about possibly feeling worse before feeling better. I guess going gluten free is different for everyone, and hazy territory, and I'll be pretty much going it alone (without medical help). That is unless I change my GP (doctor)and find one who is more on board with celiac etc. We've had an excellent patient-doctor relationship since...
-
I'm a newbie too, first post this morning! I get the feeling there are a lot of informed and caring people in this forum who would be of more constructive support. But I just wanted to say that I have almost exactly all of the same symptoms as you listed (and I love Charlie Brown's WAAH WAAH)... but my nausea can be debilitating and I vomit violently almost...
-
Thank you all, I think I'm getting the hang of it, and I worked out that I needed to goto Avatare on the 'edit my profile screen' to get my photo up. tarni in Oz
-
I'm a newbie to the forum, first post this morning Just a bit worried about how to reply (some people tend to 'quote', in a blue square, which thread of the postings they are responding to, which I imagine can sometimes be helpful/clarifying). Also, my profile details does not seem to include the photo I added, and there is a disturbing 'warn status' under...
-
ARCHIVED Endoscopy Results
tarni replied to tarni's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You guys are so welcoming and informed and funny Yep, I've checked Wiki and yep I have the Genes... Irish... also my family members are riddled with strange stuff. My Dad died of dermatomysitis (auto immune disease) my sister has non-verbal Autism, and my cousins have Crohns etc etc. And yep, can I please collect my door prize... my HLA DQs are positive... -
ARCHIVED Endoscopy Results
tarni replied to tarni's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ofcourse! In my brain-haze I forgot that medical research and practice is driven by BIG Pharmas. Hopefully some nice medic somewhere will find a method to diagnose more precisely, and a new generation of doctors will be more informed. Also, I've never been in an online forum before, but I find this one fantastic, so let me know if I am making any mistakes... -
ARCHIVED Endoscopy Results
tarni replied to tarni's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks Lisa. Wow that many! I wonder why the medics can't get a true result. Are they using outdated methodology? The ones I've encountered (even the v friendly gastro-doc) seem to treat me like a lunatic hippie when I discuss celiac. I'd really like a solid medical label mainly to explain/justify myself to the world (especial employers). Tarni -
Hi, this is my first post, but in my research into celiac disease I have searched this forum on many topics... and my symptoms tick all the boxes from chronic fatigue through to drenching night sweats, eye tics, bloating, diarrhea, teeth grinding, irregular menstrual cycles ... the lot... However, I just received my endoscopy results and they are clear. Not...