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About knivhoj

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  1. This is a very interesting thread. I've been gluten free for almost five years (self diagnosed) and staying off gluten seems to improve my immune system. Two years ago I was tested for lyme disease, and the test was negative, so I was happy (not knowing anything about how difficult it is to test for lyme disease). But my doctor did notice a very low IgM value, and several other tests later still showing IgM deficiency. As I understand it, an IgM deficiency can be an indication of an autoimmune disease, so I suggested to my doctor, that he did a celiac test. A couple of months ago I prepared for the test doing a four weeks gluten challenge. My ttg blood test was negative, but my symptoms suggested a non celiac gluten sensitivity. Good to know, and easy for me to return to my gluten free diet. But my symptoms would not go away again, and they got worse after a tick bite. I did not get the bullseye rash, but symptoms were felt while the tick was sucking blood from my leg. I have almost always lived in a high risk area, and have had hundreds of tick bites before this one. The ELISA test for lyme disease is now positive. The interesting thought is, did I get lyme disease because gluten had weakened my immune system, or am I gluten intolerant because I have lyme disease? I am currently doing a three weeks doxycycline treatment, and if it helps, I am willing to try to eat gluten again.
  2. Use pancreatic enzymes with every meal, they will help your intestine to digest fat. Also, fiber is a good thing to add, when gluten is removed from your diet. I'm sure everything will get normal after a while, but after 20 years of misery your intestine must adjust to your new healthy diet.
  3. Hello, I fully understand if you are getting desperate, apparently the digestive tract is a complicated thing, and doctors seems to know very little about it. Your story sounds very much like mine, so let me tell you my experience, and then you can see, if there is something that sounds familiar to your situation. Four years ago, I was treated with antibiotics (Amoxicillin and Cipro). My diverticulitis went away and the treatment was considered a success by my doctor. To me, it was a disaster. I developed intolerance to gluten and six months later, I was unable to digest all types of starch, and I had several food allergies. Like you, I saw undigested food in the stool, dry skin, loud bowel sounds, gas, bloating, lines on my fingernails and large amount of stool. I had candida infection in my mouth and several other places on the skin, so my doctor suggested a treatment (Diflucan and Nystatin). It helped in the mouth and on the skin, but had no effect in the guts. Syclovir and ThreeLac had no effect either. My stool turned yellow and contained a lot of fat. After two years of being gluten free, my doctor did the blood tests for celiac and also did a biopsy. Both were of course negative, but an apirate taken from the small intestine showed a bacterial overgrowth. It's all friendly bacteria, but they should not be in the small intestine. The cure is more antibiotics, and trust me, I was really scared of candida, when I started the treatment. I bought lots of probiotics to take during and after treatment. The treatment worked wonders, and the new candida infection on my skin was treatable. Many doctors are using a simple Hydrogen Breath Test to diagnose a bacterial overgrowth, but beware, celiac or gluten intolerance may give a false positive result in this test. I just recently did a gluten tolerance test for a blood test for celiac. The result was negative, but the effect of gluten in my body was very strong, so I have an official diagnosis of non celiac gluten intolerance. The interesting thing is, after ingesting gluten for four weeks, I again see the signs of a bacterial overgrowth in my small intestine, and antibiotics have once again become necessary. I hope this will be of some kind of help.
  4. First of all I would like to thank everyone on this forum. All the questions and qualified answers have been a wonderful help and comfort during my recent gluten challenge, as I sort of lost confidence in my GI specialist, after he told me, his recommendation for "real" celiac patients is to enjoy gluten products during vacations, it wouldn't do them any harm. He does not think I am a celiac, but agreed to do blood work and endoscopy, after I've been eating gluten for four weeks. From 2005 to 2007 I was treated with antibiotics for many different reasons, such as pneumonia, sinus infections, urinary tract infections (I'm a male, so this is not normal) and skin infections. I was also treated for diverticulitis and adrenal fatigue, candida and several incidents of dehydration. In addition to all the infections, I suffered a lot of anxiety. I really felt sick, and back in 2007 I started on a gluten free diet without any doctors advice or diagnosis of any kind, and I have achieved pretty good results, except from one thing
  5. GI symptoms, brain fog, weight loss, vitamin D deficiency - have you been tested for SIBO, Small Intestine Bacterial Overgrowth? Your symptoms sounds a lot like mine, and then a gluten free diet will not help you, as the symptoms will worsen after ingesting any kind of sugars. Vitamin D deficiency does not come from dropping dairy products, I have lived happily for fifty years without dairy, and only had problems with vitamin D for the last couple of years. Bacterial overgrowth may prevent your body from absorbing vitamin D. The diagnosis of SIBO is made quickly with a two hour hydrogen breath test in your doctors office, and the cure is antibiotics for ten days. You will feel much better within a week. SIBO and celiac are frequently seen together, and SIBO should always be suspected, if a gluten free diet is without effect.
  6. Yes, I have experienced exactly the same. Before I knew about my gluten sensitivity, I experienced several uti's that were treated with antibiotics. During each treatment, I was free from diarrhea and bloating, and every time I stopped the treatment, my gastrointestinal symptoms and my food intolerances came back. My GI specialist suspected SIBO and we did a hydrogen breath test and an endoscopy
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