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Kat L

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kat L

  1. Kat L
    I would be A-OK if I only had a problem with lactose and not with casein (e.g., could eat aged cheeses but not fresh milk or ice cream). I actually randomly came across some articles while browsing Wikipedia that say that the peptides that result from digestion of casein and gluten proteins actually have an opioid effect on the brain (see wiki articles on...
  2. Kat L
    Thanks so much for all of the info and for sharing your own symptoms. I'm actually really surprised that so many things can potentially cause villous atrophy other than celiac, but it makes sense. Since it's so common for people to have similar reactions to gluten, dairy, and soy it's probably best if I avoid it all. I think will do a little bit more testing...
  3. Kat L
    I've been off of gluten since December 2012, and have been experimenting with dairy-free for the last month and a half. I went off of dairy because I kept getting gluteny-reactions despite being VERY careful and really not taking any risks. Since being off of dairy, I haven't had any of my hyper-sensitive gluten reactions. I have done 2 dairy challenges...
  4. Kat L
    I'm looking for some good storage containers to keep the various gluten-free flours organized. The POP containers from OXO seem pretty good, but they're pretty pricey: Open Original Shared Link I was thinking of using chalkboard re-writable labels to label them and keep them straight, although I'd kind of like to keep the original package label with them...
  5. Kat L
    I just got my HLA-DQ typing results back, and I'm not entirely sure how to interpret them. I know that I'm positive for HLA-DQ8 and therefore am genetically predisposed to the potentially developing celiac. But, what I want to know is if there's anything else that can be gleaned from the results, including whether I have 1 or 2 copies of the genes? My...
  6. Kat L
    Yes, there was wheat grass, barley grass, and wheat sprouts in the Odwalla. Like I said, it was a bonehead thing not to check.
  7. Kat L
    I got my biopsy results the other day, and they were normal (6 samples, normal). Other than a mild Schatzki ring and sliding hiatal hernia, the doc said everything was normal and nothing would explain any symptom other than a little heartburn. I, however, am not convinced. I've stopped eating gluten and will give it a month or two, and see how many of...
  8. Kat L
    Yes, my doc did give me a printout of some scope pictures. There's nothing in these pictures that looks like you describe, though the copies I have are black and white. I'll get the full report after the biopsy results are in. To have EE, wouldn't I also have elevated levels of eosinophils in my blood? The results of a blood test from October show that...
  9. Kat L
    I had my EGD today and it'll be about a week before I get the biopsy results back. But, the doc did give me her observations. Apparently I have a sliding hiatal hernia and a Schatzki ring (mild, non-obstructing) - and everything else looked normal. I haven't been able to really talk to my doc about it yet, because I was pretty out of it and didn't have...
  10. Kat L
    Thanks everyone! I contacted my doctor's office and they confirmed that she will only be doing an upper GI and that the MoviPrep was completely in error. I also asked them to double-check the scheduling with the surgecenter and what they've sent to my insurance company. My endoscopy isn't scheduled until December 28th, so they should be able to get...
  11. Kat L
    When I called to schedule my endoscopy with my doctor's scheduling nurse, she asked me whether I wanted movie prep or something else. I didn't know what she was talking about and the doc hadn't mentioned anything like this to me. I had to check on something with my insurance before scheduling the procedure. When I called back later that afternoon she said...
  12. Kat L
    Ruby - I'm a very similar situation to you right now. I'm fairly sure at this point that I have a gluten problem (though, the blood tests I had were negative) and I'm counting down the days until my endoscopy (39 long bloaty days to go). I also put together a bucket list of my favorite gluteny foods, partially to have them one last time and partially...
  13. Kat L
    I hadn't realized that the B12 range was so much broader than it should be. I figured that it was likely, and really most vitamin results near the bottom of the "normal" ranges are generally suspect. Re: thyroid disease, I've actually had my thyroid levels checked every year for the past 6 years (at my annual gyno exam and every time a doc tries to figure...
  14. Kat L
    I asked my doctor about the additional tests, and her response is basically that the tests I've already had have the highest specificity for celiac and therefore provide as much information as we're going to get. Her full response is below: All these tests exist and could be run, but I am not sure they would add much to where we already are in your diagnostic...
  15. Kat L
    CassP and Lisa, Thank you for the advice! I'll email my doc and ask about the additional tests and how many biopsies she'd do. I'll either be scheduling the endoscopy or finding another doc for a 2nd opinion. Here are my recent vitamin results. After I get the low vit D result, I saw an endocrinologist who ruled out parathyroid disease. Component...
  16. Kat L
    Lisa - I've had a number of generalized symptoms for years (fatigue, joint pain, muscle pain, tingling/numbness in my arms and legs, gas, frequent urination, heartburn, brain fog, heat/cold intolerance, nausea, trouble sleeping, overweight and don't lose weight on a strict 1200-1400 calorie diet...sound familiar?). I've gone to the doc a few times and have...
  17. Kat L
    Below are the blood tests my primary care doctor ran for celiac, and the results. She also ran a number of vitamin levels as well. I know there's the HLA-DQ typing, but other than that are there any other blood tests for celiac that I should ask her about? Or is this pretty much it? I have a hard time translating between the various abbreviations/shorthands...
  18. Kat L
    I have my first visit to a gastroenterologist in 3 weeks and I'm wondering what to expect? I saw my GP a little over a week ago and (without boring you with all of my symptoms and history) she said it sure sounded like gluten sensitivity and ran the bloodwork for celiac. The bloodwork came back negative (results below) but she said she still thinks...
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