Hawk4
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I posted a month or so ago because I was experiencing increasingly concerning neurological impacts post diagnosis (diagnosed January 2024). Sharing in case this helps someone else. About 2-3 months after diagnosis, I started experiencing buzzing and other sensations in my toes, and then in my fingers. I experimented with diet, but the symptoms continued...
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SF Bay Area Celiac Treatment
Hawk4 replied to Hawk4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes. -
SF Bay Area Celiac Treatment
Hawk4 replied to Hawk4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For some of us, stopping gluten alone may not be a full solution. There may be other food sensitivities. And there may be neurological and other autoimmune complexities. Thank you. -
Hello. Wondering if people have a sense of which medical establishments in the Bay Area do the best job managing and treating celiac in adults. I see a lot of pediatric resources (eg UCSF) but not so much for adults. It appears that Stanford may have a celiac center that is multidisciplinary and that treats adults? I’m in Kaiser and not getting the s...
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I managed to avoid a biopsy, despite my HMO’s recognition that the biopsy is the gold standard. Depending how long you’ve been gluten-free, there may be another option. My TTG – IGA, tested by my PCP, was off the charts (more than what they measure, so at least 17 times normal). I was not gonna keep eating gluten while waiting for an appointment with ...
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Hello. Previously, TTG-IGA was 17x or more of upper range of normal. Now: positive for HLA-DQ2 and DQA1*05 negative for HLA-DQ8. So one of the genes that is generally present in celiac is there. But does anyone know the significance of DQA1*05? Thanks!
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Scott Adams reacted to a post in a topic:
Probable diagnosis- some questions
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Probable diagnosis- some questions
Hawk4 replied to Hawk4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for these very thoughtful replies. I wish that the European approach was adopted here. Those authorities are helpful… I’ll pass them onto my provider. I’ve read about the importance of staying on a gluten diet while being tested. But given how sick I was last week, there’s no way. At least the blood test was done while I was in full... -
Well, this came out of the blue, except it really didn’t. But in any event, here are the test results from 3 days ago: Tissue Transglutaminase IGA (u/ml) Normal <= 14.9 Result: > 250 Deamidated Gliadin Peptide IGA, qualitative, eia Normal <= 14.9 Result: > 250 So, questions while I wait for GI referral and t...