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About Jmun5

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  1. Had some blood work done on my daughter Friday, and already got the iron results electronically. Her iron is low, which is what I suspected since she's still so tired. Didn't get the rest of the results yet, but hope to have them early next week.
  2. Actually, I'm a mom, but her dad does look out for her too. Even though it's been fun watching her compete in 3 high school sports, I'm much more interested in her feeling well again.
  3. I just called her pediatrician today to request blood work to make sure no other deficiencies are present that they didn't check for. She is taking probiotics to try to get her gut health back in shape and vitamin D. I'm wondering if she could be anemic.
  4. I'd never even heard of this before. She does have normal periods, and just reading the basic symptoms, I'm not seeing any red flags.
  5. Thank you so much for all the responses. I am going to spend the rest of the evening clicking all these links and doing some research. My daughter just finished her freshman year of HS and lettered in soccer, basketball and track. Soccer wasn't bad, but basketball season is when everything hit the fan. She had extreme fatigue and we knew something wasn't right. She started the gluten free diet right after basketball ended, but still wanted to do track. She is a high jumper and long jumper, so it helped to not do a lot of running. Her coaches were very understanding and let her do modified workouts since she just couldn't keep up. She took two weeks off to rest, and just yesterday had the summer soccer game. I just called her pediatrician today to request blood work to make sure she doesn't have other deficiencies. She is taking probiotics and vitamin D (because they suspected a deficiency) but her vitamin D levels were never tested. She will have blood work done this week. One more question... she was going to work with a personal trainer and do mostly weight lifting. She has some back issues, and lifting will help with her back, and just to get stronger overall. The trainer is great, and understands her issues. I thought that it would be good for her. Think she shouldn't even do that?
  6. My 15 year old daughter has been gluten free for about 3 months. She has seen a dramatic improvement in the symptoms, and we're happy with her progress, except for one area. When she plays sports, she immediately gets fatigued. She is a high school athlete, and in her first summer league soccer game last night (she's the goalie), she felt exhausted during warm ups. She was so fatigued after the game, that she barely spoke, and today she is still feeling very tired and hasn't wanted to do anything. I'm honestly starting to wonder if she needs to take a year off of sports. I know this takes time, but I'm wondering how long it might take for her to be able to compete like she used to without the fatigue. Also, any general advice for an athlete fighting an autoimmune disease?
  7. I wish I could show you her test results. It's actually very interesting, and addresses all her issues. It showed she produces antibodies to TG3, which are associated with skin related conditions. She's had eczema for years. It also showed she produces antibodies to TG6, which is associated with neurological issues, which could explain her headaches and anxiety. The Gliadin panel is interesting. She was very high on this. It says, "If a person has elevated antibodies to Gluteomorphin or prodynorphin, they may have severe neurochemical reactions to gluten and also create what is called a gluteomorphin withdrawal response." Shortly after my daughter started the gluten free diet, she started complaining that she felt awful. I asked her what hurt and she said, "Everything." Over the next few days, she had headaches, would get really hot (like hot flashes), dizziness, achy joints/muscles, fatigue, and was very irritable. I have no doubt she was going through withdrawal. When I emailed the doctor yesterday to tell her how awful she feels, she told me she wasn't surprised based on the Gliadin panel results. They also believe she has leaky gut because of the results of the Intestinal Permeability Panel. She is creating antibodies to actin, and has increased levels of zonulin/anti-zonulin antibodies and lipopolysaccarides (LPS) antibodies. This all points to leaky gut. I know some of you are skeptical of the wheat zoomer test, but I find it all fascinating. All of my daughter's symptoms can be explained through this test. They don't believe it's celiac because the total IgG and IgA are in the normal range, as are the transglutaminase IgG and IgA and the DGP IgG and IgA. I asked the dietician at the lab how what my daughter has is different from celiac. She said when a person has celiac, their body attacks the small intestine. My daughter's body is still in attack mode, but it's attacking other things, like her nervous system. She mentioned in some people, it's the thyroid. I guess we'll know for sure if it's wheat/gluten if she doesn't start feeling better over the next few months. Anyone know how long, on average, it takes for someone with gluten issues to feel better once they cut it out of their diet?
