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Andrea-P

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Andrea-P

  1. Andrea-P
    They do not have a Facebook page that I cannot find
  2. Andrea-P
    I tried the form on their website (Open Original Shared Link) but when I hit the submit button it tells me it is not working right now. I think the captcha thing is messed up. I would really like to get in touch with them but couldn't find any other way to do it. I was just hoping that someone on here would know someone.
  3. Andrea-P
    I tried using the contact form on the Race website but it doesn't appear to work. Hoping someone might see this here.... I just heard about your race from the Chicago Tribune and am extremely sad to find out that we are gone this weekend and will not be able to attend. My daughter who is 9, was diagnosed about a year ago and is so sad and feels isolated...
  4. Andrea-P
    I always check the Epi-Pen site before filling a prescription Avi-Q is another one that does free or 0$ copay too. He is only on the environmental for the drops (gets one drop under tongue 3x a day for the last 2 years). I really do wish the food ones would work and I am really hoping they figure them out soon since my son's nut allergy is pretty extreme...
  5. Andrea-P
    We have so many epi-pens it is insane. My daughter is also allergic to bee stings and manages to get stung every summer! Thank god we have never had to use any yet. As for my son's allergy testing: he sees an ENT (the most popular one in our area). I assure you he is license and I trust him more than any of the other doctors - he is anything buy holistic...
  6. Andrea-P
    I know people have concerns with the acuracies of EVA screening and you are correct - these were not backed by blood RAST testing or scratch testing for her. I personally really believe in this form of testing and can confirm my own results through EVA and blood test that I went through. I am allergic to every nut (proven through blood and scratch testing...
  7. Andrea-P
    I should have specified that she is partial Paleo with rice and black beans. She is not a meat eater (just doesn't like it much unless it is in a form of a nugget) so I added black beans and rice back in awhile back. As for her numbers, that is a hard one. Apparently her Pedictrician ran a different test so we could not compaire it to the last one (34.1 IgA...
  8. Andrea-P
    I will try and make this as short as possible. After 2 years and three peditrician's we finally got the diagnoises of Celiac through blood and biopsy in May of last year. Since there are so many allergies in the house (my son and I have asthma and many alleriges) we decided to make the entire house gluten-free. Anyway, my daughter (8) did great the first...
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