Hello all --
I'm brand new to the boards here, and brand new to the disease. My 3-year-old had blood work done, and two days ago her screening came back very high for celiac -- I wasn't shocked, as she's so tiny, and had actually lost weight.
It's a little overwhelming now -- ALL this information, but I'm reading! We're just waiting for an appointment with a pediatric GI doc -- of course i couldn't get in for 5 weeks, which is WAY too long. My pediatrician is trying to speed that up, so hopefully Monday we'll have more information. Of course, due to my daughter's celiac and malabsorption issues, she's also anemic as well, which I know will correct itself once we get her on track -- we just can't wait another 5 weeks!
I'm in the Detroit area, so we'll be heading to Children's Hospital with the DMC. I have found a wealth of resources online and locally for stores that sell gluten-free products. I'm having trouble finding any support groups (even online ones) for parents of small children -- especially locally. Anyone here from Michigan?
Also -- what's difficult now is that we are NOT to change anything in her diet so as not to throw off the results when we see the GI specialist. It's very counterintuitive as a parent to continue feeding her gluten when you know that's what's causing her issues. Frustrating!
Any help/advice would be appreciated. I'm still learning, obviously, so I don't know if we'll switch everyone to gluten-free completely. I also have a 5-year-old daughter and an 18-month-old son. This is our first experience with any sort of food issue or health problem or auto-immune disease, so there's a steep learning curve here.
Thanks in advance for your advice --