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tummyache

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  1. I am going to be honest here and I hope I don't offend anyone. First of all, many doctors are not educated about Celiac. Secondly, when it is brought up to a doctor they immediately begin thinking, "hypochondriac." If it isn't "hypochondria" then it must be some sort of eating disorder. So, they try to disuey you from thinking you have some gluten intolerance problems. If you are a woman, they will immediately send you to the OB/GYN because it has to be some kind of reproductive problem. UGH!
  2. She has LONG HAIR??? What does that have to with anything? Are all Celiac's bald? That makes no sense at all! Yes, definitely tell them to see another GI person. This one sounds like a total quack.
  3. Gluten is a toxin! I agree with you!
  4. My IgG came back negative, but my IgA was positive. What does that mean? I'm also really confused and would appreciate any help I can get.
  5. Yeh, I think it is necessary to have the endoscopy so they can see what else is going on. I'm sorry your endoscopy experience was so bad. I think a second opinion might be godo to get.
  6. I have noticed that they come later and later every month. You know, before I even knew what Celiac disease was, my OB diagnosed me with endometriosis and I had to have exploratory surgery. He was suprised that he found only a tiny tiny bit. I had wondered why my abdomen felt riddled with blisters and the endo surgery didn't help. I guess now I know. I'm hoping my periods will eventually get better....
  7. Yes, I too have that. I'm in my thirties and I feel like a ninety year old person. I have no strength sometimes and other times I'm brimming with energy. I think it mostly happens when gluten finds itself in my diet. YUCK!
  8. I react usually right after the meal. It feels like a trap door opened and cement fell through it. It hurts and I am uncomfortble for days. Sometimes I have the runs and sometimes its just horrid constipation. All I know is that it hurts and I bloat and feel like I caught some bug.
  9. I did that not too long ago and I felt like I had hardened cement in my stomach. I paid for it for 2 days. It tastes soooo good, but feel so bad!
  10. Thanks for your response. I kind of thought that I should be eating a steady gluten filled diet before testing. The funny thing is that I told my doc that I had been on a gluten-free diet for 2 years. The only time I ingested anything gluten was by mistake (placed into something without my prior knowledge). She went ahead and tested me anyway. I had had a high gluten breakfast that morning and that was it. I guess I have to be retested. I'll find out more of what I'm supposed to do when I meet with the GI doc. Hopefully, I can explain the circumstances to her, get retested, and not have to have the scope done right away. I'm dreading this whole scope business! I wish the referring doctor was more knowledgeable in the first place, then I wouldn't be in this predicament!!!
  11. Thanks for replying. Yeh, some of the gluten-free stuff can be really good. I'm just wondering why this doctor diagnosed me with Celiac and then came back a week later and said that my test was "inconclusive." I just don't know what I should be eating....I guess I'm just sick of all the hoops I have to jumps through. I wish my doc was more informed. I wonder if I should go to another doctor and have them run the blood panels again....just a thought.
  12. I am really confused at the moment. Two years ago I suspected that I was gluten intolerant. I would have gas, diarrhea, bloating, tiredness, aches, and sometimes small blistery looking rashes on my body. I decided to get of the gluten and try living a gluten free life. Anyway, I procrastinated on getting the blood work done. I went in two weeks ago and talked to an internist. Keep in mind that I had been gluten free for a long time, but I did eat a heavy breakfast of gluten containing foods before I went. So, she ran the panels and called me a week later to give me my results. She said that I had suspected celiac. All of this is based on the fact that my Anti-gliadin Iga was positive. The Igg was negative as was the endomysial test. She also noticed that I was borderline anemic. She showed my results to a gastroenterologist and he said that I needed to be scoped. So, I'm not sure what is going on. From everything that I've read I can't make sense of the elevated Iga. Does this really warrant an endoscope? Would the gastroenterologist want to do an endoscope if he felt that I didn't have the disease? I really wished she had called and said that I was ok. I would love to eat whatever I want! Gluten-free is not the most appetizing thing in the world!!! Also, do I need to be off or on my gluten free diet? I have a consultation visit with the GI doc in 6 weeks, then I guess they will schedule a biopsy. I don't know what to do or think at this point. Did the internist make a mistake and should I forget all of this nonsense??
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