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koober1

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Everything posted by koober1

  1. koober1
    If you want I put the website address to the blog I've kept going for my son, in my profile info. I've had it going since he came home from the NICU, but I would say the last year has documented our experience with bio-medical intervention and the diet, pretty well.
  2. koober1
    My son is still doing great. He's catching and throwing a ball now, doing sumersaults, jumping..... these are things he couldn't do a couple months ago. And he's speaking in small sentences now.
  3. koober1
    I also forgot to mention he has low tone too. Was in OT for a year. But when he got re-evaluated (after we started supplements and diet) he scored so well he didn't qualify. I couldn't blame them. He could do everything they asked of him.
  4. koober1
    My son was born 3 months premature. So alot of his "issues" we blamed on that. He was on alimentum formula cause he had such bad reflux. But I think it was a gluten intolerance now. He had issues sucking (I had to put him on cereal nipples so it was easier for him to get the milk out of the bottle) He's been in speech therapy since he was 18 months old...
  5. koober1
    I've had a hard time finding anything on the internet with high iron levels but low ferritin levels. Did you ever get an explanation for that?
  6. koober1
    Was wondering if any of you could tell me if this is par for the course. Before my son went on the gluten free diet his levels were as followed: iron = 169 (high) ferritin = 14 (low) After going on gluten free diet (5 months later) iron = 139 (still high but better) ferritin = 19 (still low but better) I'm assuming all this means he's getting...
  7. koober1
    WOW you just described my son! He is only 3, but before we put him on the diet and supplements, he didn't talk, had sensory issues (would drool when overwhelmed, didn't smell things, didn't feel temperature or pain) He was diagnosed with verbal dyspraxia or apraxia. But now he is speaking in small sentences and is just doing fantastic. My dr calls it gluten...
  8. koober1
    This question is in regards to my 3 year old son. I finally found a dr that would run tests on him and he came back with around 30 food sensativities. On his IgG he had about 30 (one of them being gluten, scored a 3) and on his IgE he had about 5 allergies, one of them being wheat. So we put him on a gluten free/casien free diet and also cut out the other...
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