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hunter6009

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Everything posted by hunter6009

  1. hunter6009
    Hi all! Been a while since I've been on here....I was diagnosed almost 2 years ago and have had no issues since then after going gluten free. It was nice! Prior to then I recall having GI viruses that would take MONTHS to "go back to normal" from and that was what ultimately prompted me to seek treatment and discover I had celiac. Fast forward to...
  2. hunter6009
    I've heard about canker sores for sure (apahtous ulcers- sp?). Two clinicians specializing in celiac spoke at a conference in my area and this was one of their slides. Are they on the tongue or cheek area?
  3. hunter6009
    It depends on what test you are talking about. tTG has a false negative rate of 1% in national labs (LabCorp, Quest, etc). Is a little higher in children but usually only those under the age of 2. Here is a good link and quote from the link for more info: "Because of the major implications of a diagnosis of coeliac disease, professional guidelines...
  4. hunter6009
    Thanks for the replies! Not ready to do gluten-free with him just yet. Hard to diagnose if you take out gluten. Plus with two negative tests, and negative pathology, there really isn't a reason. Well yet at least. I know gluten can be hard on the system for other diseases so it's something I will consider one day soon. He's already on what I call...
  5. hunter6009
    Hi there! The most tell-tale sign they look for is sprue and scalloping (folds) of the duodenum. Rule of thumb is less than 3 folds, suggestive of celiac. Smooth folds suggests villous atrophy (damage to the folds from something- ie. gluten). My photos looked like smooth pipes! What did her labs say? Those are highly indicitive as well. Can have SOME...
  6. hunter6009
    Hello all! Hoping to find someone with similar problems. About a year ago my entire family got the worst stomach bug ever. Barf! My husband and my youngest child got better within a week. My oldest (7 years old) and myself did not. I work for a lab in sales and was doing celiac work at the time. When I didn't get better (again as this usually...
  7. hunter6009
    Hello everyone! I need some assistance from my fellow celiacs who love sushi. I've been gluten-free since Nov. 27th 2010 and prior to that was a sushi HOUND! I literally ate it as often as possible. Soooo, I haven't given up sushi, just making gluten-free choices. I know the normal things to change (soy sauce, tempura, checking the rice, etc), but my...
  8. hunter6009
    I think I may have to try the premade from Whole Foods. They were out over Thanksgiving, so my next stop I will attempt to use those with my chicken pot pie. We make these quite frequently. They are such an easy thing to do with leftovers. Whatever I have leftover from the night before (chicken, veggies, cheese, sourcream, white wine, etc) goes into my...
  9. hunter6009
    So good to hear! It's nice to know there are others out there that didn't gain a ton of weight! You read all these articles about celiac people going gluten-free and then gaining a ton of weight, it just scared me! I like being fit and healthy and don't want to have to combat age, food, and now a special diet on top of that to maintain! Age and Food are...
  10. hunter6009
    Anyone have a good internist or primary care physician actively treating celiac in their practice in the Kentucky area? I'd even be willing to drive to S. Indiana or Cincinnati, Ohio if need be. My GI doc wants me to be maintained via my FP doctor. Thanks!
  11. hunter6009
    Ok- just upfront I will say "I know I know, I need to stay gluten-free for my long-term health". I will and I am. However, I never attributed my weight loss to celiac. I felt I lost the majority of it before I had symptoms by working out (which is something I never did before until I had my first child). After my son was born, I weighed 140. Not big...
  12. hunter6009
    Tonight was my first attempt at making my chicken pot pie gluten-free. The insides tasted perfect. I found a great gluten-free Cream of Chicken Soup and everything else tasted the same. However, I used a gluten-free Pie Crust boxed recipe (Gluten Free Pantry Perfect Pie Crust Mix). It looked good and cooked well (brown and flaky) but tasted awful! It...
  13. hunter6009
    Hi Kimbalou! Nice to "meet" you! I was recently diagnosed myself and am also from the medical community. Heck, I work for the lab that runs the testing! I ran the panel I talk about to physicians on myself a couple of months ago and also had very high levels of all 4 tests. My GI doc still advised a biopsy as a baseline to see the extent of damage (not...
  14. hunter6009
    Thanks again for the replies! I had my doctor's appt today and he was WONDERFUL! Such a positive and educated physician. Those can be tough to find! My job is working with physicians everyday and let me tell you not all of them are cut from the same cloth! He was very motivating, humorous, and knowledgeable about the disease. I knew quite a bit about...
  15. hunter6009
    Thanks for your replies. It's very overwhelming at first, especially when you don't have many symptoms to begin with (or any that are worth noting). I think that makes it even harder for someone who has celiac. At least if I had diarrhea that effected my life, and any other symptoms, then going gluten free would make me feel better and then I'd think...
  16. hunter6009
    I am new to the board- nice to meet you all. I work in a lab and have been in the medical field for over a decade now. My uncle is a GI. So I'm fairly versed with what's going on, just a little skeptical right now. After about 3 years of off/on symptoms, I decided to have a celiac panel run on myself just in case. My results were: Immunoglobulin...
  17. hunter6009
    The office probably used the wrong testcode. LabCorp cannot run testing without the test code given and they only run what is given to them. There are SO many different panels and test codes for Celiac. The one I ran for myself was Total IgA, Endomysial IgA, Deamidated IgA, Deamidated IgG, tTG, and HLA gene typing. LabCorp compares to Prometheus testing...
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