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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Jmun5

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  1. I wish I could show you her test results. It's actually very interesting, and addresses all her issues. It showed she produces antibodies to TG3, which are associated with skin related conditions. She's had eczema for years. It also showed she produces antibodies to TG6, which is associated with neurological issues, which could explain her headaches and anxiety. The Gliadin panel is interesting. She was very high on this. It says, "If a person has elevated antibodies to Gluteomorphin or prodynorphin, they may have severe neurochemical reactions to gluten and also create what is called a gluteomorphin withdrawal response." Shortly after my daughter started the gluten free diet, she started complaining that she felt awful. I asked her what hurt and she said, "Everything." Over the next few days, she had headaches, would get really hot (like hot flashes), dizziness, achy joints/muscles, fatigue, and was very irritable. I have no doubt she was going through withdrawal. When I emailed the doctor yesterday to tell her how awful she feels, she told me she wasn't surprised based on the Gliadin panel results. They also believe she has leaky gut because of the results of the Intestinal Permeability Panel. She is creating antibodies to actin, and has increased levels of zonulin/anti-zonulin antibodies and lipopolysaccarides (LPS) antibodies. This all points to leaky gut. I know some of you are skeptical of the wheat zoomer test, but I find it all fascinating. All of my daughter's symptoms can be explained through this test. They don't believe it's celiac because the total IgG and IgA are in the normal range, as are the transglutaminase IgG and IgA and the DGP IgG and IgA. I asked the dietician at the lab how what my daughter has is different from celiac. She said when a person has celiac, their body attacks the small intestine. My daughter's body is still in attack mode, but it's attacking other things, like her nervous system. She mentioned in some people, it's the thyroid. I guess we'll know for sure if it's wheat/gluten if she doesn't start feeling better over the next few months. Anyone know how long, on average, it takes for someone with gluten issues to feel better once they cut it out of their diet?
  2. Again, thank you so much for the responses. We met with my daughter's naturopath today and she discussed the blood work (wheat zoomer test) and how she had a severe reaction to both the gluten and non gluten part of the wheat. She also has leaky gut. She wants her to do a grain free diet for a month, also no dairy since that makes her feel sick. It's basically a Paleo diet, which I'm very familiar with. After a month, she can have rice and corn again. She also gave her some supplements. Vitamin D, probiotics, etc. I am really hoping this helps to heal her gut. I really like the naturopath, and feel that she has been more helpful than the pediatrician and specialists we've seen.
  3. Thank you for the response. I believe the test our doctor did was the antibodies blood panel. But the type our doctor uses, is considered more complete, also testing for other issues. Again, this is a test that is probably only used in the wholistic doctor universe. A gastroenterologist probably doesn't use it. The results of the test she had done showed the IgA and IgG levels within normal ranges. Also within normal ranges was the Transglutaminase, the tTG, and the DGP, so this is why they said it isn't celiac. Where she tested high, and the reason the doctor said no more gluten, was the Gliadin panel, the Glutenin panel, and the non-gluten wheat panel. Those were all high. They also do an intestinal permiability (leaky gut) panel and she tested high there. When I asked if it was a gluten sensitivity or allergy, she said no. Her body makes antibodies to wheat and gluten at the peptide level. I am wondering if going to a naturopath was the right path for us to take after reading the comments here. Watching all our doctors just treat symptoms and never try to get to the root of the problem is the reason I decided to try something different. My daughter is a three sport athlete and was having a hard time keeping up in basketball this winter because of extreme fatigue. The reflux is so severe when she runs that she feels physically sick. She is tired and miserable during sports. I've had breast cancer twice, and same thing. Not one doctor discussed lifestyle change with me or made any suggestions. Even when I asked for help, they assured me that I didn't really have any risk factors, and it was basically a fluke. It's all very frustrating.
  4. Here is a link to an article that appears to be unbiased, explaining the wheat zoomer test. It is fairly new technology. This is what our naturopath recommended. https://www.holisticprimarycare.net/topics/topics-a-g/digestive-health/1880-the-wheat-zoomer-a-game-changer-for-gluten-testing.html
  5. The naturopathic doctor that my daughter goes to is the one who ordered the test. We switched to a naturopath because the medical doctors who diagnosed the eczema, reflux, vocal cord dysfuncion (caused by reflux), etc. all treated the symptoms and didn't help figure out what was causing the autoimmune issues she was having. We started by having a food sensitivity test, and then they recommended the wheat zoomer test based on results of the food sensitivity test. I am aware that this test is not one that is used by medical doctors, but like I said, we went away from the medical doctors because all they wanted to do was prescribe pills and creams. They also didn't have any explanation for her extreme fatigue.
  6. My 15 year old daughter had the wheat zoomer test and the results said that she does not have celiac, but she did test high for the gluten and non gluten part of wheat. They said that her body is creating an autoimmune response at the peptide level. It was explained that basically it's just like celiac but without the small intestine damage. Has anyone heard of this before? Is there a name for it? My daughter has several celiac symptoms, eczema, reflux, extreme fatigue, constipation, upset stomach, anxiety. Symptoms have gotten worse over the past year. She sees her doctor in a couple days, so I'm sure we'll get more information. Just curious if anyone else has gotten this diagnosis and if there is an actual name for it.
  7. My daughter recently had a food sensitivity test and the food didn’t react to the IgA, so now she is having her IgA levels tested. They suspect the levels are low and that she might have celiac. She also has severe reflux, eczema, fatigue that has gotten much worse the past few months, stomach pain, and anxiety, lactose intolerant. Could there be something else going on with these symptoms and low IgA, or does celiac seem likely? I should add that the wholistic doctor said she’s never seen results like this on the food sensitivity test and she called the lab to confirm. Makes me a little nervous that she doesn’t have experience.