pasqualeb
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Latest Celiac Disease News & Research:
Everything posted by pasqualeb
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Might want to see a rheumatologist also, as if this is an autoimmune disease they might be better equipped to to handle and treat. I was finally diagnosed after a biopsy on one of my quads. Condition known as IBM or inclusion body myositis . Good luck Good luck
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Yes, thank you and I am seeing a neurologist , getting a script for a steroid followed by some PT when inflammation goes down. Good luck to you pasquale
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Sorry to hear about your situation , I have been diagnosed with a condition known as Polymyositis, treatable with steroids and PT thanks again, good luck pasquale
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Thank you for that information, I have learned however I have a condition called Polymyositis, treatable with steroids and then some PT. Pasquale
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Got it….
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Will do, excellent information, thank you Pasquale
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So sorry to hear that, the strange thing with my legs is I have no pain at all but stairs are a big problem. Walking so far has been ok. I just had a biopsy and waiting for results, but the thinking is I might have polymytisis which causes muscle atrophy. Good luck to you . Pasquale
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I am 80 years old and until recently very active,tennis, golf, gardening and walking several miles 3-4 times per week. I understand age related muscle loss but I believe this is something else, I need to hold on to a railing going both up and down the stairs or one of my legs will give out, causing less than good results for me…
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Thank you so much for that information, I never thought of that as a possibility but i will look into further . Thanks again, Pasquale
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I was diagnosed in 2002, my daughter also in the same year.within the last 2years I have noticed my legs were getting weaker, specifically in my thighs. They are now in atrophy☹️ been to several doctors with really no diagnosis yet. Wondering if it might be related to Celiac. Has anyone else had a similar experience? Thank you, Pasquale
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Many thanks, good information pasquale
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The response I received was helpful, essentially felt better that this was not unique to our case. A little peace of mind is this gave our family and that’s always welcome. Pasquale
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Okay, thanks again
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Yes, I was diagnosed in 2002, I was asking for my son who has very high enzymes and he also has Celiac. His doctor put him on regiment or cortisone as well as being gluten-free.....
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Thank you for your input. We're you taking any steroids to bring the numbers down? Thanks,Pasquale
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Has anyone had very high liver enzyme readings and has Celiac. thank you, Pasquale
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ARCHIVED Good bread
pasqualeb replied to plumbago's topic in Gluten-Free Foods, Products, Shopping & Medications
Ah yes, gluten-free bread, not a good comparison to those of us who knew and enjoyed the other stuff before Celiac. But they have come a long way since I was diagnosed in 2001. It really is a matter of personal preference, I prefer Udis millet and chia but the cost is high. There are more and more local baberys doing gluten-free bread, some very good... -
ARCHIVED Delallo gluten-free Pasta- Was My Package Contaminated?
pasqualeb replied to Ashland's topic in Gluten-Free Foods, Products, Shopping & Medications
thank you for your response, the gluten problem however was with my daughter not me , please see the original post. Quite sure however no gluten from any other source was present...pasquale -
ARCHIVED fermentation to remove gluten?
pasqualeb replied to pasqualeb's topic in Gluten-Free Foods, Products, Shopping & Medications
thank you, will check it out...pasquale -
ARCHIVED Delallo gluten-free Pasta- Was My Package Contaminated?
pasqualeb replied to Ashland's topic in Gluten-Free Foods, Products, Shopping & Medications
Hello Miss Stephanie, No reaction to that brand yet. I die get violently sick from Tates cookies,but mostly my fault, pkg. for gluten-free and gluten cookies looks pretty much the same, they do say gluten free on the good ones, but easy to confuse. Good news however, they are changing the pkg. for gluten-free cookies soon......pasquale -
ARCHIVED fermentation to remove gluten?
pasqualeb posted a topic in Gluten-Free Foods, Products, Shopping & Medications
After reading the label on the bottle of New Chapter bone strength tablets I see it contains wheat but they maintain that through a fermentation process they render it gluten-free and our FDA approves. Everything I have ever read said distillation will remove gluten from the final product but not fermentation. Any thoughts would be welcome thanks, pasquale -
Allergic Reaction To Glue Used After Surgery
pasqualeb commented on pasqualeb's blog entry in pasqualeb's Blog
thanks, I will have that on my medical records going forward...hope not to have any more surgeries........but one never knows,,,,,pasquale -
I had surgery two weeks ago for my parathyroid and elevated levels of calcium in blood tests. Surgery went very well except within 24 hours I developed a strong allergic reaction at the incision site. The area got very red , swollen and began to weep quite a bit. Sleep became impossible,went to the doctor and he removed the glue that is commonly used to cover...
