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Darkfire Ann

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  1. Darkfire Ann

    ARCHIVED Makeup

    Darkfire Ann replied to GFreeMO's topic in Dermatitis Herpetiformis

    I have luck with physicians formula. Also, kids makeup, made in USA, certified gluten free, at Walmart no less. 90% sale after xmas. I buy all I need for the year.
  2. Darkfire Ann
    I am working on this myself. It is almost impossible but it can be done. Apparently most salt is NO iodine in stuff you buy. But sea salt isn't. I bleed so bad it scares me. I thought I was dying the first time my leg bled it was running into the toilet I was scared to death. The Derm was like....Oh it happens..>WHAT?
  3. Darkfire Ann
    yah Lidex did nothing for me. That is the Floucininide. Super potent steroids did nada. I got stretch marks now le sigh. No relief but my rash went crazy when I stopped using them and I tapered off too.
  4. Darkfire Ann
    I can get Aloe spears longer than my arm all year round for .99 cents a pop. I was using them before but it didn't seem to help. I might try again and put them in the fridge to cool me off. Thanks for the reminder I am having a bad night. And to the scratch to the root. Well it works for me on some of them. I mean dig past the blood and they weep clear...
  5. Darkfire Ann
    I am also menopausal/post menopausal dec 28th marks my 3yr surgery date of my hyster/rso. What I thought were Menopausal symptoms may be low Iron. Some of the temperature issues and flashes can be my low Iron. So I cannot honestly make any sense out of it only to say when the sun goes down the monster wakes up.
  6. Darkfire Ann
    I am also one that lost much of her enamel. The Dentist told me my GI doc was a nut case he could tell I had Celiac just by my enamel. I had no cavities ever until I got two. Still good teeth but my enamel is shot and to him that was the big clue. I have icky stains but they are harmless just ugly. The baking soda works good and contrary to belief it isn...
  7. Darkfire Ann
    I am plying him with video games and lots of alone boyz time. I know what that is like. When he has had enough and needs to decompress I am alone emotionally, no boxer in my corner and I see what a person with no support system has to fight with and I feel blessed when he helps again. Sadly, my illnesses gave him a stress ulcer. He HAS to take time away or...
  8. Darkfire Ann
    The best thing is NO plaque on my tongue bar. See before we did that no amount of brushing kept my tongue bar clean. I had to remove the piercing and soak it. Now when I clean the steel it doesn't look like it has a tarter problem. Also no more fuzzy teeth. Who knew just cleaning your tongue would do all that. I still am not sure what to say I am having...
  9. Darkfire Ann
    Ok I do typically use EVO, Blue Mountain, and Wellness brands for our Cats so I was using grain free cat foods, but Iams is kinda crap so no more of that. thanks for the doctor thread I am not sure what I want to say yet. Gonna think on that. Thank you again. You are a the biggest blessing to me, thank you. Ditto on the messy tooth brushing...we use a tongue...
  10. Darkfire Ann
    I learned this three years ago....again my own mother purposely sabotages me. My husband called her down and that was the last time I saw her. She wanted me to eat cake, it was my birthday....after all. Hubs went bat s$#& and she was like I'm her Mom and he was like and I've been at her bedside for the last decade where have you been? Friends or supposed...
  11. Darkfire Ann
    I found out Remonds Real Salt NO iodine, it says right on the bag that legal disclaimer. "This salt does not supply Iodine a necessary blah blah blah" So it's safe.
  12. Darkfire Ann
    RE: Vaseline Nursery Jelly is what we found and it had a scent, that made me sick to my stomach. The doctor said Aquaphor and wanted me to bathe in it but it's $16 for a 1lb tub that will last a few days. So I am using Aquaphor on the obviously crusted parts. The Doctor gave me sample tubes. Hubs is using it on my back. I am also using Eucerin intensive repair...
  13. Darkfire Ann
