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Everything posted by Dee777

  1. I was diagnosed with Celiac disease on January 25, 2011. I had been losing a lot of weight, fast. Once going gluten-free, and my innards began to heal, I put it back on. And then some, like 15 pounds MORE than I started with BEFORE I lost weight being ill. I was stuck on the whole "I have Celiacs now, it's going to be impossible to lose the weight, etc. etc. etc..." and I lived with that for about 4 months. I was unhappy how I looked, hated looking into a mirror. Lost my confidence. Then, I realised something. Celiac disease did not take away my body's ability to lose weight. I gave up. Even though I have Celiac disease this same formula holds: Calories in < calories burned. Less input, more output. I gave up eating gluten-free bread, it is more calories than the wheat crap I ate before. Ditto pastas. I eat a slice of bread maybe once a week now. I started online Weight Watchers. I walk, use my exercise bike, play with my dogs in the back yard. I clean my house more vigorously. And, I am losing weight now. Being Celiac didn't stop me from losing weight, THINKING that I couldn't lose weight because I had Celiac's kept me from losing it. Just a thought. Hope it helps someone get over what I was going though, which is what I call the Celiac Weight Dilemma. Commercially prepared gluten-free foods are high in calories. If you eat them, you need to burn them. I now eat tons of fresh fruit, veggies, veggie and chicken stir fries, some beef (lean), and can now evern eat dairy products.
  2. I hate to say this, but drop the carbs and sweets. Lots of fresh fruit will satisfy the "sweet" cravings. Eat more veggies, especially those less starchy ones. Lots of broccoli, cauliflower, carrots, etc. Limit potatoes and corn. Lots of leafy green salads light on the dressing. I had this problem after I was diagnosed too. Lost lots of weight then after going gluten free was deathly ill and lost more weight then put it back on, and then some too. Nothing worked... I wasn't over eating but gained and gained fast. Dropped the breads and sweets and exercised more and now am losing again. Also I feel better, more alert and energetic. I don't LIKE exercising more But, it's the only thing that is working. I joined the online Weight Watchers for guidance to limit portions and it is working. I hope this helps you, good luck.
  3. Dee777

    Can't Loss Weight!

    Have your wife go to her doctor and request a thyroid test... I was just reading yesterday that hypothyroidism (slow thyroid) is VERY common in Celiac patients. And to ask for the T3 and T4 test, NOT the TSH test. I hope this helps. For me, staying away from the processed Gluten Free foods is helping me lose weight. That would be all commercially prepared stuff, including pastas and breads. I eat small amounts of gluten-free oats and brown rice, but mainly lots of vegetables both raw and steamed, lots of fruit (apples, peaches in juice not syrup, pears, bananas, papaya, mango, applesauce etc.) and VERY lean meats and especially skinless chicken breasts. I am not much of a fish eater but I will eat tuna canned in water. Low fat mayo, salad dressings and also eggs, mostly hard boiled, If she is eating too little it could be her body is going into what they call "starvation mode" and hanging onto all the calories it can. I also joined the online version of Weight Watchers which helps keep track of all I eat PLUS my activities, it's amazing and I love it! Hope this helps a bit good luck you her! Dee
  4. So today I went to a trade show and was lured to a booth boasting gluten-free products. Spices and sauces etc. The first item I picked up was a sauce with soy sauce in it. Second ingredient in the soy sauce was wheat. I emailed the company and they snottily replied that the gluten was "fermented" out of the sauce. Can this be? Dee
  5. Yes that would be nice, but would they listen? After all, with Celiac family members and customers who use the products with no. problems obviously they know more than some silly foundation or center!
  6. If anyone is interested in checking out their other gluten-free products just Google the company name, they have them all listed with a big old "gluten-free" for your shopping convenience and peace of mind! Seriously, before I found out I had Celiac, I consumed their stuff and it IS tasty albeit pricey. I couldn't tell you if the gluten-free stuff made me sick because for years EVERYTHING made me sick pretty much AND I never paid attention to the gluten factor because I knew nothing about gluten and the whole Celiac problem. What got me going on this topic with this company was the claim by the representative at the trade show that they found a way to "remove the gluten from the wheat". For about 2.3 seconds my head was spinning, I was beyond elation... I was going to contact my favorite beer brewery, bakeries and soup companies screaming "STOP PRODUCTION! YOU CAN NOW REMOVE THE GLUTEN!!!!" Then, I came back down to Earth with my mother's words echoing in my head... "If it sounds too good to be true dear, then it IS." And now I'm just bitter. Dee
  7. I just feel like a fool... I always assumed that if a company labels a product gluten free (or sugar free, caffeine free, soy free, dairy free, whatEVER) that they must have the testing to back it up before they market it as such? And if they had this testing in place, shouldn't it be available to people like you and I to view to reassure our Celiac selves that we are safe when we consume it? I guess I just have an awful lot to learn!
