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hikermom4

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by hikermom4

  1. Thanks ravenwoodglass, that is good info. I too am trying to convince others to test. I am also trying to establish the family history for my son's doctors, so they will test him. He is 6 and already went through way too many tests at age 2 (apparently not for celiac), all inconclusive. My sister's blood work was negative, but her endo showed extensive...
  2. Hi all, I keep reading about the possibility of false negative tests after one has been on the gluten-free diet and then does the testing. My GI doc recommended adding gluten back in for 6 weeks then doing the blood work and endo. Has anyone had this work? I am willing to do it to get a proper diagnosis, because I am sick of being told that my symptoms...
  3. Wow, how did you get your money back? I would love to do the same, since it wasn't cheap, and I feel like a sucker for having spent $$ on this and other supplements, which I really can't afford, because I was desperate to feel better.
  4. Yes, I took it. I tested positive for wheat year ago by way of a traditional skin test. Recently I decided to eliminate wheat completely (which my doctors had never advised me to do...go figure) because I had been feeling fatigued for a long time. After doing so, I felt great for a few weeks, then began to feel dramatically worse and hade new GI symptoms...
  5. Hi all, I am seeking a doctor who will assess us for food intolerances/celiac. My PCP diagnosed me with acid reflux and is content with that. Son has been to GI specialists at a children's hospital; treated with Pdeiasure to gain weight from age 2-4 then discharged, saying they didn't know what was wrong. I had asked for allergy testing and they looked...
  6. Hello! I am new to this forum. I have been having GI symptoms for a while, long story as usual. I have an appt to see the GI specialist in 2 weeks; have been gluten-free 3 weeks. If he orders an endo, do you think it will be a false neg? How long does it take for gluten to clear the system? I am 51 and have been wheat free 5 months, but completely...
  7. Kaiasmom, another possibility to consider is PANDAS, which is Pediatric Autoimmune Neurological Disorder After Strep. This is a rather newly identified disorder which begins in childhood, after strep infection (sometimes throat and sometimes elsewhere). The immune system is affected in a way that brings about neurological symptoms; separation anxiety and...
  8. I don't know if it is possible to get cc from the dishwasher, but this week I noticed residue in our glasses after the wash cycle was over. My husband cleaned out the drain, which had a plastic straw cover and an onion skin in it. This was keeping food residue from being rinsed down the drain. Now our dishes are clean and I don't worry about getting cc...
  9. Thanks to you all for sharing your experiences. I have been to several doctors over the past few years about the cough, fatigue, and GI symptoms. They would usually hand me a bag of acid inhibitors, allergy meds and nasal spray, which worked in the short run but didn't really cure anything. In January I had a bout of constipation which made me feel like...
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