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spirit22

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by spirit22

  1. spirit22
    Thanks for the suggestion, I will head over there.
  2. spirit22
    SPinch03 ~ I am on the journey with you. Had an endo with a colonoscopy on May 8th. All biopsies were "normal" and my doc took quite a few & then requested they be "sliced". Took the transglutaminase blood tests previously to having the endo (while still eating gluten). IGA was elevated, IGG was in normal range. Asked for genetic marker...
  3. spirit22
    GFinDC ~ Thanks for your reply. I ran out of the Jarrow IBS & need to replenish with something. I'll check into both that you posted.
  4. spirit22
    Hi GFinDC ~ Thanks so much for the great info & links! I really appreciate it! I'm a bit confused about the probiotics. There are so many out there & I've heard I should be taking one with at least 7 strains. My gastro's P.A. gave me samples of VSL#3 but warned me they are very expensive to purchase. I haven't taken any of them. I did try...
  5. spirit22
    Sammykins ~ I definitely understand your stance against doing a gluten challenge! From my experience, medical docs don't seem to know much at all about nutrition. I don't remember ever having a doctor attempt to discuss food with me. When I spoke to my primary this week, I let her know that I was experiencing constipation (again) after I had been gluten...
  6. spirit22
    FruitEnthusiast ~ I agree with you wholeheartedly! The majority of the medical field is always touting "more fiber". One thing I wonder about doctors is how much training they receive (or how much they read) on nutrition. And dieticians/nutritionists seem to be a small crowd in the medical field. I truly wish we had more of them!
  7. spirit22
    Sammykins ~ Thanks so much for your post. It's interesting about the soluble vs insoluble fiber. I receive info from an IBS site & sometimes drink their fennel tea & also take their acacia powder (soluble fiber). The gal that runs the site swears that IBS people need soluble fiber and very little insoluble fiber. She's been purporting this for years...
  8. spirit22
    Hi dilettantesteph ~ So sorry about your son's negative reaction to the endo. Glad he was able to heal. Thanks for sending good health wishes. Since I'm eating way more fiber now and drinking lots of water, I'm s-l-o-w-l-y coming around. Oh, and moving and getting more exercise seems to be helping too. I hope your son's health is stable now.
  9. spirit22
    Hi SuzyWong ~ Yes, it does help to know that others are (or have been) in the same boat. I'm really sorry you've had such a hard go of it. I can't imagine having either of those procedures done without sedation! I'm not a fan of being put out, but I will say that this time they used propyphal (not sure of the spelling) on me and it worked like a charm. No...
  10. spirit22
    FruitEnthusiast ~ Thanks! I haven't heard about the water philosophy you noted but it sounds like something good to implement. Like you, I am staying away from processed foods & now know (experienced it the hard way) to stay away from the chips. I like salt better than sweets, so the chips have been hard to give up. Like you, once I start eating them...
  11. spirit22
    To answer your question, I eat a small amount of cheese once a week. Thanks for your suggestions. I've added in high-fiber, exercise, and tons of water over the past four days & it seems to be helping with the IBS-C problem. My stomach is feeling much better after having gone gluten-free, for which I am very thankful! Again, thanks for your posts...
  12. spirit22
    Naturechick ~ Thanks for your advice. I really appreciate you taking the time to post.
  13. spirit22
    Hi cylinglady ~ For the first three weeks of eating gluten-free, I wasn't aware that I was becoming badly constipated. I found out the hard way that the rices have very little fiber in them & that was mostly what I was eating, along with rice pastas. This week, however, I have been eating tons of veggies & fruit, along with flaxseed & taking...
  14. spirit22
    Hi Naturechick ~ Thanks for the suggestion about checking my vitamin B-12. I have an upcoming appointment with my primary doc & will inquire about being tested.
  15. spirit22
    I was diagnosed with IBS-constipation about 40 years ago. Last year, my bowels changed and I went from constipation to diarrhea. This May (2014) I underwent an endoscopy for celiac along with a 10-year re-check colonoscopy (my first one was normal except for evidence of IBS). The prep was agonizing for me and I've yet to feel healthy since those two procedures...
  16. spirit22
    Hi ~ I am new here and am one of those who underwent the celiac panel (tested 8 points high on the tTG IGA but negative on the rest of the panel), underwent endoscopic biopies (several of them, each one cut into smaller pieces by the pathologist) and received a negative diagnosis of celiac. I asked to re-take the celiac panel a week after my endoscopy. Since...
  17. spirit22
    Hi SuzyWong ~ I'm sorry you have had such a rough time of it since your endoscopy. I had one done (with a colonoscopy) on May 8, 2014. It took me about five days to get to feeling better. I have IBS and have heard the prep is especially hard for those of us with that. It was my second colonoscopy and I don't remember having any problems recuperating from...
  18. spirit22
    Thanks again, Fenrir, for your reply. From what I've read here & other places, it does seem it's not too likely to receive a false-positive. That's why I am not ready to accept the P.A.'s answer about the biopsy. I don't want to have celiac but at the same time, I want to know conclusively whether I have it or not (if at all possible).
  19. spirit22
    UPDATE: I received the results from my colonoscopy & endoscopy from last week. Everything is normal. Celiac biopsies came back as "normal". H. Pylori came back as "negative". The doc's office (at my request) is mailing me an Rx to repeat the Celiac Panel. I've requested it be done again as I came in positive on the tTG IGA. The doc's P.A. did not give...
  20. spirit22
    UPDATE: I had the endoscopy & colonoscopy last Thursday (5/8/14). My biopsies came back yesterday (5/12/14) with readings of negative for celiac and negative for H. Pylori bacteria. I've put a call into my doc's office asking to re-take the Celiac Panel b/c my tTG IGA was positive several weeks ago. Is it fairly common for a tTG IGA to show up as a...
  21. spirit22
    Fenrir ~ Thank you for the explanation. I'm glad you were able to get a diagnosis and I hope you're feeling better. I'm still trying to get a definitive answer about celiac.
  22. spirit22
  23. spirit22
    Fenrir ~ What is Marsh grade 3b?
  24. spirit22
    luvrdo ~ I'm so sorry you're still having the bowel problems. Are there any other tests you can try?
  25. spirit22
    Yes, it sounds like a pretty good report. Congrats! How long have you been gluten-free?
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