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About Crystalkd

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    Decatur, GA
  1. I freaked out when I first started the diet. I understand. I buy 1 "special" item a month that is a gluten-free goodie quick fix other than that it's meats fruits and veggies for me. If you have a Trader Joe's near you thier gluten-free pasta is good and about 1.99 instead of 4.99 for the same stuff under a diffrent brand name at Whole Foods. Also if you're really stuggling look into getting Food Stamps. Before the diet I could make $50 last a month. Not any more. Also because of changes in my health I've had to get more quick stuff than usual but even there you can be smart. When you cook cook more than you'll eat and store them in single servings freeze what you can so when you're in a hurry it won't take long. Don't be too hard on yourself. You will figure out what works for you. Also with angel food you can get the gluten-free box and the fresh fruit and veggie box for about $50
  2. I understand both sides of this debate but here's how I see it. Until 2 years ago I thought I was just dealing with Mild Cerebral Palsy and depression. Then comes the Ceilac dx and the gluten-free diet and the "depression" goes away. For the 26 year prior I was still doing all the normal things one does in life while dealing with exterme and constant pain. After going gluten-free alot of the stuff went away but the pain remained. My spine had SHIFTED and I was still walking and working. And then there is the fibro that I can't take meds for because they don't agree with me. Now add new dx'ed Addison's Disease that I've apparently been fighting for quite a while. I'm doing ALL I can't to lead as normal a life as possible from working to jury duty ect ect. In a lot of cases. NOT ALL but a lot you have to decide that you will continue to lead your life and not let your circumstances beat you. Some times it means a shift. I've been on disability for several years hoping to be able to get off it and working to that end. That may end up not being possible but I'm trying. My point is this: Don't let ailments get in your way. It just adds to the stigma. It's hard to be disabled in this country. Celiac in itself is not a disability. Of all the things I have to deal with it's the EASIEST to control. I'm not putting anyone down just putting in my 2 cents. (I say all this because I know there are many that have read this and not posted.)
  3. I've eaten at the hard rock here in Atlanta once and even though it was a bit of a hassle even though I'd called earlier in the day I didn't get sick. I find it more helpful to CALL places like that rather than email. You can get a better responce that way,
  4. I went on a cruise using Royal Carribean last year. Our travel agent screwed up and didn't make it clear that I needed a gluten-free diet but it was handeled VERY WELL once I got on board. The food was great and if there was nothing on the menu or even desert menu that I could eat they would make something special. They even had gluten-free bread sitting on our table when we went to dinner. It was really cool. I had to eat all my meals in the dinnimg room but they handled it very well!!
  5. Not sure what's casing your symtoms but you do understand that what your doctor is treating you for is Addison's Disease right? They've started treating me for that as well. I just spent 9 days in the hospital because of a crisis. I felt better with the IV as well. How is your blood pressure and sodium? If they suspect your pituatary glad once that's figured out and meds are adjusted you could start feeling better. They are looking at mine too as well as a possible platelet problem. I gurs right now drink as much water as possible and if your craving salt get more in your system.
  6. Happy birthday and may God bless you today!

  7. As far as waffle house. If I decide to eat there I sit where I can clearly see the cook and order an omlette and hasbrowns after I carefully explain my "allergy." I usually don't have an issue. The last time I went to Carker Barrel it was VERY hard to find something to eat and was pretty much told that I shouldn't eat there. IHOP: Be careful!! Once agian I'd say an omlette but make sure they don't put batter in there. Chipotle's burrotio bowls are cool.
  8. There are three brands of gluten-free beer that I know of. They are redbridge, greens, and bards tail I can find redbridge at some krogers and whole foods. I have not been able to find the others.
