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staci002

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About staci002

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    Female
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    PA
  1. Hey everyone, I'm failing on the gluten free diet. I have no will power. When I don't eat it I feel soooo much better but why can't I stop? I'm looking for some lunch ideas. I work in a small office with about 10 other girls and we have a bad habit of ordering lunch out everyday. I've tried to order just salads but always end up getting glutened from them. Maybe from cc or who knows? I normally only have coffee for breakfast so by lunch time I'm starving. I need some easy suggestions that I could take to work with me. Please help! Thanks!
  2. Thank you all for your kind words and support. It really helps to know that I'm not the only one going through this. I just went to my doctor today and was explaining to her about how I feel. I told her that I felt much better being off the gluten but its so hard to stick with it. Her reply was "well I don't know if you have to go overboard with it, just stay away from bread, pizza, and pasta." Really??? This is the information she gave me? Anyway, Thanks again. I really do appreciate the support
  3. After being gluten free for almost two months I felt so much better. So why would I not want to stick with it? I'm ashamed of myself. My family has listened to me complain for years about not feeling well. I've been diagnosed with fibromyalgia, thyroid disease, and chronic fatigue syndrome. But guess what?....after being gluten free a lot of my symptoms disappeared. I had energy for the FIRST time in my life. I've spent the majority of my life sleeping, not the way I want to live so what is wrong with me? I spent an entire year with a bloated abdomen but it disappeared after going gluten free. I don't understand myself. I knew it was going to be a drastic change but I was okay with it for about 2 months and then it all changed. I'm so mad at myself and I feel worse than ever. Could it be because I don't have the "official" celiac diagnosis? (My blood test came back negative)But that shouldn't matter if I feel better. Is it because I am sick of reading labels before I put something in my mouth? I feel like I am in mourning. There were times when I felt like crying over not being able to eat a piece of bread! This is ridiculous! Why would I knowingly want to "poison" myself with food? I'm sorry for whining, but has anyone else went through this? How do I get back on track and stay there? Please help! Bloated, miserable, and feeling like a failure, Staci
  4. Hey Everyone! I'm so happy to be a member. What a great site! :)

