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Jenny Leigh

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Everything posted by Jenny Leigh

  1. Jenny Leigh
    I've started to feel a bit down today... tired, mild headache, grumpy, jumpy vision. It isn't a strong enough reaction yet for me to think it is truly gluten (yet). I'll continue with the gluten challenge until Tuesday night, when my diet with the dietitian begins. I'll speak to her about it. Yes, the MRT will most certainly NOT diagnosis anyone with...
  2. Jenny Leigh
    I've decided to start a new thread based on my LEAP MRT test results. You can see it here: I'm beginning to think I *might* not be gluten intolerant due to no reaction from a gluten binge after 4 weeks of being completely gluten free... and yes... I'm certain I guarded against all cross contamination even through the holidays. I wonder if 4 weeks was...
  3. Jenny Leigh
    I thought I would start a new topic, as my original thread is getting very long winded and this topic possibly deserves it. Here is my original thread if you would like to view my story, undiagnosed symptoms, and many doctor failures: I will make one more post on that thread leaving a link to this one in case someone needs it to follow along. ...
  4. Jenny Leigh
    Hi Sarah! Thank you for your reply. The newest developments aren't terribly exciting. I've canceled my adrenal and thyroid tests, because I feel too "good". I want my adrenals tested when I'm doing bad. All my vitamins came back normal. Whoopdedoo. I've been gluten free for a few weeks now and feel pretty good in comparison to the usual. I've dropped...
  5. Jenny Leigh

    How are things going? Any more answers?

  6. Jenny Leigh
    Also, I've read a clinical guide to thyroid disease, "Stop the Thyroid Madness", and two gluten books... all of this is making me want to scream at doctors...
  7. Jenny Leigh
    Okay... more test results in. The new stuff is down below and everything is on my profile page. They tested my adrenals and thyroids. Everything came out negative of course. There was some errors made by the lab, so I'm getting it redone on 12/13/10 as well as a more thorough screening of my thyroid (TSH is 4.44 per latest test). The only blip on the radar...
  8. Jenny Leigh

    Frustrated beyond belief

  9. Jenny Leigh
    Okay, got some results. Celiac blood panels are negative. IBD panel is negative. Ultrasound is normal. Follow up with GI doc on 12/13/10 Here are the numbers... reference range in (xxx) Celiac Serology: Anti-Gliadin IgG ELISA (AGA IgG) -- 6.9 U/ml ( < 16.3 U/ml) Anti-Gliadin IgA ELISA (AGA IgA) -- 1.1 U/ml ( < 9.3 U/ml) Anti-Human Tissue...
  10. Jenny Leigh
    Hey everyone! Just an update on my continuing waiting game... still waiting on Celiac & IBD blood tests. As well as ultrasound on the liver/gallbladder. Should be talking to that doctor in about a week or two. A *new* development... I had my first internal medicine dr appt today, and she is currently leaning towards some sort of hypoadrenal disorder...
  11. Jenny Leigh
    Jasondub, Honestly it is like you are reading my mind. Over the past week I've pretty much convinced myself I need to go on an elimination diet because I'm also concerned about yeast, casein, fructose, and nightshades. However, I do not want to do it without a doctor's guidance and blessing. As of right now I have no results to show. I had blood drawn...
  12. Jenny Leigh
    Well that is certainly a relief! I've swung from D to C in one day flat, and other than that feel temporarily cured. I know it is all a ruse and something will make me sick again eventually until I get this fixed.
  13. Jenny Leigh
    When on a gluten filled diet, did you ever have symptoms that were episodic? I have a few, rather minor, but annoying problems when I have a stretch of good days... and then something will set me off. My last relapse/attack was due to eating 2 Chili's mini big mouth bites. I got extremely nauseated and then woke up the next day with vestibular symptoms, and...
  14. Jenny Leigh
    I'm comfortable sharing any and all. I think I'm going to ask for copies of *everything* from my GI doctor this time... We get to wait a little while though. Also toying with the idea of genetic testing if he pushes back on endoscopy (or if insurance doesn't cover it).
  15. Jenny Leigh
    Thank you guys for your encouragement! I went to the GI doctor on Monday, and he has ordered blood tests for Celiac and IBD. Also had an ultrasound of my liver and gallbladder... and stool sample (that was not fun...)probably to check for colitis, parasites, and what not. He said that Celiac was a reasonable judgement call to make, but that it is "really...
  16. Jenny Leigh
    cassP, Thank you for your reply! I believe the majority of the reason no one has even glanced at my GI problems is because they are focusing on my vestibular problems. I asked my ENT if he has ever heard of or noticed a relationship between vestibulopathy (the IBS of the ear world) and Celiac/gluten allergies/any allergies. He said *maybe* Meniere's and...
  17. Jenny Leigh
    Hi, my name is Jenny and this is my first post here... and it seems as though it certainly won't be my last. I am 26 and I have never felt "right". Ever in my life. My health problems came to a head last Christmas, from a sudden vestibular problem that I am still battling. It started to dawn on me that all of my health problems might could be rolled...
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