  8. No kidding, you could make a fortune! In all seriousness though, isn't it frightening what companies can get away with? I would like to know what the big secret is that they will not share any info from their suppliers, or is this common practice amongst food companies? Does anyone have any ideas?
  9. I would like to thank each of you for your replies and opinions, it helps to know there are others out there like myself who have to battle the hidden ingredient war every time we eat, and it also helps that the majority of you have been at it longer than me and are SO much brighter than I am at the moment LOL
  10. Hello again. I have been thinking about Skylark's post about the tests, and sent an email off to Sunset Gourmet this morning. They were prompt with their reply! My email read in part: (I can be rather long winded ) "As you can imagine, I have to be very careful now about what I eat. For my own peace of mind, would it be possible for you to provide me with the results of any independent gluten test results your company has had performed on your products? Thank you!" Their reply, in full: "I am sorry, but we don't manufacture our own products and do not provide our suppliers information to our customers. Dee, if you are not comfortable with our claims I would recommend you decline to use the products you are worried about. We only use large reputable suppliers who go through rigorous testing to comply with US and Canadian standards. All of our ingredients are clearly labeled on our products. The item you are questioning, the Ginger Wasabi, is gluten free but again, if you are not comfortable, please do not use it. I have family members with celiac disease that use this product without problems and have done so for many years.....as do many of our customers. As I'm sure you have noticed, we have a good number of other items that are gluten free with all the ingredient listings listed on the jar or box. Once we have our revamped webiste up in the next few months we will have the ingredient listings for each of the products on the site as well. Regards, Perry Bohn Sunset Gourmet"
  11. I am sorry it has taken me so long to get back here and post the reply I received from Sunset Gourmet. I have copied and pasted it from my email account: "Hi Dee and thank you for your email. Yes, the Ginger Wasabi Teriyaki is a gluten free product. We have carried this product in our line for 4+ years and have never had a problem with it. The Wheat Protien is removed during the fermentation of the Soy Sauce. Regards, Perry Bohn Sunset Gourmet" This is me again, I am listing the ingredients exactly as they appear on the label affixed to the bottle: Ingredients: Sugar, soy sauce (water, wheat, soybeans, salt), pear puree, vinegar, soybean oil, water, ginger puree, corn syrup, candied ginger, garlic, honey, apricot, mustard flour, egg yolks, modified food starch, horseradish, salt, ground ginger, wasabi, artificial flavor, potassium sorbate (as a preservative), xanthan gum and calcium disodium edta added to protect flavor. Their website is sunsetgourmet.ca Their catalog states that this product is gluten free. I wouldn't want to try it based on the wheat in the soy sauce but I am new to this and maybe paranoid? Am I making too much of this? It just really upsets me that if they have wheat as an ingredient and say it's gluten free then people who are new to the gluten free way of life will believe that there is no risk of them becoming ill by consuming it. Oh, this is all so confusing for me, but it doesn't help that I'm having a lot of brain fog lately
  12. Psawyer, that is exactly what I just said to my husband lol
  13. The name of the company is Sunset Gourmet. They claim they have been selling this sauce for over 4 years with "no problems". I will copy and paste his reply in a bit! Thanks for your response!
  14. Oh, you poor thing I am so sorry you are going through this. Hopefully I can give you some words of comfort! I am not a young thing like you, I am 47 years old. However, I was recently diagnosed with Celiac on January 25 of this year. I went gluten free that very day and never once knowingly put another bite of anything containing gluten in my mouth. However, on or about the 3rd of March, something triggered the godawfullest reaction I have ever had. I suffered from incapacitating diarrhea for a solid eight weeks. I couldn't leave my house unless I allowed myself to become totally dehydrated for fear of having an "accident". I was losing a pound or more a day. I would take a mouthful of water and it shot right out my other end. I was going for IV fluid therapy and my doctor was at his wit's end with me. I saw a specialist who could not help me. I seriously believed I was going to die. Wow, it was so bad... I made some wonderful friends in here who suggested several things to me that helped, the most important for me was a very good probiotic. You WILL get better, stick with the gluten free diet. The pain WILL go away, be persistent. It's hard not to be depressed, I know. Sometimes a good cry is what can give us the courage to take a deep breath and lift our chins up and carry on! I am thinking of you, and wishing you well, and do know that it DOES get better, I am proof! I feel ever so much better now, and each time I put a bite of food between my lips I give thanks that I am able to do it lol As my mom is fond of saying (and her mother and HER mother before her) "What doesn't kill us makes us stronger..." (I used to roll my eyes at that saying all the time as a kid growing up but now my kids are going to hear it a lot more coming from me ) Take good care of yourself and get better soon! Dee
