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Kate35

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Everything posted by Kate35

  1. Kate35
    Hello. I was diagnosed with celiac disease 6 years ago. I tested both of my kids at that time and they were negative, but one was positive for both genes DQ8 and DQ2 and another was only positive for DQ2. The child who tested positive for both genes does not seem to have problems with gluten. The other child has major GI issues. We eat mostly gluten...
  2. Kate35

    ARCHIVED Going Out?

    Kate35 replied to Kate35's topic in Coping with Celiac Disease

    Are you concerned about coffe or tea being contaminated with gluten? What kind of "fancy coffee"? Do you not even bring it up (gluten issue) at the restaurant? Ideally, I would like to not mention it.
  3. Kate35

    ARCHIVED Going Out?

    Kate35 posted a topic in Coping with Celiac Disease

    The nature of my work involves meeting people which inevitably involves going out and eating out. I always get nervous when ordering but at the same time I don't want to attract too much attention and cause my disease to become atopic of conversation.... How do you handle it? What do you typically order? I am most,y having problems with "let's meet at...
  4. Kate35
    Yes, but I feel so sad... Thinking how he will go through teenage years... College? Dating? I am just driving myself insane. On one hand, I am happy that he is feeling better, but this diagnosis entails so much... I can handle it, but the idea of my kid having this... I cannot sleep, cannot eat... Anybody going through this?
  5. Kate35
    I wanted to give you a quick update... I fed my son complete gluten-free diet for a week and he gained 4lbs... I don't know how to rect... He had a completely normal celiac panel test a little less than a year ago... Does it mean he is a celiac if he responded to the diet? Could he be just sensitive? I cannot stand an idea of him going through what I did...
  6. Kate35
    I will definitely have his thyroid checked... Interesting... It seems like most kids whose parent is a celiac develop it at some point if their lives... Or am I mistaken? My GI assured me that chances f them developing it are very slim... Like less than 10%. Now after reading your posts, it seems like almost 100%.
  7. Kate35
    Yes, that is what I have been doing-cooking on vacation... However, I dream of going to Europe and it would be nice to sample out their restaurants while there... It is all part of the experience...But nt sure if that is an option
  8. Kate35
    Thank you for your reply! That is certainly very encouraging!!!
  9. Kate35
    Since being diagnosed, we only vacationed once at a cruise, and it was wonderful! However, i would love to go to an all inclusive resort... But not sure how well grey will handle our food issues. What do you guys do? I was also hoping to go to Euroe bed year but cannot even begin to think how I will be able to eat there... Appreciate your insights! ...
  10. Kate35
    Thank you for your replies! I got more info here than I got from my doctor...
  11. Kate35
    I just had a physical with my 10 yo son and it appears that he has not ganed even a pound in one year!!!! He grew one inch which my pediatrician thinks is completely normal. She told me to increase his calorie intake and add oil and butter to every meal...Now, because I am celiac, I did persuade her to have him tested last year and h was egatve. It was...
  12. Kate35
    I actually was wondering about the same thing. I am praying every day that my kids don't develop celiac , and I am thinking of going completely gluten-free to minimize ther risk f developing celiac later in life. However, other people are telling me that this approach might actually backfire and they could develop sensitivity to gluten if they don't ingest...
  13. Kate35
    No, I saw the results- they were unequivocally negative. My only concern with the true validity of the results was the that they were on a "semi gluten free diet" at a time meaning they were eating very little gluten and mainly in school... I am just not sure what the healthiest diet for them would be... I mean nutrition wise you cannot even begin to...
  14. Kate35
    I was diagnosed with Celiac Disease a couple years ago. Have been on a very strict gluten free diet ever since... Tested my kids immediately for antibodies and neither of them was positive. Now, I do notice that their bellies get bloated after a big spaghetti dinner, but it could be just me watching them a bit too closely... My oldest has asthma and multiple...
  15. Kate35
    Thank you all so much for your suggestions! Your support means so much to me! I am on the elimination diet now, will see what happens... Enjoy the holiday weekend!
  16. Kate35
    Hello, I have been gluten free for 10 months now and I was feeling better for awhile, most of the digestive symptoms gone, but lately I feel like I have been getting worse and worse. It started in Deecember when I realized that the vitamins that I started taking contained wheat (Centrum Chewables, please be careful!!!!), but I quickly discontinued them...
  17. Kate35
    Thank you all for all your replies! I do think it was Bob's Red Mill flour that got me glutened, but it was pretty bad... I was up all night, have not felt THAT bad in awhile... Now I am feeling better today, but I am just drinking herbal tea and eating bananas, still feeling tired and a bit bloated, but most of my digestive symproms gone, thank God. Now...
  18. Kate35
    I was wondering if anyone else has gotten sick from this gluten free baking mix. Since I was diagnosed with celiac, my whole household went gluten free but I LOVE to bake and I got this gluten free baking mix by Bob's red Mill a try. Boy, I felt awful... definitely glutened. wondering if I could have developed a sensitivity to something else? or was this...
  19. Kate35
    Thank you! I will try that!
  20. Kate35
    no, i am actually not using anything... i mean the only diary i do eat is greek yogurt for breakfast, but it has very min level of lactose and i've been eating it since diagnosis and was fine... i dont use butter i use sunflower oil or grape seed oil as a replacement...
  21. Kate35
    Hello again, I was wondering if anyone had any experience like that. I was diagnosed ~9 mo ago and was feeling more or less okay by Novemeber although some days were still pretty and and I could never figure out the culprit. My bloodwork showed that my levels went down significantly. However, last month I decided to switch to different types of vitamins...
  22. Kate35
    Hello, I've writen here before and have received LOTS of support and advice. I think the most depressing thing is still being (feeing) so lonely and different... I used to LOVE holidays, social outings, spontaneous dinners etc. I loved to cook and I loved to experiment with food. However, i also enjoyed going to my friends for dinners and we actually got...
  23. Kate35
    Thank you all so much for your replies! You just have no idea how much your words mean to me. Just knowing that there are people out there I've never even met but who cared enough to read and offer advice... you really made me feel billion times better. I know I am not alone. I was diagnosed by endoscopy, because my doctor was convinced I had an ulcer...
  24. Kate35
    I am so glad I found you guys! I was diagnosed with celiac disease about 6 months ago. I was feeling horrible and I am glad that at least I know what was wrong with me. I am feeling much beter now although not 100% better, I still get crmaps,nausea, bloating for no reason (could stress and anxiety do it?!) but mostly i worry about what to do now. I...
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