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seattlejoy

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Everything posted by seattlejoy

  1. seattlejoy
    Thanks for asking! I don't see a tTG IgG. I feel better than I did before diagnosis but I definitely don't feel great. I have had all my food sensitivities and allergies ran (IgG and IgE). I am seeing a specialist, Dr. Wangen next month.
  2. seattlejoy
    I was diagnosed with Celiac after blood and biopsy in May 2012. I keep mulling over my December results after being obsessively gluten free. My whole family and household is gluten free, I cook from scratch and rarely ever eat out unless I have spoken to manager and chef. I'm very aware of hidden gluten and believe I am doing a great job but my Gliadin...
  3. seattlejoy
    Did you ever make any progress on this? I am still searchin for someone that is better educated to help me navigate getting my body back on track. Would you mind sharing names of any MD or ND that you may have come across? Of course, anyone else that might be able to share their pracitioners would be appreciated as well!
  4. seattlejoy
    I missed this post earlier this year. Thanks for that advice. I will try that. Most of what she gave me is liquid or powder- liquid vitamin D, calcium and fish oil, powdered probiotics, powdered L-glutamine, vitamin b injections.... But I do have a few other capsules for iron and such.
  5. seattlejoy
    Where can I get information about the small study? I have a 10 month old and am terrified to ignite this disease in her so I haven't introduced gluten. I don't know what to do.
  6. seattlejoy
    Wouldn't it be AMAZING to have a research center started here? I am in the same boat as you. I had my biopsy at Eastside Gastro and wasn't impressed with what followed my diagnosis- 3 sheets of paper. One with a list of gluten foods, one page printed from the internet with Celiac Disease Foundation's website (I think), and the last was a small list of...
  7. seattlejoy
    I am looking for an informational video to email to my friends and family. I was recently diagnosed Celiac. The videos I see on YouTube are mostly about symptoms and very little information about living with Celiac Disease, etc. I am hoping to explain what the disease is, how important it is for me to not have gluten in my diet and how dangerous cross...
  8. seattlejoy
    Thanks for asking. The Dr. wouldn't run the genetic test. He ordered the TTG and the Endomysial AB with reflex to titer and said that if my son (16 yrs old) has Celiac, that will come back positive. I tried to argue that my research showed that someone can test negative and if they carry the gene, it can be "activated" by a stressful event or virus later...
  9. seattlejoy
    I just found out last week that I have Celiac Disease. I am taking my son into the Doctor here shortly to get him tested. I am afraid that the doctor will not run all the tests necessary though. I would take my son to my Naturopath but she is booked out weeks and I am impatient to know. Is it reasonable for me to demand a test for the gene? If so...
  10. seattlejoy
    Thank you all! I feel so lucky to have found this out. If I'm going to have a disease, this is the one to have. 100% treated by food? Are you kidding me? No drugs, therapy, procedures, surgeries... Instead of always treating all these other ailments I have which are ALL Celiac symptoms, I can actually heal myself at home. Potentially heal all the ailments...
  11. seattlejoy
    I'm 99% sure I have Celiacs but I need some confirmation help because I know it is easy to misread tests. You see, my new naturopath is out of town for a week and I kind of pressured the receptionist to fax me my bloodwork from my initial appointment a week ago because I didn't want to wait 2 weeks to find out if my anemia is better and how my thyroid is...
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