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About morningstargirl

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    Writing, working out, Nutrition/holistic health, reading
  • Location
    Naperville, IL
  1. Happy Birthday Morningstargirl!

    Hope it is a great one!

  2. OMG... I'm so glad I found these posts. I thought I was going nuts. Today, I had one of those individual size bag of Cheetos at lunch and within an hour I was bloated. I'm POSITIVE it was the Cheetos as everything else I had today was a whole food. I even picked the bag out of the trash and re-checked the ingredients; there was no indication of gluten of any kind. I'm glad I'm not the only one and going crazy! No more Cheetos for me! Thanks everyone for sharing your experiences. Connie
  3. Hello Everyone, I'm a just a tad late here in thanking everyone for their input! I did make my casserole that day thanks to the input I received here. I was wondering... some of you said you looked it up and learned the Campbell's brand was gluten-free. Where did you find this info? Again, thanks so much ! Connie
  4. Hi, I'm Connie and I'm in Naperville. I've heard about the gluten-free meetings at Whole Foods in Wheaton; haven't gotten there myself yet either.
  5. Hi Everyone, I'm trying to make a favorite recipe of mine gluten-free. It's Campbell's Cheesy Chicken and Rice casserole. The recipe calls for a can of Campbell's Condensed Cream of Chicken soup. I can't find a gluten-free substitute for it at any of my local health food stores. I found one on-line, but I'm trying to make this for Saturday night. Does anyone know of a way to substitute condensed cream soups? Also, what about spices, like onion powder or paprika? Are spices in a jar safe to use or is it more label reading (actually, I can't find ingredients listed on the organic spices I usually buy). Thanks. Connie
  6. I too had troubles with my period. 5 years ago, it became erratic... sometimes 2x a month, then not for six weeks. And it was heavier than usual for many years. I had hot flashes, night sweats, and PMS like I was a teenager again. For a few years, my periods averaged 18 days between cycles. I didn't have health insurance until last November and when I finally saw a doctor this past January, I was shocked to learn I wasn't in early menopause (I'm 41). Tests revealed I had a hormone imbalance, but there was no explanation why I had this. I'm holistic and read a lot, so I dug in and after reading Neanderthin by Ray Audette decided to remove most grains from my diet. Immediately, my periods lengthened to 21 days. By Summer, they were at 24. And, this will be my 5th month at 28 days. 3 weeks ago, I went totally gluten-free and I've noticed a decrease in night sweats. In my un-professional opinion, I was malnurished and that caused the hormone imbalance, as well as a slew of other health issues.
  7. Hi Everyone! Thank you for all the responses and advice. I'm pretty sure I didn't ingest the hair color (it smells, so I think I would taste it if I did); it must have been absorbed through my skin. I'm going to continue to search for natural/low chem hair color WITHOUT wheat in it. Unfortunately, I'm not able to use any regular (OTC or salon quality) hair color as I have some sort of chemical allergy as well. One run-in with a "normal" hair color and I get seborrheic dermatitis that can take months to reverse. Urgh!!! When I find a low chem, gluten free hair color, I'll post to let everyone know about it. Thanks again for the support. Connie
  8. Hi Everyone, I'm sorta new to this whole thing (3 weeks gluten-free) and I'm wondering if it is possible to have a reaction to wheat in a hair coloring product. I've been trying different herbal/low chemical hair colors due to scalp issues and tried a new one (Natrutint) on Saturday morning. By Saturday evening, I felt achy and bloated again; Sunday I got a sore in corner of my lip. My reaction to gluten is a little un-standard--I blow up like a balloon, get achy muscles, sores at the corner of my lips and constipation. Saturday, I got all of the symptoms except the constipation. Yesterday, I felt horrible all day but started feeling better shortly before bed. Today, I feel fantastic--like my old self again. My family went through great lengths to make sure there was no gluten in anything I ate for Thanksgiving dinner and I've been very careful about what I put in my mouth. The hair color is the only thing I can think of. "Wheat" is one of the ingredients listed on the box ("WHEAT - HYDROLYZED VEGETABLE PROTEIN"). Could gluten in my hair color cause this much problem? I haven't seen anything in all my readings about being glutened through your skin. Thanks in advance for your responses. Connie
  9. Hello jmengert, I am new to this website (just joined yesterday) and Celiac's Disease. Next month, I'm taking my daughter to Disneyworld and saw your post about the info you received. I was wondering if there is anyway you would be willing to share that info again. I hope its not out of line or anything to ask. Thanks. Connie
