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sapereaude

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Everything posted by sapereaude

  1. sapereaude

    ARCHIVED Celiac Specialists In Boston

    sapereaude replied to Hornet's topic in Doctors

    I had my appointment with Dr. Kelly last week. I was very pleased with her. She said that even if it isn't celiac there are a number of food intolerances that are not well understood yet. She ordered an endoscopy/colonscopy and an u/s as well as a bunch of blood tests, including the TTG IgA, DGP, Total IgA.
  2. sapereaude

    ARCHIVED Celiac Specialists In Boston

    sapereaude replied to Hornet's topic in Doctors

    Thanks so much for that feedback. I called yesterday and asked if they had any earlier openings (my appointment is the 18th) and they said only with Dr. Sheth - for this week. I think its pretty telling when a doctor is so available and yet their colleagues are booking months out... That is what I'm dealing with too - my Vit D was 13, and that was...
  3. sapereaude
    they did say they would put me on the cancellation list, and I'll keep calling each day to see if an earlier slot opens up.
  4. sapereaude
    The docs office just called and said they weren't supposed to put anyone in that appointment time and so I'm back to Oct 18th. arg, I was so looking forward to possibly getting things figured out.
  5. sapereaude
    I called the BIDMC celiac center back and asked if they had any earlier appointments open up (mine was for October 18th) and they had one for tomorrow morning! So relieved. Can anyone help with what sorts of things I should ask / request, etc? I'm bringing my husband too if he can make it.
  6. sapereaude
    I am very sensitive to perfumes and have that exact reaction - sinus headache. I've eliminated as much perfume from my life as possible and my regular headaches are now much rarer. I can actually tell what i'm sensitive to, as soon as I breath it in my sinuses hurt. The laundry detergent aisle in the grocery store and BJs is extremely difficult for me...
  7. sapereaude
    Hmm, not sure that is it, it feels like the back of one of the cervical vertebrae is sticking out much further than the rest, I can feel around it on all sides. For me it isn't as severe as the picture of the hump (then again I can't exactly see it properly either), but it hurts regularly. Could be something completely different. I feel like I have so...
  8. sapereaude
    I'm looking into celiac for myself, but I also am wondering if my son might have it too. We have been having attention, anxiety and other behavior issues with him. He is in Montessori school actually, which makes his attention issues that much more puzzling, because he has so much control over what he does, it isn't like he's being asked to listen to the...
  9. sapereaude
    Is it hard or soft tissue? I have that too - it feels like a bump in my spine is sticking out, and often hurts - pain radiates up and down my spine and out to my shoulders from that spot, I feel like I am hunching too much and need to stand up straighter or lean my head back. I always figured I had bad posture, not sure what it might be though.
  10. sapereaude
    I don't think we've checked my Vit K specifically, but the doc ran a CBC and I believe that includes my platelet count and that came back 'normal' (again, I haven't gotten the specific numbers) I've seen lupus come up in a few of my attempts at figuring out my symptoms. I guess I hadn't considered it as seriously because I don't have as many of the primary...
  11. sapereaude
    I would be happy to hear any suggestions anyone has for other things (besides gluten) that could be causing these issues. One thing that is concerning me is the bruising seems to be getting worse. If I end up scratching an itch too much, I have a bruise the next day.
  12. sapereaude
    I have had my thyroid tested so many times. My TSH levels were pretty much smack dab in the middle of the reference range last time I had them tested. I might pursue that too if this road doesn't help. I missed the call from my doctor's office friday afternoon, they said on the voicemail my labs came back, Vitamin D was still low (it was only a few days...
  13. sapereaude

    ARCHIVED Celiac Specialists In Boston

    sapereaude replied to Hornet's topic in Doctors

    Any experience with Dr. Susan Kelly at BIDMC? I made an appointment there, they gave me Dr. Sheth (with an appointment for Monday on Friday) who I saw a lot of bad experiences with mentioned on this forum (wonder why he's so available? ;P ) So I called back and I switched and they gave me Dr. Susan Kelly, but I have to wait a month. I would rather do...
  14. sapereaude
    It's very hard, because I'm an outgoing person and so when talking to folks I can rally - I don't seem tired, because I'm an animated speaker, etc. But when I sit down to get something done, or try to do housework, I just can't. It's aggravating. I decided to heck with this crap - I made an appointment at the Beth Israel Celiac Center. I'm tired of...
  15. sapereaude
    Yes, I need to ask for copies I haven't done that with this doc. I have had some gastro symptoms, but they never seemed like a huge problem. Every so often I will get a sudden bout of diarrhea which seems to be something I ate, like my body is trying to desperately purge it. No fever or other symptoms, no one else gets it, so it isn't a food poisoning...
  16. sapereaude
    So I've been battling a myriad of health issues for years. In the last five years I've had worsening depression, anxiety & ADD, which I now take medication for. Fatigue has crept up, it comes and goes but I'm now what I'd call extremely fatigued about a quarter of the time and somewhat fatigued 1/2 of the time. I never had allergies until a few years...
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