  15. Dee777

    I Can't Do This

    I, too, am concerned about the OP and how she is doing. My thoughts are with her every day. Dee
  16. I have had D since the 3rd of April. It doesn't matter what I eat, it doesn't matter what I drink. My diet for the past 3 days has consisted of G2 Gatorade, water, tea, rice crackers, jars of baby food bananas. If I take Imodium it helps control it but I get horrible cramps and bloating. I called the doctor and asked for Lomotil on the 14th and they called in a prescription for me for 3 days worth and that was it. I went tot he doctor for this about 2 weeks ago and I was told it would pass... I am not sure what to do. I mean, aside from seeing the doctor again. Is there something I'm missing? Is there anyone else out there who gets it this bad? I feel like a freak. I mean, I can't even drink and eat a few crackers without having to be 10 feet from the bathroom. I am scared and stressed and my husband has no idea what to do with me anymore... I want my life back! If there is ANYONE out there who has gone through this, and can tell me how they managed the big D, please, please let me know. I am so desperate. Thank you in advance, sorry for being a whiner
  17. Hello! I am new here too, diagnosed January 25/11. I am going through a rather nasty period of illness right now going on 7 weeks with a so far accumulated weight loss of over thirty pounds. I believe this happened because I seem to not be responding to the gluten free diet. That, or I am doing something wrong or getting cross contaminated in some way... I seem to be on the upward swing of things now thank goodness, and thanks to those here who have given me sound advice and their shoulders to cry on! I just wanted to let you know that I am following the "whole foods" diet myself and that along with some excellent probiotics appears to be turning things around for me. Good luck to you, the whole foods is a great idea until you get a handle on the whole thing! Dee
  18. Good day to you, Irish. The goods in the bags are potassium. I received an injection of B-12 apparently, I don't remember this but usually when I have been prone on the hospital bed I tend to sleep and haven't really paid a whole lot of attention to what they have been doing. I asked the nurse about the iron issue and she looked on my file and said that the levels are borderline low and not low enough apparently to warrant intravenous intervention. So, potassium because those levels are apparently low. BUT, I am feeling ever so much better. Eating three small meals a day and a few snacks in between, and for the most part keeping that in. I believe the probiotics are what are making all the difference. I ran out of them yesterday as the pharmacy couldn't get them in as soon as I needed them so was without for 24 hours. I managed to get some today from another place (same brand) and things really preked up considerably from yesterday. Who would have thought a few hundred billion bacteria would make such a difference? My husband tells me we must have a contingency plan in place in case this happens again, bless his heart. I am so lucky he is such a supportive man. I am so lucky to have such supportive friends in here to help me through these tough times, I give you most of the credit for my recovery thus far. I seriously doubt I would be feeling this well if it weren't for your knowledge and advice, so thank you SO much! Irish, you are an English prof with a degree in gastroenterology lol Dee
  19. I will find out for you Irish! A bit of a setback today, just a bit more D than the past few days. I was wondering do you think it was because I was a bit late in taking my probiotic? And do you know how long before I can expect the D to "bulk up"? Sorry to sound so descriptive but its still somewhat watery :-) Oh my I so never expected to ever have so many poop conversations lol
  20. Hello, everyone; Just wanted to stop in quickly as I haven't done so for a few days. Not that I don't think about you all but my goodness when I'm not trying to keep up with my daily things I'm sleeping The anemia is being catered to a la my local hospital. I go in for IV therapy as an outpatient. I have no clue what they are sticking me with but I was starting to feel slightly better. THEN, as I mentioned, the prednisone thing really freaked me out a LOT. I was desperate. So... I went to my local friendly pharmacist who ordered me in some (apparently) very, very good probiotics. These babies work out to be $5.00 per DOSE! Wow. So, a 10 dose box was $50.00 (obviously) and holy cow, I just finished my 6th dose and I can honestly say I managed to eat my husband's birthday supper at my daughter's home last night without too much grief! I don't need to look for the nearest bathroom at all times and calculate the time to the nearest millisecond it would take me to get in there and in position! They are called VSL #3, I have read the controversy on the sweetener that it may / may not have gluten and decided to take my chances with this box and to be honest it is improving how I feel. I will, however, order the unflavored version today and discuss with my pharmacist why he ordered that kind for me when he knows I have celiac. Unless he believes there is no risk of being glutened. Will let you all know the outcome. Bless you all and I hope you all have a marvelous day!
