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Crystalkd

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Crystalkd

  1. Crystalkd
    I freaked out when I first started the diet. I understand. I buy 1 "special" item a month that is a gluten-free goodie quick fix other than that it's meats fruits and veggies for me. If you have a Trader Joe's near you thier gluten-free pasta is good and about 1.99 instead of 4.99 for the same stuff under a diffrent brand name at Whole Foods. Also if you...
  2. Crystalkd
    I understand both sides of this debate but here's how I see it. Until 2 years ago I thought I was just dealing with Mild Cerebral Palsy and depression. Then comes the Ceilac dx and the gluten-free diet and the "depression" goes away. For the 26 year prior I was still doing all the normal things one does in life while dealing with exterme and constant pain...
  3. Crystalkd
    I've eaten at the hard rock here in Atlanta once and even though it was a bit of a hassle even though I'd called earlier in the day I didn't get sick. I find it more helpful to CALL places like that rather than email. You can get a better responce that way,
  4. Crystalkd
    I went on a cruise using Royal Carribean last year. Our travel agent screwed up and didn't make it clear that I needed a gluten-free diet but it was handeled VERY WELL once I got on board. The food was great and if there was nothing on the menu or even desert menu that I could eat they would make something special. They even had gluten-free bread sitting...
  5. Crystalkd
    Not sure what's casing your symtoms but you do understand that what your doctor is treating you for is Addison's Disease right? They've started treating me for that as well. I just spent 9 days in the hospital because of a crisis. I felt better with the IV as well. How is your blood pressure and sodium? If they suspect your pituatary glad once that's figured...
  6. Crystalkd

    Happy birthday and may God bless you today!

  7. Crystalkd
    As far as waffle house. If I decide to eat there I sit where I can clearly see the cook and order an omlette and hasbrowns after I carefully explain my "allergy." I usually don't have an issue. The last time I went to Carker Barrel it was VERY hard to find something to eat and was pretty much told that I shouldn't eat there. IHOP: Be careful!! Once agian...
  8. Crystalkd
    There are three brands of gluten-free beer that I know of. They are redbridge, greens, and bards tail I can find redbridge at some krogers and whole foods. I have not been able to find the others.
  9. Crystalkd
    I'd seen the corn dogs and thought about getting them. I'm now glad I didn't.
  10. Crystalkd
    If you are sharing a kitchen with gluten eaters that could be causing you a problem. There are so many things to watch out for in that situation. So many in fact that I won't do it. Gluten particles float which could explain the problem with the juice. I can't give you tips on sharing a kitchen because I refuse to share one. I seem to always get sick. The...
  11. Crystalkd
    Thank you. Before the gluten-free diet I had a laundry list of conditions that cleared up almost entirely on the diet but I'm starting to amass another list. It's shorter than the orginal. I was wondering if being low on igA by even 1 point could be throwing other tests off. I'll bring it up with my internist at the next appointment. It's confusing and I...
  12. Crystalkd
    I know I have reflux. I'm fine with that. I've had problems with acid for a while. My main question is what other tests can being igA deffient throw off. And what does testing positive for the HLA-DQ8 gene mean? And does low igA mess with the genetic test like it does the blood tests. I've been tested for many auto immune disorders since and there are still...
  13. Crystalkd
    I'm asking this because I'm having other medical issues that I'm trying to resolve and maybe the test results aren't being look at correctly or others could be messed up by low levels I've been gluten-free for almost two years now even though test results were negitive. I got a copy of the results after those test were run and decided to take another look...
  14. Crystalkd
    It's okay. It will get easier. As far as the deserts. you can make some of your own. Foe easter I made a pudding pie frpm Pamala's Brand Gingersnap cookies. Next time I'll try arrowroot cookies. Also Whole Foods has a store brand line of gluten-free mixes. I tried the brownies. They taste like the real thing. I went to my first cookout since going gluten...
  15. Crystalkd
    I understand the question my question to you is: Do you have Celiac or are you Gluten intolerant? We have both here that's why I ask. That also effects the answer to your question. I believe there are two diffrent "rating" systems. I don't understand the diffrence as I have not really researched it. If you have Ceilac then it is my understanding that...
  16. Crystalkd
    All of my tests came back inconculsive but in the blood test I'm IGA deffiecant so the blood test is pointless. As far as the biopsy it came back inconclusive too but here's the thing you have think about with that: Your small intestine is large if you streched it out so who's to say they looked at the right part. As my internist says to me: I treat people...
  17. Crystalkd
    Your family knows your issue so I'd bring my own food. I understand how you feel about being diffrent. Since I went gluten-free I haven't eaten at other peoples houses other than my moms and I get nervous leaving the safety of my kitchen. I only eat at places that I know work well with gluten-free which aren't many.
  18. Crystalkd
    I took all the tests and they came back inconclusive. None of the tests will show anything since you've been gluten-free for so long. I don't see the point in doing an endoscpy unless your having GI symptoms. I just had another one done because of issues. They found a few things tha they're now looking into. The GI is also looking at my villi agian since...
  19. Crystalkd
    I've seen these and wondered if they were any good. I'll have to try them!
  20. Crystalkd
    I feel for you and know exactly where your comming from. I'm southern too and people do look at you like your crazy when you try to explain it to them. I have a couple of othe points as well: I found the the first three to six weeks to be the hardest. I can't tell you how many times I cried. I was releved to know my symptoms were fixable but making the change...
  21. Crystalkd
    The gluten all over the kichen and in the microwave is most likely what made you sick. I'm sorry. It does suck badly. If I'm not in my own home I alway cover my food to re-heat it. My family makes sure they clean up thier crumbs so I don't have to deal with it and if I'm watching the kids they eat what I eat. After getting sick from making thier dinner a...
  22. Crystalkd
    Thanks guys. I'm trying to come up with a shopping list. I'm excited even though I'm still scared. Since going gluten-free my reactions are getting worse.
  23. Crystalkd
    I had another endoscy yesterday because of stomache problems. I also had an abdonal ultrasound. There were some interesting findings. First I have to hand it to my doc. He's re doing the biopsy for Celiac even though the one two years ago came back inconclusive. He's theroy: Maybe I haven't gotten it all out of my diet. Other than that he found a hiatal...
  24. Crystalkd
    Find a description you like and copy it into babelfish. It's a yahoo service that translates. Maybe that would help?
  25. Crystalkd
    Kroger brand marshmallows are gluten-free. I love the fact the kroger has good labeling!!!
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