    I feel for you and your son and wonder why he was in pain? They shot me full of lidocaine. I was numb in the area until midnight each time. I felt nothing. I am so sorry you went through this with your son. I will tell you it may be rare but I have my baby records and I was 1 month and five days old when I got DH on my bottom from barley. I am on Dapsone...
  14. Darkfire Ann
    just saw this going to bookmark them thank you.
  15. Darkfire Ann
    I didn't understand I guess what I was reading on the thyca? site. I still suffer from the brain fog. Not been clean too long. I get the iodine thing now. I didn't before. I found a nondairy, certified gluten free, creamer I seem to be ok with. Morning ritual preserved and no GERD issues. Time will tell on the CC part. I haven't had BSM in over a week and...
  16. Darkfire Ann
    /hugs thank you every one of you. People are even arguing this is Lymes, or a Brown Recluse rash it's pathetic people will not accept BIG AG did this to me not BIG PHARMA or a bug. My own family thinks I am fine and able to make a 20hr each way road trip to a funeral. Yes it's my last grand parent but I cannot do this. I am not fit to fly and certainly not...
  17. Darkfire Ann
    maybe it is just night time and I take the Dapsone at night. It does help the itch some.
  18. Darkfire Ann
    I have GERD so I cannot drink black coffee it kills me but I dont want to give it up. I do not drink sweet coffee. It's one of the only things I have left. I went the RAW route, with Dairy. Did not work. I went the farmers market route. No change except the cost was triple. I mean we did RAW dairy for two years. Local good dairy for three years. NO change...
  19. Darkfire Ann
    Part of it, YES. It could have made my spine weak but I have 5 MRI's confirming cervical spinal stenosis requiring surgery and am at 9MM in one part of my spinal canal I get to 5MM and I have no choice, they will do the surgery with or without my consent as I won't be able to walk. I have five+ herniated discs one is a vertical herniation too not the normal...
  20. Darkfire Ann
    It's worse at night. SO MUCH WORSE. The Dapsone makes it HURT more than itch. It takes the itch down but then it burns, stings and I am generally white knuckling it all night. My skin is so pissed it wants it's steroids. I knew, I didn't care. I just have to ride this part out before I can find out what I am really reacting to. My legs hurt so bad and are...
  21. Darkfire Ann
    We do not own a toaster, or anything like that. I do not use soap and shampoo. I make my own. I am also allergic to corn, rice, and other NON Celiac issues so there is no fake bread in my life. I use Remonds Real Salt, Pink Salt and Black Salt, not sure if they are safe. Gotta work on getting the skin off my potatoes. NO sea food. I am allergic to shrimp...
  22. Darkfire Ann
    NOTE: PHOTOS IN THIS POST WERE REMOVED TO COMPLY WITH GOOGLE'S AD POLICIES. GOOGLE CONSIDERS PICTURES OF DH RASHES ON HANDS TO BE IN VIOLATION OF THEIR AD POLICY ON "SHOCKING CONTENT." Day One of Dapsone Nov 27th 2012 12/14/2012 Left Hand, after shower, moisturized. 12/14/2012 Right Hand, after shower, moisturized. They are spreading...
  23. Darkfire Ann
    My iron is so low I was having cramps that contorted my legs. I woke up screaming one morning. The roundish rash on my right hand came from me biting myself to stop from screaming long enough to tell the husband to get me hot water, Epsom salts, towels and the tablet so I could Google I kept the left veggie drawer from my fridge by the bed with cool Epsom...
  24. Darkfire Ann
    I am fighting with this as a chronic pain patient in severe pain and trying to manage. Not to mention scarfing down vit c pills with my iron pills because I am in bad shape iron wise. Due to dye allergies and Tylenol allergies all my meds are prescription. At this point I do not know what to do. One step at a time. No more steroid creams, letting my body...
  25. Darkfire Ann
    I am really exhausted but wanted to say 3 yrs ago when they did the endo I was 9 months clean. I went on Elavil. Gained 150 lbs and binged on everything in sight. Everything, then stopped. I'll explain more when I am feeling better. HUGS. I was not clean with the IFA biopsy but I was on ALOT of steroids. at least 15gr a day. 10 80gr tubes a month or another...
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