  10. Hello Everyone, Thank you so much for your replies and advice. Its great to learn others have experienced the coming-and-going edema and it's not all in my head! I'm going to continue with the gluten-free diet and see what happens. I have noticed a great change in the edema even after only a week; I actually feel more like the old me. It's hard to explain what I mean with that; if you've had this edema experience maybe you know. I am reading through labels on EVERYTHING... vitamins, supplements, condiments, soups, etc. Trader Joe's, and Whole Foods have gluten-free lists of their products so I've picked them up and am following religiously. I'm also looking into Enterolab for the Complete Gluten Sensitivity Panel with the gene test. I'm waiting to hear back from BC/BS insurance about coverage for those tests. Enterolabs is the only place I've found that won't require me to return to eating gluten. I've also contacted me integrated medicine doc to see if he has any info on the quality/value of those tests since they are a bit outside the box. The essay at the Enterolab site makes sense though and I know Western medicine doesn't consider things a problem until they reach the final stages (a major failing in my opinion). So, does anyone have any feedback on Enterolab and/or their tests? Thanks again SO MUCH for all of your input. I'm crossing my fingers and hoping I've finally solved the mystery. Time will tell, as will the tests. Happy Holidays to you all, Connie P.S. I canary, I loved your little blurb at the end of your e-mail: “This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws.” FANTASTIC!!!
  11. Hi Everyone, I'm new here and this is my first post. My name is Connie and I'm 41. I am in the "wondering" stage and seeking some advice to figure out if I'm on the right track with celiac disease. I hope this doesn't get too long; I've got a lot of things going on and I'm trying to figure out if these all stem from one source, so please bare with me. For 20 years, I have had GI problems; mainly chronic constipation, bloating, and severe cramps when I finally do go. At its worst, I've been constipated for 2 weeks straight and unable to keep food down due to lack of room, I think. I've been diagnosed with lactose intolerance and IBS. Upper and lower GIs revealed nothing unusual. About 4 years ago, I developed geographic tongue and blood work was run, but everything turned up normal. I've always been small (5'4" 115 lbs) and not had problems with weight, even after giving birth to my daughter in '98. About two/three years ago, I began gaining weight though my diet and exercise hadn't changed, and I ate well... organic foods, whole grains, low fat, etc. My cycle went wacky, my breasts grew two cup sizes and my feet grew a full shoe size. I began getting severe night sweats. And, something felt funny about the weight gain; I felt thick and sort of heavy or dense all over. Some days my thighs would rub together and then the next day they wouldn't. I could fit into a pair of pants on Tuesday, not on Wed & Thurs, but then again Friday. I also noticed I had some sort of bulge or swollen spot on my outter left thigh. I figured it was pre-mature menopause. Then last December, things got worse! I simultaneously developed a rash on the back of my neck and severe dandruff. I was initially diagnosed with ringworm by my internist. When treatment didn't work, I was sent to a dermatologist and re-diagnosed with contact dermatitis from hair color. Although I took several different prescription medications, had a negative chemical allergy test, switched all hair care products to chemical-free varieties, and got herbal low-chem hair colors, my dandruff grew worse, my hair began falling out and the rash spread to under both of my eyes. I also started getting painful cracks in the corners of my lips. I was re-diagnosed with seborrheic dermatitis and possible lupus. No tests were performed. During this same time, I had a cyst removed from behind my ear. I'd been getting these cysts behind my ears a few X per year for about 8 years or so, but the frequency and volume had increased over the previous year and they started showing up on my face. Having little faith in Western medicine from other earlier experiences and my recent dermatologist, I consulted a holistic chiropractor/nutritionist. She ran labs and I learned I had insulin resistance, a hormone imbalance, severe vitamin D deficiency, and was borderline for lupus (80 ANA--greater than 80 for 30 years plus is considered lupus). The nutritionist put me on the South Beach Diet to get my insulin resistance under control. I removed all carbs from my diet for 30 days and noticed a shift in my weight (from stomach to butt/thighs), but no weight loss. I also felt the thick feeling come and go; I could actually feel my thighs swell from day to day. I thought it must be the hormone imbalance. After 30 days, I re-introduced natural carbs (carrots, bananas, etc.) back into my diet and a reduced amount of whole grains. I spent 6 months under the nutritionist's care on lots of vitamins and supplements with little change. In July, fired the nutritionist after she told me to "stop reading so much". Since then, I've been seeing an integrated medicine doctor (studied under Dr. Andrew Weil) and doing things on my own. I'm taking a good-quality liquid vitamin, a few supplements, a green food (blue green algae), did a detox, and reduced grains down to just occasionally. I've seen lots of improvement; the volume of acne slowed greatly, the seborrheic dermatitis cleared up 75%, the hair loss stopped and my cycle has returned to normal. Yet, I'm still experiencing constipation, light edema that comes and goes, some seborrheic dermatitis, night sweats and cystic acne. A week ago, I decided to try a 100% gluten-free diet. I've noticed less edema, the last bits of acne seem to be going away, but my seborrheic dermatitis seems a little worse and there's no change in the night sweats. I shoud also mention that within the past week or so I switched to a non-liquid vitamin. So, whatdayathink (besides this got too long)? Can Celiac be the root cause of all these medical issues? Am I barking up the proverbial right tree? Any thoughts or advice will be GREATLY appreciated. And, BIG thanks for taking the time to read my post. I'm sorry it turned into a book. Connie
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