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  1. Hi, I had a bad accidental glutening incident recently. I purchased a box of chocolate in Poland which looked safe to eat. Stupidly, I assumed if there were gluten ingredients, that would be called out in the allergen warning. That turned out not to be the case, and I had a reaction. My typical symptoms are usually a kidney or bladder infection, depression, anxiety, memory problems, issues with focusing and concentration. All of which I have been experiencing since I ate the chocolate. I'm not sure which ingredient is the culprit, but I'm guessing that a cheap, not fully distilled alcohol was used. Normally, I have no problems with distilled grain alcohols. Just wanted to pass my experience along and hopefully save someone else from the same mistake. I've listed the ingredients below. -Marie Ingredients listed as follows: sugar, corn syrup, cocoa mass, cocoa butter, alcohol, stabilizer (invertase), emulsifiers (soy lecithin, polyglycerol, polyricinoleate, and sorbitan tristearate), artificial flavors. Allergen warning states that it contains soy, and may contain traces of egg or milk.
  2. Hi All, I'm wondering if it's possible to have a reaction to an accidental glutening about a day and a half after eating something? I had an early dinner at a restaurant on Saturday that is the only questionable thing I could have eaten over the last few days (besides that I've only eaten food I've prepared since then). I had a grilled chicken salad, which the waitress assured me was 'safe' to eat. I'm worried that maybe there was cross-contamination or maybe the chicken was marinated in something. My typical gluten symptoms kicked in on Monday morning (very frequent/excessive urination, bladder pain) and lasted most of the day. The last two days I've been lethargic, anxious and very depressed (also typical symptoms for me). The only thing I can pin down as being at all questionable was that chicken salad, but I usually react to gluten within about 3 or so hours of eating it. I haven't had an incident in almost a year though, so maybe my reaction time is getting longer? If anyone has thoughts or similar experiences, please feel free to comment. Thanks! M
  3. Oh cool, I'll have to give the fish oil a try. I'm taking a good hypoallergenic multi right now that has plenty of C in it. It's a lot better now, but still having a terrible burning sensation in my abdomen that sort of comes and goes without a pattern that I can tell. Ugh. I think dairy and eggs are a problem for me all of a sudden, and caffeine seems to make things worse too. Hopefully things will clear up the rest of the way soon. Thanks!
  4. Thanks eatmeat4good! I appreciate your support. Just wondering, how long did it take for your cystitis symptoms to clear up? I've noticed significant improvement, but still not 100% better yet. It's only been 10 days since I ended the gluten challenge, but I still have intermittent symptoms. I've been keeping a food journal, but it's hard to find a pattern. Right now I'm doing a total elimination diet, so basically just eating meat, vegetables, corn and rice based things (some fruit too).
  5. N.B. To anyone following this thread, I subsequently tried a gluten challenge and lasted about 3 days. Suffered anxiety, panic attacks, depression, difficulty concentrating, itchy ears, acne, and a return of the cystitis-like symptoms. I decided to give it up and just live with not knowing whether it's a non-Celiac gluten sensitivity or actually Celiac. The result is still the same, I still need to avoid gluten at all costs! Thanks to all who posted.
  6. Thanks! That's pretty much what I figure, it's now or never. I think I'm going to give it a try and see how it goes. I can always abandon ship and go back to gluten free if it gets too tough.
  7. Thanks for that! It's great to hear that I'm not alone in having symptoms of cystitis. There doesn't seem to be much reported about that particular symptom. I did see quite a lot of improvement (I'd say about 90% better) with the removal of gluten, so I believe in time that should clear up altogether. I'm glad that it did for you. Quick question, do you have a non-celiac gluten intolerance or did you get a diagnosis for Celiac?
  8. Hi and thanks for your reply! Wow, 2-3 months, I don't think I want to do that. My doctor suggested 2 weeks since I haven't been off gluten for that long. Is that possible?
  9. Hi all, This is my first time posting. I've been having some atypical symptoms, most prominently a case of cystitis that wouldn't clear up. I was having terrible problems with urinary frequency, urgency and excessive urination. I also had an extremely uncomfortable burning sensation that was hard to pin down, not sure if it was bladder or lower intestine. It was just below the belly button, but radiated to the left and right sides as well. After a few rounds of antibiotics didn't clear it up, my doctor suggested there might be a food allergy and/or gluten intolerance. I did a urine test for intestinal permeability, and the results showed that I had malabsorption. My doctor diagnosed me with having a gluten intolerance, and in the mean time I had removed gluten from my diet and saw a great improvement for my urinary sypmtoms. I also saw an improvement with concentration, memory, fatigue and depression. I'm at a crossroads now where I'd like to get the blood test for Celiac antibodies (celiac disease runs in my family, I have 5 cousins who are diagnosed). However, I've been off gluten for 3.5 weeks now, and I'm wondering how long I'll need to eat gluten to get accurate results, and if I should even bother putting myself through that. If symptoms return, does that mean my body is producing anti-bodies? Also, if you have a gluten intolerance rather than Celiac, are you still at risk for similar auto-immune problems? Any advice would be really appreciated! Thanks!
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