Jump to content

rami

Advanced Members
 View Profile  See their activity

  • Posts

    24

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rami

  1. rami
    We started our gluten free journey in August 2012 when my now 9 year old son was diagnosed with celiac disease. I was thankful for this board and all of the support I received at a time when I was feeling overwhelmed and depressed thinking about my son's future. I thought our family would never be able to adjust to our new lifestyle and everyone here reassured...
  2. rami
    We are traveling for the first time since my son's celiac diagnosis and I am extremely nervous and overwhelmed by the prospect of it. We will be traveling to the Orange County, California area for a wedding and while we will be staying with family members, we will also be out and about much of the time we are there. I have already made reservations at Ariel...
  3. rami
    We just received the 6-month follow-up bloodwork results for my 8.5 year old son and I must say I am so relieved because they are normal. He was diagnosed via bloodwork and intestinal biopsy in August 2012, and at the time his TTG IGA was 66 (ref range <=19), his TTG IGG was 14 (which was a high normal, ref range <=19), and his total IGA was 143 (ref...
  4. rami
    My son is extremely picky so lunches can be a challenge. I feel like we are constantly repeating and he doesn't get much variety but he seems to be happy with that. We received permission from the school principal to use the microwave so that did allow us to expand the menu, however, he usually prefers not to microwave because it gives him less time to eat...
  5. rami
    I was just wondering if it is possible to never develop immediately noticeable symptoms after beginning a gluten free diet and then ingesting gluten? My son's only truly noticeable symptom of celiac is short stature so it is impossible for us to know if he has been glutened. I have read on this forum that many "symptomless" celiacs did indeed develop symptoms...
  6. rami
    Is the 7.2 value her Hemoglobin A1C value and do you know if they also performed a fasting blood sugar test? I had gestational diabetes when I was pregnant with all three of my kids and have pre-diabetes so I am fairly familiar with diabetes. I'm not sure if there is a link between the low iron and blood sugar but I know that I had to take an iron supplement...
  7. rami
    So my 8.5 year old son has been gluten free after his celiac diagnosis for approximately 4 months. His most noticeable symptom is short stature. Since placing him on the gluten free diet my husband and I have been obsessive about his poop (apparently we need to get a life) and while he usually only poops once a day as opposed to the 4-5 times he used to go...
  8. rami
    Thank you so much for the information. My husband and I are feeling overwhelmed by all of this. We had just gotten used to the idea of celiac, so now we have to adjust to the new diagnosis. I am thankful that we know what is going on, but a little stressed by all of it as well. I will definitely be ordering the buzzy because he absolutely hates shots and...
  9. rami
    I'm sure many of you might know my story, but thought I would post it again just in case. About a year ago my 8.5 year old son was referred to a pediactric endocrinologist because of short stature. Since about age 4 he has not not followed his growth curve and eventually fell off of the charts. His only symptom was short stature, but the endocrinologist ran...
  10. rami
    We received a note yesterday that all of the 3rd grade classes at my son's school will be making gingerbread houses on a specific day in December. My husband and I talked about allowing him to participate as long as he doesn't eat any of it, but then I thought it would be even better if he could make a gluten free gingerbread house of his own. Anyone have...
  11. rami
    I wanted to let you know that we are in the same boat! My son has been seeing a pediatric endocrinologist due to growth issues since March. My husband and I are not tall, but the concern with my son was that he was no longer following his growth curve. He dropped off the charts after about 4 years of age when he had consistently been in the 15-25 percentile...
  12. rami
    So my newly diagnosed 8-year old would like to spend the night at his friend's house this weekend and I don't know how to feel about it. I hate to deprive him of some of the things I loved the most as a kid but I am terrified about this. I figured I could prepare his dinner and breakfast so there are no concerns but don't want to scare his friend's parents...
  13. rami
    We need to take popsicles to school tomorrow for my 8-year old son. Any ideas as to which brands are gluten free? Thanks!
  14. rami
    Thank you for your help! We did take him to the doctor because he just wouldn't settle down and she said that it is not uncommon to develop GI symptoms after being on a gluten free diet when you are exposed to gluten. So she said that he either got some gluten or he has a stomach bug that seems to be going around. Time will tell because she said if it was...
  15. rami
    My 8 year old son has been gluten free for about 5 weeks since being diagnosed with Celiac. He did not really have any GI symptoms but does have short stature so it is difficult to know how he is actually responding to the diet. For dinner last night he had gluten free meat ravioli and veggies. For dessert he had strawberries and bananas dipped in ghirardelli...
  16. rami
    My 8-year old son was recently diagnosed with Celiac disease after + bloodwork and biopsy. After recommendations from his doctor my husband and I, as well as our other two children were also tested. When the test was ordered for the children it included a ttg IGA, ttg IGG, and a total IGA. However, the test ordered for my husband and I by two different doctors...
  17. rami
    Does anyone know the average time it takes for an 8-year old's intestines to heal after starting a gluten free diet and would it be too soon to notice changes in my son after 2.5 weeks gluten free? We have noticed that his appetite has increased exponentially so I'm not sure if this is a good or bad sign. We usually have to battle with him to finish any of...
  18. rami
    We just got the celiac panel results back for my 9 year old son and 27 month old daughter and I have a couple questions that I was hoping you all might have experience with 9 year old ttg IgA. 5 Standard range <=19 ttg IgG. 2 Standard range <=19 Total IgA. 284 Standard range 37-186 27 month old (using same standard range...
  19. rami
    I am struggling with the decision of a gluten-free house. My husband and I, as well as our two other children still need to be tested so I can't cut gluten completely out yet but maybe once I know the status of the rest of the family my decision will be easier. Although after this morning it should be a no-brainer. While I am thankful that my son doesn't...
  20. rami
    Thanks for the response! It is so nice to know that we are not alone because although our families have been very supportive, most everyone else doesn't think it is a big deal. I was speaking with my son's principal yesterday to explain everything to her and she said "don't worry, we have lot's of kids with wheat allergies". I went on to explain that Celiac...
  21. rami
    Thank you so much for your reply! It is reassuring to know that my feelings are normal. My husband does not seem as affected, I think he is just happy to finally have an answer as to why our son is not growing. I too have thought about birthday parties, school parties, play dates, and how it will be so different for him. I'm trying not to dwell on it because...
  22. rami
    Thanks for the encouragement, and you are so right we have a wonderful life ahead of us!
  23. rami
    Thank you so much for the encouragement! My emotions have calmed a bit, but I still feel like I am on a very unpleasant roller coaster ride. I actually have two other children a 9 year old son and a 2 year old daughter so this has been very challenging. The GI doc did recommend we get the other two, as well as, myself and my husband tested and we are currently...
  24. rami
    After months of endless doctor's appointments my 8 year old son has finally been diagnosed with Celiac. His only symptom as far as we can tell is short stature and had we not gone to a an endocrinologist to investigate the reason for his slow growth we would have never suspected Celiac. The endocrinologist ordered a series of blood tests including the Celiac...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.