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About j177

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  1. I was officially diagnosed about 11 months ago and I have followed the gluten-free diet since that time. I have known that I have food issues for 30 years. It was 30 years ago that I developed debilitating wrist pain, symmetrical, like with rheumatoid arthritis. An acupuncture Dr. told me he thought I had food allergies. I did the elimination diet and determined that I had an issue with wheat. The wrist pain (and a bunch of other less debilitating pain) went away dramatically--the improvement was just unbelievable and I could do things again. My hands had become useless, and they completely recovered in probably a few weeks. Other pain in various locations became dramatically better as well. Several months later, I reintroduced wheat, and did not have a return of symptoms. The muscle aches, arthritis like symptoms, have not been much of an issue for me over the last 30 years. But, I developed nasal polyps and asthma. I finally decided to get a blood test because of nagging digestive complaints, the breathing, and knowing that I have a history of some issues with wheat. Blood test was clearly positive, and follow-up biopsy was positive. I have been on a gluten free diet for 11 months. My previous wheat free diet was probably not completely gluten free. I feel much better although I continue to take asthma and sinus medication. In answer to your question, I probably would have been considered to have fibromyalgia 30 years ago, but i don't think there was much talk about fibro then.
  2. j177

    Recently Diagnosised...questions!

    Hi, I am new to the forum, so I hope I am doing everything okay. I assume your doc is a GI doc and that all those tests included a biopsy, or more correctly, an endoscopy? Blood tests have a false negative rate that is too high to be completely reliable. If you truly have had all the right tests, congratulations, you don't have celiac. Many people digest food better and feel better on a gluten free diet. Watch out though, a lot of the gluten free foods can be pretty dense and high in calories.