ssmith
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Everything posted by ssmith
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ARCHIVED Need Mentor or Guidance (Desperately!!!)
ssmith replied to ssmith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for your responses!! It is so hard because there are so many unknowns, inconclusive results, and lots of waiting!! I didn't realize it was so difficult to even get the tests to begin with. Thank you both SO much. I feel much better & am more comfortable going into my doctors appointment. -
ARCHIVED Need Mentor or Guidance (Desperately!!!)
ssmith replied to ssmith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for your help!! I really appreciate it. I know I am super uninformed on these topics but I find it easiest to learn from other people so thank you again. I did have a follow up question if I did get the genetic testing (which based on your information may not be my best option) if I am found positive for the gene AND I have... -
ARCHIVED Negative test...doctors reaction. OUCH!
ssmith replied to larann78's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So sorry about your experience!! I have had so many uneducated people say the exact same thing to me (although I haven't done testing so i am not quite there yet) but at least my doctor has admitted that sensitivity is a thing. I would stick to your guns and keep doing what is best for your body! If your symptoms got better than I would stay off gluten. That... -
ARCHIVED Gluten challenge-is it worth it?
ssmith replied to jfhinoh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This topic has been super helpful for me as I am considering doing the gluten challenge to have an official diagnosis or more information about my condition as well. Has anybody who has done the gluten challenge and has gotten a positive result have information on how long they had to eat gluten and how much? I asked my doctor about it and was horrified when... -
ARCHIVED Hi new and in desperate need for help
ssmith replied to DgJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am new to the site as well, I just wanted to relate to your experience. I too prayed that I had a diagnosis that would answer all my medical problems so I definitely related with your post (and I did end up cutting out gluten which solved pretty much all of my medical problems although I wish I had testing first). I would urge you to continue with the testing... -
ARCHIVED Need Mentor or Guidance (Desperately!!!)
ssmith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello! I have read many forums on this site over the past few months and it has been incredibly helpful. I am here now because I am basically in a "resource desert" as far as services and doctors in my area and I desperately need advice. Question & Concern #1: I have been gluten free for about 6 months now due to problems that started...