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dalek100

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Everything posted by dalek100

  1. dalek100
    Hi, I am sorry for again posting back here and for being a massive pain and nuisance to everyone. I have had a follow-up appointment and they have put me on steroids and something called Creon. I have been advised to go back on the gluten free diet as well. My small intenstines are very inflammed. I was wondering that after being on the digestive...
  2. dalek100
    Hi, I am deeply sorry for being a nuisance and posting back on this forum. I posted a while back as previously I was under investigation for Celiac Disease. I had an anti-ttg anti-body test that came back positive at 23 H and following this a range of investigations have been carried out. I am still feeling at a loss with everything as I have had the...
  3. dalek100
    Hi, I am very sorry for being a pain by posting on here again. I was wondering if I could ask for some advice? I had my endoscopy done earlier this evening and the consultant said everything looked normal and said he has taken plenty of D2 biopsies. I was wondering does this mean that Celiac is unlikely now? I am worried in case my problems will never...
  4. dalek100
    Hi, Thank you for your help. I was just wondering if when you had your endoscopy if they detected it by the camera or was it the biopsies that shown it? Sorry to be a nuisance.
  5. dalek100
    Hi, I am very sorry to be a big nuisance on here. I am scheduled for an endoscopy on Tuesday and isn't until later in the day. I was wondering if anyone had any advice on whether I should eat a lot of gluten the night before or whether it doesn't matter? Thank you for everyone's help on this forum.
  6. dalek100
    Thank you for all your help with this. I was also wondering if I could ask and hope you don't mind, will they be able to tell Celiac on the camera or will it be down to the biopsies they take? My endoscopy is on the 9th, and I am worried about not having enough gluten to show.
  7. dalek100
    Hi, I am deeply sorry for posting on here again. As I am scheduled for an Endoscopy on the 9th May, I wanted to make sure that my gluten intake is being kept the same. I was wondering if the ingredients to these products contain gluten even though dextrose is in one of them? Open Original Shared Link Chicken Breast Fillet (60%), Water...
  8. dalek100
    Hi, I am very sorry for posting back again. I have visited the consultant today and he said that the TTG is mildly elevated - does this mean it is a positive? The consultant said that as I tested negative for Celiac on three previous times, he thinks something else could be going on so came home worrying even more. The consultant has organised an endoscopy...
  9. dalek100
    Thank you so much for all the help and support you have given me. I cannot thank you enough. I am ever so sorry to post again here but wondered if I could check with you about this. When at work, I very rarely get chance to eat a lot and so have always been eating the Milky Way UK bars, which I believe contain gluten or barley. I usually have around...
  10. dalek100
    Hi, I am ever so sorry for posting again. Previously, I posted about having a positive anti-ttg test. I had a colonoscopy but the preparation for this didn't go very well at all. I have had a history of bowel problems that have gone on for a while and the Gastroentrologist diagnosed it as just being IBS. I was previously tested for Celiac even when...
  11. dalek100
    Hi again, I was also wondering whether having the bowel preparation will have lowered the TTG level at all? Thank you for everything.
  12. dalek100
    Thank you for your help. I have had a few colonoscopy procedures done before and the bowel preparation started working near enough immediately. This time it made me feel awful and took a long time to work its way through. Can Celiac cause constipation as well as the opposite as my bowel habits have changed a lot and prior to the bowel preparation some hard...
  13. dalek100
    Thank you for your help. I was wondering if my TTG was 4 in August 2016 but is now 23 in March, whether this shows that something is going on? I am very worried about it all and feel like I have no answers. Thank you for all your help.
  14. dalek100
    Hi, Thank you to everyone for continuing to help me. I cannot thank the people on this forum enough. Through the post today, I received my report from my colonoscopy. It says "There was a lot of solid faeces in left colon despite taking full prep. Note elevated tTg - Celiac Disease." I was wondering does this mean that they have diagnosed...
  15. dalek100
    Hi, Thank you for your help and support. I really can't thank people enough for this. I hope you don't mind me asking this again but as my TTG-IGA anti-bodies came back as positive but they said that EMA wasn't present, but the lab report says "results indicate celiac disease or liver disease" wondered whether having negative EMA is a common finding...
  16. dalek100
    Thank you both for all your help with this. Oh my word. I didn't realise Barley was in Milky Ways. I have loads of those (not many but as snacks) when can't have proper lunch. Do you have any advice on how to approach this blood test result with the specialist? I am due to see him in Easter holiday and just want to try and get back to normality...
  17. dalek100
    Thank you again for all your help. I was also wondering whether the UK version of the Milky Way Chocolate Bar contains gluten as I have those as well during the day as snacks and made me think whether this is a problem as well. I just would like to finally get back to some normality. Without this forum, I wouldn't know what to do.
  18. dalek100
    Hi, Thank you. I haven't gone gluten free and still am eating my current diet. I am just worried in case there isn't enough gluten in take going on - I have two slices of bread on a morning usually. Sometimes I don't have chance to have anything at lunch due to how busy my job is at the moment and thought that my cause problems with my levels. It is...
  19. dalek100
    Thank you ever so much for your help with this. I was also wondering as I am worried about my levels changing until I go and see my GI in 6 weeks time, I wondered how much gluten will I need to keep eating? I usually have white bread on a morning with nutella and then at lunch have sandwiches with meat etc. I was wondering whether I need to just stick to...
  20. dalek100
    Thank you ever so much for all of the help and support with this so far. To be honest, I am still in a bit of shock because this is the closest I have ever come to being diagnosed beyond IBS and never expected Celiac to be what it ended up being. I was wondering whether it is just a false positive test as I am worried that it won't be the same if they...
  21. dalek100
    Hi I have asked for a copy of my results and apparently the following is included: tTg-IGA is 23 and the ranges are 0-15. It says "indicates celiac disease or liver disease" I was wondering if this sounds like celiac as apparently the EMA anti-body is negative? I am sorry to keep bothering people on here. I feel like a massive pain.
  22. dalek100
    Thank you for your help. It was during the colonoscopy that they mentioned that one of my anti-body tests had come back as having high levels. It has shocked me to be honest as I just naturally thought it was just IBS getting worse. I have had Vitamin B12 deficiency for a very lengthy time now. I think I started having problems with it during 2008 and then...
  23. dalek100
    Thank you for your help with this. Is there anything else that could cause anti-bodies to show in that way? Is it possible for it to mainfest now, when previously and for years, no anti-bodies have been found? Its taking a bit of time for me to accept it after being told its just IBS.
  24. dalek100
    Hi, I am new to this forum and hope you don't mind me posting on here. For a lengthy period of time, I have experienced ongoing problems with my bowels. Back in 2009, I was experiencing IBS style symptoms and they detected that I was deficient in Vitamin B12 and have been on injections ever since. I have also been told previously that I was Vitamin...
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