ylimaf
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ylimaf
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My baby at age one nearly died from starvation (he was eating almost too much) but a doctor at UNM, after recognizing he had gained 4 lbs in one month after going gluten free by the request of the pediatrician, refuse to do a biopsy. The pediatrician wrote him up as beign gluten intolerant. Now we have a chance to see a different doctor. I have such good...
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We were stationed there on base. Military doctors arent much better there. I wish I could rememberthe name of the hospital. If I think of it Ill let you know. If any thing the doctors there could direct to an adult doctor. Are you able to go to the native hospital?
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Normal tylenol from what I know has gluten but childrens meltaways dont. They are expensive if you have to take them too often. I am having a blood test on Friday. We will see.
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If anyone knows of a good GI doctor in Albuquerque, NM? There are no support groups here either. The pediatrician has been willing to read a book to help them understand it better but I still cant find a good GI for the kids and me. I am fortunate that the OB has a nurse with celiac disease.
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Be very careful going to Albuquerque NM. The doctors claim to know about celiac disease but they really know very little. Some docs still refer to it as an allergy. The best you can do is offer a book most recently written by a doctor who specializes with celiac disease to your doctor and see if they read it.
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Its good to know that the doctors care. However as human being we have the right to do with our bodies as we see fit. A good example that I will not discuss at lenght becouse I am prolife is Abortion. The doctor is not there to control us. They are there to advise us. I know this is the hard part of being a doctor. A doctor that was taking care of grandpas...
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Have you called the hospital for kids with tummy troubles? I dont remember the name of it but they do alot of advertising on the radio. If not try getting the most recently written book on celiac disease by a doctor who works with celiac disease and as if you primary doctor is willing to read it.
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ARCHIVED Benadryl
ylimaf replied to shai76's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes Benedryl is gluten free. The pediatrician double checked it for us. Yes our pediatrician understands celiac disease. He was the one who noticed it when I had no clue it even existed. The generic brand might well have gluten in it. Generic brands are made in such a way to make it cheaper to buy and wheat is cheaper to to work with. We use the name... -
I am having headaches. I keep double checking to make certain I am not getting gluten. I need a pregnancy safe gluten free medicin I can take before my head explodes. The headaches are being caused by hormone changes. After the triplets dies my hormones have been takeing a dramatic drop and two months later I am pregnant AGAIN. My doctors nurse has...
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really very seriously important. Get OFF the prenatal from unless they specifically say GLUTEN FREE!!!!!!!! Yes medicines and vitamins contain gluten. I misscarried a set of triplets becouse of gluten. I am pregnant again in the shadows of that pregnancy. It doesnt matter if you have had a test for celiac disease or not. If you suspect you have celiac...
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ARCHIVED Breastfeeding?
ylimaf replied to brizzo's topic in Parents, Friends and Loved Ones of Celiacs
La Leche League can give you a list of foods and meds that will go through moms milk. They can also tell you the severity of the danger involved in the milk with each item. Gluten is gluten no matter how much baby gets. Yes it will pas through the milk. My 1 year old nearly died becouse he was slowly starving to death. However the pediatrician did say... -
ARCHIVED Should I Keep Breastfeeding?
ylimaf replied to maddycat's topic in Related Issues & Disorders
Breast feeding is good for babies. Most illness's are less harmful while breastfeeding. You need to get in touch with La Leche League!!! They are your best hope for answeres. They have listings of harmfull medicins that will go through the breast milk. They have a list of doctors practiced in breastfeeding that can answer questions for you. Tell mummy... -
I have notice that some of the posted messages are very old. Some date back all the way to 2004. Is this normal? Are we supposed to clean up our own posted topics?
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ARCHIVED Gingerbread House
ylimaf posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Okay the list on this sight is huge so I am going to ask without searching for an entire hour. We have our gluten free gingerbread house. If anyone wants to know where I ordered it please ask. I will post it. Okay I got it from Patsy Pie. They are based in Canada. I asked them to make one for me and they experimented and came up with one. I hope they... -
ARCHIVED I Need Some Help!
ylimaf replied to lightningfoot speakin words's topic in Gluten-Free Foods, Products, Shopping & Medications
I dont know about hershes At wild oats they sell gluten free chocalat chips. They also have dairy free/ gluten gree chips. This is all we can get for our household. -
ARCHIVED Ground Beef
ylimaf replied to kimberly O'Brien's topic in Gluten-Free Foods, Products, Shopping & Medications
Here in Albuquerque NM we have a store they sells strickley gluten fed animal meet. I dont know that there is a whole lot of gluten in meet raised on it but knowing that gluten is toxic to us I would rather be safe than sorry. The store we go to is called Kellers. Good luck -
ARCHIVED Do I Have To Go gluten-free Too?
ylimaf replied to FeedIndy's topic in Parents, Friends and Loved Ones of Celiacs
YES. I was breastfeeding my one year old and he was slowly dying instead of quidkly dying. Thanks to a good pediatrician he is alive. he is two years old. I went gluten free and he started to gain weight. I ended up with celiac diseas after weening him. Yes it is sad to give up gluten. Yes it is sad I have it now. IT WAS WORTH IT. MY BABY IS ALIVE... -
ARCHIVED Mom Of Newly Diagnost Toddler Seeking Help
ylimaf replied to AmyTopolski's topic in Parents, Friends and Loved Ones of Celiacs
There are six of us in the household. Two of us have celiac disease. Two more have had a positive blood test. At first we kept the gluten free cooking for just the two of us but now that we are adding the other two the whole kitchen will be gluten free. The last two will get their own bread from the store. It depends on how your kitchen runs... -
ARCHIVED Teeth Grinding
ylimaf replied to momothree's topic in Parents, Friends and Loved Ones of Celiacs
My two boys are teeth grinders and their blood work has come back possitive for celiac disease. My daugters were never teeth grinders and their blood work came back clean. I am the carrier and I have as of late had symptoms that include clenching my teeth at night!!!!!!!!!!!! -
ARCHIVED Accused Of Neglect
ylimaf replied to sillyactsue's topic in Parents, Friends and Loved Ones of Celiacs
You should prepare yourself for all possibilities!!!! My daughters dad raped my sister and he still got custody. There was a lack of paper work!!!!!!!!!!!! She didnt file a police report!!!!!!!!!!!!!!! I did get one of them back. Take extreme care. Fare warnning in Texas they like giving custody to the dad!!!!!!!!!!!! GET THAT PAPER WORK. It... -
ARCHIVED Misscarriages Due To Untreated Celiac
ylimaf replied to Kels's topic in Related Issues & Disorders
2 months ago I miss carried a set of triplets. I learned it was caused by celiac disease. It is so important to stay gluten free. I am pregnant again. From what I understand it takes 6 months to heal after starting a gluten free diet. Even then it takes a long time to learn everything about gluten free foods. It took 1 and a half years after my toddler... -
I came down with symptoms 2 months before I got pregnant with triplets. I learned what the symptoms were caused by when I found out I was pregnant. All three babies have died. How long will it take for the intestins to heal enough to get pregnant again. I may be pregnant now (1 month after misscarriage)
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ARCHIVED Prenatal Vitamins Revisited...
ylimaf replied to Ariela's topic in Related Issues & Disorders
I tried the GNC prenatals and they kept giving me headaches. I am staying away from them for now until GNC can tell me how they are processed. Sometimes the surfaces are coated with flour to prevent sticking.