  8. Again, thank you so much for the responses. We met with my daughter's naturopath today and she discussed the blood work (wheat zoomer test) and how she had a severe reaction to both the gluten and non gluten part of the wheat. She also has leaky gut. She wants her to do a grain free diet for a month, also no dairy since that makes her feel sick. It's basically a Paleo diet, which I'm very familiar with. After a month, she can have rice and corn again. She also gave her some supplements. Vitamin D, probiotics, etc. I am really hoping this helps to heal her gut. I really like the naturopath, and feel that she has been more helpful than the pediatrician and specialists we've seen.
  9. Thank you for the response. I believe the test our doctor did was the antibodies blood panel. But the type our doctor uses, is considered more complete, also testing for other issues. Again, this is a test that is probably only used in the wholistic doctor universe. A gastroenterologist probably doesn't use it. The results of the test she had done showed the IgA and IgG levels within normal ranges. Also within normal ranges was the Transglutaminase, the tTG, and the DGP, so this is why they said it isn't celiac. Where she tested high, and the reason the doctor said no more gluten, was the Gliadin panel, the Glutenin panel, and the non-gluten wheat panel. Those were all high. They also do an intestinal permiability (leaky gut) panel and she tested high there. When I asked if it was a gluten sensitivity or allergy, she said no. Her body makes antibodies to wheat and gluten at the peptide level. I am wondering if going to a naturopath was the right path for us to take after reading the comments here. Watching all our doctors just treat symptoms and never try to get to the root of the problem is the reason I decided to try something different. My daughter is a three sport athlete and was having a hard time keeping up in basketball this winter because of extreme fatigue. The reflux is so severe when she runs that she feels physically sick. She is tired and miserable during sports. I've had breast cancer twice, and same thing. Not one doctor discussed lifestyle change with me or made any suggestions. Even when I asked for help, they assured me that I didn't really have any risk factors, and it was basically a fluke. It's all very frustrating.
  10. Here is a link to an article that appears to be unbiased, explaining the wheat zoomer test. It is fairly new technology. This is what our naturopath recommended. https://www.holisticprimarycare.net/topics/topics-a-g/digestive-health/1880-the-wheat-zoomer-a-game-changer-for-gluten-testing.html
  11. The naturopathic doctor that my daughter goes to is the one who ordered the test. We switched to a naturopath because the medical doctors who diagnosed the eczema, reflux, vocal cord dysfuncion (caused by reflux), etc. all treated the symptoms and didn't help figure out what was causing the autoimmune issues she was having. We started by having a food sensitivity test, and then they recommended the wheat zoomer test based on results of the food sensitivity test. I am aware that this test is not one that is used by medical doctors, but like I said, we went away from the medical doctors because all they wanted to do was prescribe pills and creams. They also didn't have any explanation for her extreme fatigue.
  12. My 15 year old daughter had the wheat zoomer test and the results said that she does not have celiac, but she did test high for the gluten and non gluten part of wheat. They said that her body is creating an autoimmune response at the peptide level. It was explained that basically it's just like celiac but without the small intestine damage. Has anyone heard of this before? Is there a name for it? My daughter has several celiac symptoms, eczema, reflux, extreme fatigue, constipation, upset stomach, anxiety. Symptoms have gotten worse over the past year. She sees her doctor in a couple days, so I'm sure we'll get more information. Just curious if anyone else has gotten this diagnosis and if there is an actual name for it.
  13. My daughter recently had a food sensitivity test and the food didn’t react to the IgA, so now she is having her IgA levels tested. They suspect the levels are low and that she might have celiac. She also has severe reflux, eczema, fatigue that has gotten much worse the past few months, stomach pain, and anxiety, lactose intolerant. Could there be something else going on with these symptoms and low IgA, or does celiac seem likely? I should add that the wholistic doctor said she’s never seen results like this on the food sensitivity test and she called the lab to confirm. Makes me a little nervous that she doesn’t have experience.