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mmm1017

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Everything posted by mmm1017

  1. mmm1017
    Chat Transcript info: Welcome to Aveda Online. Your personal Advisor will be with you shortly. info: Hello. Thank you for your interest in Aveda Online. My name is Connie. How may I assist you? Connie: Hi Michelle michelle: I am looking for some hair products and maybe some body products, but I cannot have anything with gluten in it or I will become severly...
  2. mmm1017
    That would be an interesting thing to have. I have an appointment in 2 weeks, but I'm going to ask them to fax it to me.
  3. mmm1017
    My endocrinologist ordered a saliva test to check for gliadin antibodies among other things. He was the one who found that I had hypothyroid issues after all the other doctors had just written me off as having fibromyalgia and attributing anything that came up as being a symptom of that. The SIgA test was positive with a value of 31 U/ml. Borderline: 13-...
  4. mmm1017
    Oh, please, please help. I had an EGI done in September that showed the cracked river bed appearance, scalloping, and the biopsy turned up atrophy of the villi. My GI then ordered the Prometheus genetic tests, which just came back negative. She called to tell me that I definitely DO NOT have Celiac Disease, just IBS with gluten intolerance. I asked her about...
  5. mmm1017
    I was grain free for a month before seeing my GI. She asked me to eat as much bread as possible for 2 weeks, then go in for the blood test and biopsy (same day). The IGA was negative, but the biopsy showed atrophy in the villi "consistent with Celiac". She showed me photos from the biopsy of the cracked riverbed appearance and the scalloping. So my diagnosis...
  6. mmm1017
    And they were all positive for celiac. What now?
  7. mmm1017
    On the one hand, I hope it is negative for my children's sake. On the other hand, it would explain my medical history. Milk allergy (from infancy), IBS (diagnosed as a teen), migraines (since childhood), fibromyalgia (diagnosed 3 years ago), hypothyroid, and on and on. It would be wonderful for it all to go away by simply changing my diet. Well, maybe not...
  8. mmm1017
    I was gluten free for a little over 4 weeks when my egd was scheduled. I was told to eat as much bread as I could for the next 2 weeks and I did (whole wheat tortillas, 4-8 a day). I'm supposed to get the results tomorrow, but my GI said she saw all the classic signs of celiac (cracked river bed appearance, scalloping, etc.).
  9. mmm1017
    I had my bloodwork and my biopsy last Friday. I know that some GI doctors do the bloodwork first, but mine was pretty certain from my medical history that I was either celiac or gluten intolerant. While she was doing the EGD, she took pictures of the duodenal bulb (with a cracked-earth appearance) and the the duodenum (scalloping). She said it looked like...
  10. mmm1017
    I recently had a saliva test because I had suffered from all of those same symptoms for years! My doc said I tested positive for the gliadin antibody. He said I had a severe intolerance to gliadin (found in all grains?) and that it was not just gluten. He told me I was done with grains, corn too. Corn is NOT a vegetable, it's a grain. Good luck:)
  11. mmm1017
    I went to my neuro-endocrinologist today to discuss my saliva test. He was excited to explain the "why" of my thyroid issues, fibromyalgia, migraines, and slew of other issues. He said it was a severe intolerance to gliadin and I should avoid all grains like the plague. He said not to get confused with celiac disease, that it was only a subset. My saliva...
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