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dwhite42

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Everything posted by dwhite42

  1. dwhite42
    Its on 24th July. I am going to ask about the tests and say that some people have failed all others but them and see what he says.
  2. dwhite42
    I cannot understand with all the tests that were ordered also why the tTG IgG. deaminated gliadin peptides tests (DGP IgA and DGP IgG) wasn't. I am not sure whether they do them in the UK. Just wondering if any UK people have had these done? All they seem to talk about is all the other tests. I will bring this up when I see him, just trying to gather...
  3. dwhite42
    Open Original Shared Link Thanks for that. All very confusing these two types! B12 and thyroid all are normal, so nothing springing up there. I have uploaded another test sheet, some of the tests are duplicate but there is a "coeliac screen" one. Now my daughter was 0.60 and the range is 0.0-0.69. Would anybody say that she's nearer the top end, also...
  4. dwhite42
  5. dwhite42
    Thank you very much, that was very helpful. We only have a couple of other tests to come in so am hoping something will come up but it seems unlikely at the moment!
  6. dwhite42
    Thanks for that Squirming. I totally agree with what you say. I do feel there is two things going on with the skin. We are back to the derm on Saturday and will follow her procedures. It has helped with the oozing and its nice to have something to wash with. When we go I shall push saying that ultimately my aim is for a biopsy of the skin to rule it...
  7. dwhite42
    Thanks very much!
  8. dwhite42
    Open Original Shared Link Well I have updated my library with some of the blood tests results that are back (still awaiting vit D and blood screen and also thyroid from the GP). Just really confused it it all. Especially the Total bilirubin and CRP results (are they normal??!!). Also not sure what the difference between IgA Immunoglobulins is and IGA...
  9. dwhite42
    Thanks you!
  10. dwhite42
    All thanks
  11. dwhite42
    Thanks very much.
  12. dwhite42
    I have read a couple of things about Dapsone and am not overly sure I want to go down that route. I am hoping that if she stops eating it that it would clear, (that could just be really silly hopeful thinking on my part) but I am also not sure how long that would be either. Would an antibiotic be better than Dapsone to start on? What an EVIL thing it is...
  13. dwhite42
    Gosh that sounds so painful. I will try that. I just keep thinking, so wonder she has been so miserable recently!
  14. dwhite42
    Thanks Squirming Itch, this week has been an emotional whirlwind, sleep seems like a distant memory, for both of us! I was so worried about her and her lips etc that I have slept in with her for the past two nights, she only wakes me up otherwise needing more medication! Today has thankfully be cooler and they seem to have reached their peak. I have not...
  15. dwhite42
    Thanks very much, thats good to hear that there can be both! Thought I was going extra mad for a minute, can't wait for Saturday but shouldn't get my hopes up too much as things just seem to take soooooooo long!
  16. dwhite42
    Well things have been a busy week. My daughter has come out in spots from head to toe, in her hair to on her face with lips being swollen. Now a lot of the spots look more like hives. She has been back to the doctors and they have given her some antibiotics for her leg and taken a swab and also she is on antihistamines. She has had a dreadful couple of...
  17. dwhite42
  18. dwhite42
    Thanks for that, feel like I am slowly going insane with all these weird and wonderful things that keep happening
  19. dwhite42
    Thanks for looking at the photos. It does start of small, the hand and leg pictures are kind of how it has progressed over the last couple of weeks, and boy has it progressed this week! The elbows have pretty much healed but there are a couple of little bits that are fighting to flare again. It does group together how you say and then lead to the BIG burn...
  20. dwhite42
    OOh and the lady GP who we saw this week ordered some of the ones the consultant did but also Thyroid Function Tests, B12 & Folate. She is having them done on Tuesday so hoping I will have some of the results back at the end of next week. I like this lady as she actually added Vitiligo down on the blood test sheet and didn't try to tell me it was...
  21. dwhite42
    I have stopped her having oat baths and double checking any topical products. She has not see a neurologist, what sort of tests do they conduct, I may have to add it to my list! I just find everything takes so long, although from more and more I am reading it looks like everyone has had the same problems with time and brick walls!
  22. dwhite42
    Open Original Shared Link Thanks Squirming Itch. You have been such a great help. I have made a photo bucket account. I hope this is how you do it!!!! Open Original Shared Link
  23. dwhite42
    I have pressed this a couple of times but when they "google" it states it can be as late as 15, after that then they start looking for reasons. I feel that my daughters are being suppressed, she has the moods and hormones but nothing happens. As you say children are so much younger nowadays. I started mine when I was 12. I have an 11 year old daughter...
  24. dwhite42
    No elaboration on classic DH, I said I had lots of pictures put he didn't ask to see! I think from her history of having hives and going back on gluten after 6 months and was fine made up his mind. He's the second person saying about her scratching, which as you say, IT ITCHES! It sounds so like hers with the fluid liquid coming off. She puts plasters...
  25. dwhite42
    Thank you Nicole. It seems harder for people to take seriously as she is a girl and is at "that age"
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