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shrty331

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by shrty331

  1. shrty331
    We don't really need the Dx, I just feel like she has it, we've had all the tests and I just need someone with MD after their name to look at all of the results and say "Yep, It's Celiac." She is going to remain gluten free. Even at 9 she knows if she eats gluten it's going to hurt. I just feel like people take your reaction to gluten more seriously if...
  2. shrty331
    Ok, so wanted to add an update and see what everyone thinks now.... She saw my son's gastro, who asked us to send her pathology to his hospital to review. They reviewed it and the report says: "Duodenum, bulb, biopsy: Benign small intestinal mucosa with moderate villous flattening and mild to moderate epithelial inflammation. (See comment) Comment...
  3. shrty331
    Thank you for your response. I am making an appt with my sons gastro before we start the drug or change her diet. She has had a good response to being gluten free for the past few weeks. Was really dreading having to gluten her on purpose. I feel better hearing from someone else that it is probably celiacs.
  4. shrty331
    Yep... same doctor. The sons new doctor says he could be gluten intolerant, so he's been gluten free for the past few weeks. I am going to make an appt for my daughter with the new doc now that I know I'm not crazy for thinking the doctor is wrong.
  5. shrty331
    My daughter had a biopsy done and the results say: Duodenum, bulb, mucosal biopsy -moderate infiltration of surface epithilium by lymphocytes and focal damage to epithelial cells. -Focal infiltration of surface and lamina propria by neutrophils. NOTE. the doudenal bulb sections show normal architecture but are inflamed. No clinical information was provided...
  6. shrty331
    Thanks for the reply! "Low Carb" just means it has a reduced number of carbohydrates compared to the regular version. They are still made with wheat. "Wheat Gluten" is the first ingredient for the bake mix I used to make the pancakes and whole wheat flour is listed for the wraps. So do you think I am eating enough or should I try to add some more? Really...
  7. shrty331
    Two of my kids may have celiacs (positive blood tests). My blood work came back fine,which I figured it would because I've been low carb for over a year and really don't eat much gluten. My gastro is sending me for an endoscopy in June to check for celiacs, and didn't seem concerned that I wasn't eating much gluten. After reading on here and elsewhere...
  8. shrty331
    The husband and I have both been tested and both came back negative... we went to a gastro and she is sending us both for endoscopies in june. I have been eating low carb, so almost no gluten for over a year, so I wasn't surprised that mine was negative. Been eating as much low carb gluten as I can for the past month and will continue until the biopsy...
  9. shrty331
    We have had the other two tested by the pediatrician. The youngest was fine. My daughter (8 years old) had "positive A" listed for endomysial IGA. And the AB titer was 1:5. The other tests were all normal. She goes to the same gastro as my son on Thursday. I am guessing they will order an endoscopy/biopsy for her as well...
  10. shrty331
    My six year old son was recently tested for celiacs. His gliadin deamidated IGA was >100. Gliadin deamidated IGG, (tTg) AB IGG, (tTg) AB IGA were negative. He was sent for an endoscopy and biopsy and the doctor said he saw mild scalloping. We were pretty sure we finally had an answer to why he was dropping growth curves, can't concentrate at school and...
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