  5. Anyone From Pa.

    Hey Everyone, I live in Bedford County and work in Blair County
  6. I couldn't agree more! I was also diagnosed with Fibromyalgia and Chronic Fatigue Syndrome. My family doctor sent me to a Fibro specialist three hours from where I live. The information that I got from the specialist shocked me...her exact words.."Fibromyalgia is something you will have for the rest of your life so you are just going to have to learn to deal with it". I couldn't believe my ears, I left there in tears. But now there is hope and I'm beginning to doubt my Fibro diagnosis. Maybe all my symptoms are coming from the gluten. I feel renewed again with hope!
  7. Hi, I just wanted to let you know that you are not alone. I've been going through the same emotions as you. My situation is a little different because I was actually relieved to know what was causing all my problems. That doesn't mean that I was happy about a lifestyle change though. I just started eating gluten free within the past month. Before that I didn't even know what gluten was! You are right...it is unfair, but you have came to the right place. I was so happy to have found this site and forum. There is so much support here and a wealth of information. Go ahead, scream and cry, you are entitled to do so. Just remember to take it one day at a time. I believe it will get easier. Allow yourself time to digest everything and then I'm sure you will be able to get a better handle on it. Sending ((HUGS)) your way. Take Care
  8. Bottom line--Yes the fatigue is caused by gluten. You're symptoms are real. It's not all in your head. Thanks so much for your reply. It's great to know there is hope!!
  9. Eatmeat4good, You really just made my day! It's so helpful to know that I'm not alone. I'm looking forward to hopefully more energy, less fatigue, and making memories with my family instead of sleeping my life away
  10. From the moment I stopped putting gluten filled foods in my mouth my stomach stopped bloating. Could this be? After 2 years of suffering and feeling horrible. After many tests with many different doctors looking at me like I had two heads. Of course though I thought maybe it was just a fluke. Since I had negative blood test and negative biopsy. So..my daughter and I went to the Olive Garden and I ordered pasta(not gluten free). (I had been gluten free for 9 days at this point and had no stomach issues) This was going to be my life changing moment. If it doesn't make me sick then I will belive the doctors, if it does well then I guess I know my own body better than the doctors. As soon as I finished my last bite my stomach was already starting to swell. By the time I walked out I looked 6 months pregnant. The following morning it took all I had to get myself out of bed and drag myself to work. Besides the array of stomach issues, I get headaches and EXTREME fatigue. I was sick for the next 5 days straight. I missed two days of work and when Friday finally rolled around I hit my couch right after work and never moved until Monday morning. This was my ah hah moment!!! Is this really what could be causing my fatigue, muscle aches, and pain? I have not had energy to do much of anything for the past 2 years. I have missed so many days of work that everyday I crossed my fingers that it would't be my last. I feel like I have slept the past 2 years of my life away. Any free time I had was spent sleeping, praying that I finally would have some energy again one day. My question for you all is (even though I know everybody is different)...Was fatigue a major issue for you guys? If you get glutened how many of you suffer with fatigue as a side effect? Thanks so much, Staci
  11. So...I have been gluten free for 8 days now and I feel a tremendous difference! I actually wake up feeling refreshed instead of feeling like I was hit by a truck in my sleep. I have ZERO abdominal bloating, my muscles don't ache, I could go on and on!! Very exciting! My first question is... I called my doctor to find out if he took biopsies when I had my endoscopy done and the answer was yes, although he wouldn't tell me how many. I was wondering because since my blood test came back negative and he told me I didn't have celiac based on the biopsies does that mean that I will never have intestinal damage? This doctor has been telling me all along that he can't find anything wrong with me even though I have an array of problems. He told me that I won't have intestinal damage and if I feel better not eating gluten then just don't eat it. So I asked him.."then what you are telling me is that I am sensitive or intolerant to gluten?" His response.."Could be" My second question...Should I take supplemental vitamins? With my new way of eating I'm afraid that I won't be getting the proper vitamins and minerals that I need. If yes, what should I take or is it better to have blood tests done first to see if I'm low in anything. The last time I was tested my vitamins B & D were both really low. My last question...What is the easiest way to explain to someone that just because I don't have a confirmed dx of celiac that I still want to be completely gluten free because I feel sooooo much better. I already got responses like..well a little bit won't hurt you or it will be okay to cheat every now and then I guess a lot of people just won't understand. I just want to comment on how wonderful I think this website and forums are. I have found a wealth of information and I'm so grateful. Sincerely, Staci
  12. Thank you so much for sharing this lists of snacks. I was starting to panic a little because I'm also new and I had no idea that I could eat these things! Now I'll know where to turn in a pinch when I'm starving at work Thanks!!
  13. Dear Mushroom, Thank you so much for all the information! There is no question that I am starting a Gluten free diet today. I have nothing to lose! I need to do some further research because I understand that gluten can be "hidden" in things. Also, after reading some other posts I understand that sometimes you actually feel worse for a little while when first starting gluten free? I'm worried that I won't know what to eat that will give me a little energy. I'm a HUGE coffee addict but I'm going to try to limit that a little as well. Thanks again and I'm excited to see if this works!
  14. I am brand new and I'm so thankful to have found this site. Forgive me if my post shows up twice. I had it all typed once and then it disappeared! I am welcome to any comments or suggestions. Please help! Here is my story... I'm 38 years old and for 2 years now I have been dealing with an array of problems. I am always very tired and have zero energy. It got so bad that my employer laid me off a year ago so I could try to get control of myself. I am back to work now but only working about 30 hours a week. Most days I have to nap as soon as I get home because I'm so exhausted. For the past year I have been dealing with a lot of stomach issues. The main one being abdominal bloating (I once had a nurse ask me when I was due because she thought I was six months pregnant!) along with abdominal pain, diarrhea, constipation etc. I have been diagnosed with fibromyalgia, CFS, and hypothyroidism. I had my gallbladder removed thinking that was going to solve at least some of my issues but nothing changed. I have muscle and joint aches and feel very depressed. I get migraines, I have noticed hair loss, irritability, panic attacks and lately I've been bruising easily. I've had a colonoscopy, endoscopy, hydrogen breath test (negative) and a ton of blood tests. The colonoscopy showed lymphocystic colitis. My blood test for Celiac was negative. My blood work did show some vitamin deficiencies. I am scheduled for a lactose intolerance test this Friday but to tell you the truth, I'm so tired of being told that nothing is wrong with me. There is something going on and I don't know where else to turn! I'm at my wits end with the gastro doctor. He keeps telling me that he can't find anything and that fibromyalgia can cause abdominal bloating. It bloats shortly after I eat just about anything. By the end of the day I can't even button my jeans. Can I have a negative Celiac test but still be sensitive to gluten? Is there another test that I could ask for or should I just try to go gluten free to see if it makes a difference? I know eating gluten free will be a lifestyle change but I'm at the point where I will do anything to feel better. Where is the best place to find information on gluten and non gluten free food? Please help! Sincerely, Staci
  15. I am so thrilled that I came upon your post! I have been having a lot of the same issues as you have and have been wondering myself if I should go ahead and try a gluten free diet. After reading your post, I too have decided to go gluten free. I'm sure it will be difficult to get used to and I know that gluten is hidden in a lot of things. My biggest problem will be bread and pasta, 2 of my favorites! I wish you the best of luck! Thanks for posting!
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