  21. I think I might just run out and buy me a sweet potato for supper tonight then! DH voiced a desire for chili so am surprising him with that, but I don't think I am quite up for that yet :-)
  22. Thank you for taking the time to reply, Shadowicewolf! Unfortunately I do appear to be lactose intolerant and so the cheese probably wouldn't be a good thing for me at this time. But I do thank you for trying LOL I know about cheddar's binding properties, one of my children stole a block of it out of my fridge when she was about 4 years old and had a little snack... a half pound snack lol. She was plugged up for DAYS! She learned a good lesson that time
  23. Good morning! Well, I'm trying to make it be a good morning Regarding your questions, Irish: Blood work WBC counts are normal. I am a little on the anemic side. The probiotics I am taking say they are gluten and dairy free. I am absolutely anal (pun certainly intended) about keeping my kitchen gluten-free, but as my DH is not gluten-free I suppose anything is possible. I store my gluten-free food in a place separate from his food, prepare my foods in a separate area than he does, I have a separate toaster etc.... do not use wooden utensils or cutting boards. A lot of our main meals together are supper, and for that I make a gluten-free meal mainly vegetables and meat. If I make him a gravy to go with the meat it is thickened with gluten-free flour or starch. As for the gastroscopy in September, my GP is as puzzled as you and I are... He sees no reason for it and outright asked me what the heck he is trying to prove with THAT one? My GP also told me he will be working on trying to get me in to see another specialist for another opinion. I told him I was really not worried about seeing another one but he says it is best to make sure he isn't missing something. I truly am leery about the prednisone, and am thinking I might put it off for a few days I am not certain. I am a big baby when it comes to taking meds! As for what I have been putting into myself: I HAD been on vitamins up until about 3 weeks ago, Centrum adult chewables. They are gluten-free. Eating whole foods (by this I mean plain boiled potatoes, carrots, chicken breast... really boring bland stuff) and I completely stopped rice (white and brown), and anything containing any type of grain for the last few days and I THINK this is making a difference. I still have the big D, BUT I don't have the ache anymore when my intestine grumbles and growls at me, so it is the lack of pain that I am taking as a positive reaction to the elimination to grains and flours. It is for this reason I am hopeful that I will be able to maybe settle things without the prednisone. I will give it a couple days and see if there is any improvement. Oh, I am so new at this and I feel absolutely stupid about it all lol. And also I have been eating gluten-free since the day my GP told me the test results which was January 25 of this year. I wish I had had a nice big gluten loaded BLT right before my appointment A triple decker... I appreciate your advice Irish and your humor makes me giggle and sometimes outright laugh. Just wanted you to know that you have managed to make a difference to someone out in this wild vastness called the Web! Raven, your advice is also very much appreciated and I am learning so much from the both of you, in fact from everyone here. So grateful to have stumbled in here! You all have a fabulous day, I am going to go ingest some filtered water and a nice ripe banana and call it breakfast! Dee
  24. O Mighty Wise Ones, here is an update... I just got home from a visit to my GP. Sigh. The man has patience, I will give him that. So my stool samples all came back... normal. My abdominal ultrasound came back... normal. Still have the Big D, we're talking Niagara Falls action. Yesterday I started eating very plain stuff. Small spoonful of plain cooked potato. Half a cooked carrot. The guts didn't seem to be as growly, but still Big D doesn't want to go away. Lots of fluids, and drinking Irish's magic elixir when required However. The GP asked me today about the visit to the gastroenterologist and when I told him he booked me for an endoscopy for the 22 of September he was MAD. So, I asked him why am I not responding to Lomotil or Imodium? His answer was he believes that there is too much inflammation. I am not a doctor, so I just nodded sagely and let him write on my file. Then he told me he wants me to go have the Celiac blood panel done tomorrow morning, and then to start on prednisone. Prednisone frightens me... is there anything else you people know of that would reduce inflammation besides that? Goodness of course as soon as I get home, I turned on the computer and Googled "intestinal inflammation" and "celiac disease uncontrolled by diet" and one of the thigns that pops up? Lymphoma. If the prednisone wasn't bad enough, and having the D for almost 6 weeks straight, the doctors, the exhaustion, not being able to eat, being hungry all the time... I am not ashamed to say I've been in tears the last hour. Ah, I am sorry if this post is all over the place right now. I am highly emotional at the moment (this is also something new to me, I am normally very level headed and a methodical person) and I guess the moment is just running away with me Anyway, thanks for listening... or reading, I guess. Nice to know there are others out there who have an idea of what this is all about.
  25. Thank you, GFinDC. I actually was tossing this around in my mind at 3:00 this morning lol. I thought maybe I would just lay off everything grain or flour and stick to just meat, fish, vegetables and fruit, simple whole foods for a bit and see if that might make a difference? I am going to start with that today, see how it goes. If that is the culprit then so be it. I just want some relief! Thank you for your input, you are all coming up with ideas and suggestions that are most helpful to me. I have been taking the Imodium sporadically since February, mostly when I have to go out somewhere but in all honesty it doesn't do anything for me anyway so I am not going to bother with it anymore either. I do have Lomotil, but rarely take it either. As for the dairy I haven't had anything dairy since the D started and as for soy I will start checking labels for that too! You people are the best! Dee