  9. I'd seen the corn dogs and thought about getting them. I'm now glad I didn't.
  10. If you are sharing a kitchen with gluten eaters that could be causing you a problem. There are so many things to watch out for in that situation. So many in fact that I won't do it. Gluten particles float which could explain the problem with the juice. I can't give you tips on sharing a kitchen because I refuse to share one. I seem to always get sick. The last time I had to think about doing it I nearly had a panic attack. That's not to say it can't be done it seems like others can do it but you have to be really careful. I hope you find your answer and start feeling better.
  11. Thank you. Before the gluten-free diet I had a laundry list of conditions that cleared up almost entirely on the diet but I'm starting to amass another list. It's shorter than the orginal. I was wondering if being low on igA by even 1 point could be throwing other tests off. I'll bring it up with my internist at the next appointment. It's confusing and I want to be on as little meducation as possible. Because the internist is convinced it's Ceilac and a gluten allergy but together he wants my mom to get tested to see what hers comes up with since we think it comes from her side. I'm trying to avoid the mess I ended up in two years ago. I have learned the hard way that seemingly unrelated things can and often are in my case at least connected.
  12. I know I have reflux. I'm fine with that. I've had problems with acid for a while. My main question is what other tests can being igA deffient throw off. And what does testing positive for the HLA-DQ8 gene mean? And does low igA mess with the genetic test like it does the blood tests. I've been tested for many auto immune disorders since and there are still lingering issues besides the acid. It's like there's one more missing peice to the puzzle and maybe it's right in front of my face.
  13. I'm asking this because I'm having other medical issues that I'm trying to resolve and maybe the test results aren't being look at correctly or others could be messed up by low levels I've been gluten-free for almost two years now even though test results were negitive. I got a copy of the results after those test were run and decided to take another look at them. I'm igA deficent by 1 point. I know that this causes the blood test for Celiac to be pointless. My question is this: Given the fact that I have Cerebral Palsy as well what can low igA cause and what other blood test can it mess up. Also in the Prometheus Celiac PLUS evaluation that is Serology and Genetics does the low igA only throw off the igA part of the test? They also tested HLA-DQ2 which was negitive but DQ8 was positive. I have come to relize that the doc that ran the tests before I went gluten-free may make up in his mind what he thinks is wrong. He just tried to put me on a anti-depressant for acid reflux. He also found I have a hiatal hernea that wasn't there 2 years ago and a gall bladder poylop. Thanks guys!
  14. It's okay. It will get easier. As far as the deserts. you can make some of your own. Foe easter I made a pudding pie frpm Pamala's Brand Gingersnap cookies. Next time I'll try arrowroot cookies. Also Whole Foods has a store brand line of gluten-free mixes. I tried the brownies. They taste like the real thing. I went to my first cookout since going gluten-free yesterday and made my own BBQ to take. It was good! It took me a good six weeks to greive and I'm still making adjustments 2 years later that I should have done at the start. Pick up Living Gluten Free for Dummies. It's helps. I also saw Gluten Free cooking for dummies that I'm most likely going to get.
  15. I understand the question my question to you is: Do you have Celiac or are you Gluten intolerant? We have both here that's why I ask. That also effects the answer to your question. I believe there are two diffrent "rating" systems. I don't understand the diffrence as I have not really researched it. If you have Ceilac then it is my understanding that any amount is damaging. There are some companies that use dedicated gluten-free lines and facilities. Therefore I think they are as safe as you can get. There are also companies that make gluten-free foods along with non gluten-free foods that are good at cleaning thier lines between runs. It takes time to learn all of that and it's a constant process. Stick to your diet! Just remember even the best of us have "accidents" it happens. I have had very few reactions to things that are labeled gluten-free but I still do look at what's in them and who makes them. I think there are some that just make all of thier stuff from scratch (or most of it) so that they can totally control what EXACTLY is in thier food. There are other's that make thier own stuff and buy packaged stuff too. It's all about what you feel is best for you and what you have the time to do. Being new to the diet is hard. The first six weeks were the hardest for me. You will get used to it and then it won't seem so confusing. Just remember not to be too hard on yourself.
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