gypsyrosenfmommy
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by gypsyrosenfmommy
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ARCHIVED While Tests Say No I Think Ds Has Celiac.
gypsyrosenfmommy replied to gypsyrosenfmommy's topic in Parents, Friends and Loved Ones of Celiacs
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ARCHIVED While Tests Say No I Think Ds Has Celiac.
gypsyrosenfmommy replied to gypsyrosenfmommy's topic in Parents, Friends and Loved Ones of Celiacs
So a bit of an update for everyone. I took DS off gluten since I posted this. His belly has gone down DRAMATICLY and his skin is clearing up some. He still bloats like this down from time to time and he still has a SMALL constantly bloated belly but NOTHING like before. I know lactose intolerence and Celiac can be an issue so I am going to try and keep him... -
ARCHIVED While Tests Say No I Think Ds Has Celiac.
gypsyrosenfmommy replied to gypsyrosenfmommy's topic in Parents, Friends and Loved Ones of Celiacs
I He is my handsome little man. He is hard headed just like me and looks just like his father. I agree he looks like a poster child for the illness. His belly gets even worse than that. There are times at night he just cries and cries though not so much anymore. When he does I give him a warm bath and then lay in bed with him rubbing his belly... -
ARCHIVED While Tests Say No I Think Ds Has Celiac.
gypsyrosenfmommy replied to gypsyrosenfmommy's topic in Parents, Friends and Loved Ones of Celiacs
We just moved. The soonest they can get a new patient in is 2 months . Yes a nero follows NF. He has already had his yearly exame 3 months ago. -
ARCHIVED While Tests Say No I Think Ds Has Celiac.
gypsyrosenfmommy replied to gypsyrosenfmommy's topic in Parents, Friends and Loved Ones of Celiacs
The problem is getting a referance to a pedi GI. My old pedi refused to do it. (So glad we moved!). Insurance wont pay and the pedi GI if there is no referral. -
ARCHIVED While Tests Say No I Think Ds Has Celiac.
gypsyrosenfmommy replied to gypsyrosenfmommy's topic in Parents, Friends and Loved Ones of Celiacs
I agree 100% that something just is not right. He also has Neurofibromatosis type 1 and I know it's slightly more common in people with it than a "normal" person. I feel like ripping my hair out sometimes. All the Drs i have spoken to besides his old alergist seems to think I am over dramatizing it because he is growing right. -
ARCHIVED While Tests Say No I Think Ds Has Celiac.
gypsyrosenfmommy posted a topic in Parents, Friends and Loved Ones of Celiacs
Last year DS wsa 2 years old. He was tested for celiac (it was a basic test and did not do the DNA test) and it came back negative. He was tested by his Pedi. I honestly still feel he has it. (or that and something else is going on) He bloats SOOO bad, has gritty poop, he is VERY irritable (the slightest thing bothers him), his skin is very dry and he gets... -
ARCHIVED Will The House Have To Be Gluten Free?
gypsyrosenfmommy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If my son has celiac will we have to remove all gluten from the house? I hear many people do. -
ARCHIVED Possible Celiac
gypsyrosenfmommy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My 2 year old just had blood drawn for a comprehensive test. We should hear back tomorow. He gets very bloted, gassy, has diareaoften, wakes up with gas pains crying and very foul poops. I know they say 25% of people with our geneti disorder (nerofibromatosis) has it. I also have bowl issues. Such as i often have mucus in my bm. Often that is all i poop...