luluo
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by luluo
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Thank you all. I was planning to make the house almost 100% gluten free. I guess I just needed some extra support in that area. My husband kind of scoffs at the idea. He is supportive but change is hard for him. It is a pain to fix everything separate and have separate toasters, etc. Over the summer I will slowly switch the house to be mostly gluten free...
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I am gluten free based on an elimination diet done back in 2004. I never had a blood test because I had been gluten free for a while but my symptoms disappeared when I went gluten free. I never had further testing because I didn't want to load on gluten to have them done since I am doing well. A few years back I did get a genetic test done through my doctor...
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ARCHIVED Genetic Testing Inconclusive?
luluo replied to luluo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Extreme fatigue, all over chronic pain since I was in my teens, migrianes, numbness in the extremeties, breathlessness, palpitations, extreme feelings of hot and cold, etc., that have all gotten much worse in the last few years to the point where my life was being greatly impacted. Yes, my rheumatologist was thinking Lupus or RA as well as a few other things... -
ARCHIVED Genetic Testing Inconclusive?
luluo replied to luluo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you both for the explanations. I've gotten better info from you than from the GI and staff. I'm very irritated that he made it seem that this genetic test would give me the answers I was looking for. Should have known better. The reason I was looking for a firm dx of celiac was to aid my rheumatologist in my treatment. I have a positive ana and we were... -
ARCHIVED Genetic Testing Inconclusive?
luluo posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have been gluten-free since 2004. Been doing well but have had health problems recently that have led to me want to have a firm diagnosis if celiac disease if possible. Blood tests were negative, but I am gluten-free so I expected that. So I paid big bucks to have a HLA DQ test done. GI Doc said that this should give us a definitive answer. I spoke with... -
ARCHIVED Toddler's Initial Bloodwork "between Positive And Negative"?
luluo posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In 2004, it was determined that I need to avoid gluten through an elimination diet suggested by my GI. I have never had any further tests done so I am not familiar with them. My son, 18 months, just had a blood test done by his pediatrician for Celiac due to persistent loose stools. The test came back "between positive and negative" and he needs further evaluation...