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celiacmom55

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celiacmom55 last won the day on January 1 2015

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About celiacmom55

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  1. Mother in laws are good at finding fault with their daughter in laws. Mine was a pro. My kids cannot take communion in church when they are home, but then again I haven't discussed it with the priest either. But even if they did have a gluten free option, if it was kept in the same plate as the glutenous wafer, they couldn't have it. I am not confident the priest is well informed on cross contamination issues. Unless you or a family member are dealing with gluten issues, you probably don't understand all that is involved.
  2. I have so much sympathy for everyone on this board. I am not celiac, but 2 of my 3 adult children are. It took about 10 yrs for my oldest to get diagnosed, it really made me lose faith in doctors that with all her symptoms, no one suggested it as a possibility for so long, I think they thought she was a hypochondriac. I think it's because there are so many various types of symptoms, there is no hard and fast list of celiac symptoms that everyone will get. My son and daughter both have some of the same symptoms, and some are different. As a child, my son absolutely loved bread and I used to bake him homemade bread all the time. How guilty I feel about that now, if only I had known back then that I was giving him poison for his health. Its ok to feel a bit sorry for yourself, its a hassle to deal with and there is no magic pill to take to make it go away. But, over time as you get your diet under control it will get better. Unfortunately, my son has found that since he's been avoiding gluten for about 2 yrs, he is even more sensitive to it when he does get accidentally glutened. But that doesn't happen too often, thank goodness because he is very strict about his diet and lifestyle. You will get a feeling of empowerment once you get it under control, this disease will affect your life in some ways but it does not have to manage it.
  3. My son is a super sensitive celiac, cross contamination gets him every time. When he comes home for a visit, my husband and I make our home 100% gluten free for a good week before the visit. We have separate utensils and cookware that are only used for gluten free cooking too. (husband and I are not celiac, 2 of my 3 kids are though) I know some people think we are over the top cautious but they don't understand all the finer points of extreme sensitivity. And frankly, I don't care if they do think I am a gluten fanatic, my kid's health is more important to me than what others may think. I do the holiday dinners, so that I can control the food. My kids do appreciate it though, it makes me so happy to know they are going home feeling well, instead of sick. One tiny bit of gluten makes my son sick for 2 weeks. Every day of a celiac's life involves planning around eating, how to avoid getting glutened, and I want my kids to not have that worry when they visit home. In the past, although I tried to make gluten free meals, I did screw up with the cross contamination and he got sick. I felt so bad for that, but I have spent a good bit of time educating myself and I finally have it nailed!
  4. I got my son some Endangered Species chocolate bars for his Christmas stocking. He's had them before, they come in several flavors and he likes them. They were the only ones I could find that are certified gluten free. And, as an added bonus, 10% of the profit is donated to endangered species wildlife, something our family supports. No, they are not truffles, but if you crave chocolate and want to know its safe, they are a good choice.
  5. Well, its my kids that are celiac, not me but they both told me that before they were diagnosed, it was very difficult. They get the gastro stuff, but also the brain fog, fatigue, etc. I give everyone dealing with this problem so much credit, I am in awe of how they persevere when so much of their lives are spent trying to plan around food. Just knowing the cause of all the symptoms was a great relief to my kids and myself. To avoid accidental glutening, my son, who is more sensitive than my daughter, just does not dine out at all unless its a dedicated gluten free restaurant. He packs a lunch, snacks, wherever he goes. My daughter will dine out but always chooses from the gluten free menu. They do occasionally get glutened, but not often because they've learned the hard way that strict avoidance is the only way to manage it. They never eat foods at buffet style restaurants or parties, just too much chance that the utensils have been used in both gluten and non gluten dishes. And unless the person preparing the food is very educated about gluten issues, you cannot be 100% sure that the dishes they make don't contain some trace amounts of gluten, such as in sauces and other things that you don't think of as containing any wheat type products. You can manage to get and keep a job, just be vigilant about gluten, read every label, ask questions and don't abe afraid to say "no thanks" to a food offering if you cannot be sure of what is in it. As long as you are strict about avoiding gluten, I think you can feel as healthy and well as a non celiac, so you should be able to keep a job. My kids are employed in demanding careers, but they don't let their celiac get in the way of that, as their jobs are their livelihood. .
  6. My 2 adult children are celiacs, my youngest son is not (so far). For my daughter, as long as she avoids gluten and eats off a gluten free menu, she is usually fine. For my older son, he is super sensitive, cross contamination issues are a big deal for him. He's learned to deal with it, although as I'm sure everyone on this forum understands, it has a huge impact on his life. He doesn't dine out at all, unless it is at a dedicated gluten free restaurant. As a mother, if he accidentally get glutened while visiting, I feel so guilty. This Christmas I decided that while he was home, the household would be totally gluten free and it worked out well. Today he goes home, and feels great. I went to great lengths to ensure it, bought a few new pots and pans, utensils, etc which are dedicated to only non gluten foods, etc.However, my younger son, who is usually very understanding of his sibling's gluten problems, gave me a hard time, saying it was unfair that everyone had to be "deprived" of gluten. Deprived? Really? I was so upset it brought me to tears. Deprivation is something my older kids deal with every day, especially my son. Although my younger son did apologize, it still upsets me. If you cannot rely on your own family to understand, how can you hope for others outside the family to? Sorry I just had to vent. Sorry to those who got glutened over the holiday, people just don't understand how prevalent gluten is in so many things. This is why I do all the holiday meals in my family, although I don't have celiac, my kids do and I learn everything I can about it.
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